The Kylie Rowand Foundation

05/13/2026

A little Kylie joy for your Tuesday 💛

03/01/2026

Devestating update on Joseph. Our hearts break for the Maroney family as they navigate through the next steps with Him. Please hold them all in your hearts and prayers. 💛🎗️

* To Be Extra Clear Joseph does not know 100% the severity of this news so please don’t reach out to him directly. He does not have Facebook. We are respecting his wishes and protecting his hope and his peace 🙏🏻❤️

A little over 2 weeks ago, we went to MSK because Joseph was having severe back pain. A CT scan showed significant growth in most of his existing tumors. He currently has nine tumors in his abdomen. Some are as large as 10 cm, others around 6 cm, and some are smaller.

The trial medication Joseph had been taking is no longer effective in slowing the growth of his aggressive tumors, so that treatment has been stopped. At this time, there are no remaining options that are expected to provide meaningful benefit. This is devastating for us to share.

Our focus now is to have Joseph home and we are managing his pain so he can be as comfortable as possible. I’ve struggled to share this because our energy has been centered on caring for him and protecting his peace. But we know so many of you love him and continue to pray for him.

We are holding tightly to our faith. Every night before bed, we pray the rosary together as a family. All the little ones know it by heart. Joseph prays out loud, asking God for strength and courage. As his mother, hearing him pray this way has been both heartbreaking and incredible. He has faith and he has hope. Honestly this is what is helping to continue to give us hope. And we will continue to protect that and walk this with him. One day at a time! 🤍🤍🤍

02/19/2026

Remembering sweet Aydain today. Not because it’s his birthday or his anniversary, but because he’s remembered everyday even on the ordinary days. 🎗️💛

02/05/2026

👏🏻👏🏻👏🏻🎗️💛

01/29/2026

Sweet Hazel 💔

💔💔💔💔

I wish I had better news.

Hazel's Brain Mri this morning shows that Hazel has 4 new small spots of Neuroblastoma in her brain.

I am shocked.
I am devestated.
I am scared.

Im thankful to serve a mighty God who can carry me through this.

I wasnt expecting THIS. Her last PET looked good. She has felt great. It caught me by total surprise as I was sitting in Nuclear Medicine as seen that the report is back. I was not anxious and had no hesistation and I clicked on the scan... she feels great. Why would there be anything to worry about?!

😭😭😭.

She has an MIBG tomorrow. It'll tell us there is any new disease apart from the brain. I wasnt nervous aboit that one either... until now.

They had the radiologist double-triple check that it was disease. And it is. 😔

Please be in prayer for her. For no growth in those spots. For God to just take them away. For the MIBG and no new disease. For the spine MRI that will be coming.

I wish I could see the Tapestry God is creating with all this mess. I know there is a purpose. Im not sure it makes it hurt less though.

My sweet girl. I hate this for you. 💔

12/05/2025

Here is a recent update on our friend, Team Joseph that so many of you helped us raise money for 🤍🎗️🙏🏼

A lot has transpired this week and I have been hesitant to share until we had a “plan”.
We have had many discussions, many difficult conversations, and we have come up with a plan, a plan that will almost certainly need to be adjusted as we continue navigating the complications Joseph is facing.

But the truth is this: God is ultimately in charge of this plan.

We came in on Wednesday full of hope, ready to begin a clinical trial that we believed might offer Joseph a real chance at a cure. As many of you know, Joseph’s cancer “MPNST” , is an aggressive sarcoma, and we have been fighting it with everything we can.

On Wednesday, we learned that Joseph’s bilirubin had risen significantly, showing us that his liver was becoming acutely obstructed. An MR cholangiogram confirmed that the mass in that area has grown considerably. There is extensive disease. At this point, surgery does not appear to be an option.

However, we do know that placing a stent will relieve the obstruction and help Joseph’s liver function more effectively. While liver failure is a real concern, the stent procedure is happening today, and we are praying it goes smoothly and does exactly what it is meant to do.

The next step is to try chemotherapy again, this time with a slightly different combination of medications. We don’t know what the outcome will be. But we do know that God is in control, and that is what sustains us.

There is a quote from St. Madeleine Sophie Barat that speaks deeply to us right now:

“As iron is fashioned by fire and on the anvil, so in the fire of suffering and under the weight of trials, our souls receive that form which our Lord desires them to have.” – St. Madeleine Sophie Barat

We are holding onto faith, trusting that God is with Joseph, with us, and with everyone praying for our family. Thank you for your love, support, and continued prayers. They mean more than we can ever express.