Cure SCG

09/30/2026

Today is LGMD Awareness Day. But for parents like us, every day is LGMD day. 💚💜

It’s there when we help our child get up, worry about another fall, or plan an outing around how far they can walk.

It’s the quiet worry about tomorrow—and the joy when our child does something they have worked so hard to achieve.

We wish we could take the struggle away. We keep looking for answers, asking questions and hoping that research will bring more possibilities.

To every parent raising a child with limb-girdle muscular dystrophy: you don’t have to feel strong every day. You can feel hopeful and frightened at the same time. You can be grateful for today and still wish things were different.

Today, we want the world to understand what our families live with every day—and to see our children beyond their diagnosis. Their personalities. Their friendships. Their dreams.

To every family living this journey: we see you. We share your hope. And we will keep speaking up alongside you.

05/28/2026

05/07/2026

Every child deserves the chance to run, play, dream, and grow without limits.

But for children living with Limb-girdle muscular dystrophy type 2C, everyday life can become increasingly difficult as muscle weakness progresses over time.

Today, we share the stories of three incredible children —Jayla, Donia and Samy — whose journeys are filled with courage, resilience, and hope.

They are more than a diagnosis.
More than their condition.
They are children with dreams, joy, and futures worth fighting for.

Over the coming weeks, we will share their stories to raise awareness and help bring hope to families affected by LGMD 2C.

Every donation helps move research one step closer to better treatments — and one day, a cure.
You can make it feel like a button by formatting like this:

👉 READ THEIR STORIES
https://www.curescg.org/our-stories

👉 SUPPORT RESEARCH & DONATE
https://www.curescg.org/donate

04/23/2026

Art from the Heart: A Stroke of Gratitude 🎨❤️
For the past few months, the incredible team at has been so much more than a medical staff; they have been Sara’s source of strength, comfort, and care.
Sara wanted to find a way to truly say “thank you” for the beautiful way they looked after her, and she knew she couldn’t do it better than through her art. She poured her heart into these paintings as a gift for the team, hoping it serves as a lasting reminder of the incredible impact they have on their patients every single day.
On behalf of CureSCG, we are deeply grateful to the UF team for their kindness, expertise, and for walking this journey with Sara. 🏥✨