The Kylie Rowand Foundation

03/01/2026

Devestating update on Joseph. Our hearts break for the Maroney family as they navigate through the next steps with Him. Please hold them all in your hearts and prayers. 💛🎗️

* To Be Extra Clear Joseph does not know 100% the severity of this news so please don’t reach out to him directly. He does not have Facebook. We are respecting his wishes and protecting his hope and his peace 🙏🏻❤️

A little over 2 weeks ago, we went to MSK because Joseph was having severe back pain. A CT scan showed significant growth in most of his existing tumors. He currently has nine tumors in his abdomen. Some are as large as 10 cm, others around 6 cm, and some are smaller.

The trial medication Joseph had been taking is no longer effective in slowing the growth of his aggressive tumors, so that treatment has been stopped. At this time, there are no remaining options that are expected to provide meaningful benefit. This is devastating for us to share.

Our focus now is to have Joseph home and we are managing his pain so he can be as comfortable as possible. I’ve struggled to share this because our energy has been centered on caring for him and protecting his peace. But we know so many of you love him and continue to pray for him.

We are holding tightly to our faith. Every night before bed, we pray the rosary together as a family. All the little ones know it by heart. Joseph prays out loud, asking God for strength and courage. As his mother, hearing him pray this way has been both heartbreaking and incredible. He has faith and he has hope. Honestly this is what is helping to continue to give us hope. And we will continue to protect that and walk this with him. One day at a time! 🤍🤍🤍

02/19/2026

Remembering sweet Aydain today. Not because it’s his birthday or his anniversary, but because he’s remembered everyday even on the ordinary days. 🎗️💛

02/05/2026

👏🏻👏🏻👏🏻🎗️💛

01/29/2026

Sweet Hazel 💔

💔💔💔💔

I wish I had better news.

Hazel's Brain Mri this morning shows that Hazel has 4 new small spots of Neuroblastoma in her brain.

I am shocked.
I am devestated.
I am scared.

Im thankful to serve a mighty God who can carry me through this.

I wasnt expecting THIS. Her last PET looked good. She has felt great. It caught me by total surprise as I was sitting in Nuclear Medicine as seen that the report is back. I was not anxious and had no hesistation and I clicked on the scan... she feels great. Why would there be anything to worry about?!

😭😭😭.

She has an MIBG tomorrow. It'll tell us there is any new disease apart from the brain. I wasnt nervous aboit that one either... until now.

They had the radiologist double-triple check that it was disease. And it is. 😔

Please be in prayer for her. For no growth in those spots. For God to just take them away. For the MIBG and no new disease. For the spine MRI that will be coming.

I wish I could see the Tapestry God is creating with all this mess. I know there is a purpose. Im not sure it makes it hurt less though.

My sweet girl. I hate this for you. 💔

12/05/2025

Here is a recent update on our friend, Team Joseph that so many of you helped us raise money for 🤍🎗️🙏🏼

A lot has transpired this week and I have been hesitant to share until we had a “plan”.
We have had many discussions, many difficult conversations, and we have come up with a plan, a plan that will almost certainly need to be adjusted as we continue navigating the complications Joseph is facing.

But the truth is this: God is ultimately in charge of this plan.

We came in on Wednesday full of hope, ready to begin a clinical trial that we believed might offer Joseph a real chance at a cure. As many of you know, Joseph’s cancer “MPNST” , is an aggressive sarcoma, and we have been fighting it with everything we can.

On Wednesday, we learned that Joseph’s bilirubin had risen significantly, showing us that his liver was becoming acutely obstructed. An MR cholangiogram confirmed that the mass in that area has grown considerably. There is extensive disease. At this point, surgery does not appear to be an option.

However, we do know that placing a stent will relieve the obstruction and help Joseph’s liver function more effectively. While liver failure is a real concern, the stent procedure is happening today, and we are praying it goes smoothly and does exactly what it is meant to do.

The next step is to try chemotherapy again, this time with a slightly different combination of medications. We don’t know what the outcome will be. But we do know that God is in control, and that is what sustains us.

There is a quote from St. Madeleine Sophie Barat that speaks deeply to us right now:

“As iron is fashioned by fire and on the anvil, so in the fire of suffering and under the weight of trials, our souls receive that form which our Lord desires them to have.” – St. Madeleine Sophie Barat

We are holding onto faith, trusting that God is with Joseph, with us, and with everyone praying for our family. Thank you for your love, support, and continued prayers. They mean more than we can ever express.

10/14/2025

Please continue to pray for Joseph. He’s been through so much 💔

I wish we had better news to share …we got results … They found 2 more tumors and he’s gonna be put on the schedule for another surgery this week ….
One is 4 cm (in the lower left part of the abdomen )
The other one is around 3cm (middle upper portion of the abdomen) Joseph is okay. We are home doing normal things today and as long as Joseph doesn’t vomit he is safe at home until surgery. We will be getting the plan most likely today.

09/01/2025

Kylie Elizabeth. Her name carries so much weight. Daughter. Niece. Granddaughter. Friend. Angel. Fighter. God’s little warrior. These things, these names, they just scratch the surface. The weight of her life and her legacy can’t be summed up into a few sentences. She was diagnosed with cancer when she was 19 months old. She fought for 13 months until she was rescued from her pain and taken home. The weight of the lives that she changed, it’s hard to describe and understand. Miraculous. Profound. Life-changing. At just two years old she did all these things for thousands of people around the globe. She was a vessel and a light for Gods truth. Childhood cancer took our family and threw us into darkness. We will forever, be haunted by the way that it tortured our daughter, our innocent, beautiful baby girl. We will forever miss watching her grow, her beautiful smile, her laughter, her hugs, tears, all the memories she would be making with her siblings and everything in between. September is childhood cancer awareness month, but for us childhood cancer never ends and will always remind us of what it stole from us.

07/24/2025

🎗️🙏🏼 PLEASE READ 🙏🏼🎗️

Hi Team Kylie! I’m coming to you, full humility, in hopes that you can help us make the Maroney families mortgage payment for August (we are paying 3 months and this is the last!). For those of you who don’t know, their oldest son, Joseph, fought leukemia 10 years ago and has been cancer free until just a few months ago. Now at 17 (just turned 18 a few days ago 👏🏼) he is fighting an even more aggressive cancer. When his mom reached out my immediate response is 1. Prayer but 2. How can we help?! KRF has been struggling the last few years and although we don’t have the funds to help many families right now, I knew I had to find a way to help them, even if that meant fundraising every $ to make it happen. With ya’lls generosity the last few months we have been able to pay for June and July! This last year I’ve been really struggling with how we will proceed with KRF in terms of closing it up or starting over and in the coming weeks I will share more on what the looks/feels like. Until then, thank you for your continued support in helping so many families affected by pediatric cancer. Anything you can donate this month to go towards the Maroneys would be so generous and helpful!! You can Zelle: [email protected] or Venmo -rowand (last 4 of my number is 0447). THANK YOU!

07/22/2025

Update from Joseph’s mom. Lord lift the Maroney family and we pray for Joseph’s healing in your name!

Hospital inpatient day 28
Post op day 11
Joseph has been having lots of pain and discomfort. About a week ago he started having fevers that discovered a bacterial infection. He “celebrated” his 18th birthday inpatient. The next day he was back in the OR getting drains placed to drain fluids to drain the infection. He has been quite uncomfortable. He is still not eating because he still has the NG tube. The last days have been very difficult watching him in pain and not having the ability to help him but to just be by his side patiently waiting for the next steps. We can’t wait to hear his voice again and see him smiling again. The NG tube hurts his throat very much and he can’t speak with ease.
The kids at home are doing okay but we all miss being together the little ones keep asking for “a best day ever.” We started this a few summers ago where they make a list of the places they want to go and we go out for the day and conquer all those little wishes. As soon as we get Joseph better we will fulfill all these little wishes together.
God please grant us our biggest need and get Joseph better!!!
Hopefully this week brings some improvements 🙏🏻
Keep us in your thoughts