Being Positioned

Being Positioned Creating life-changing experiences for people with rare genetic conditions. 💛
Journeys • Faith-based Wellness Retreats
Nonprofit | Get involved ⬇️

We spend so much energy trying to rush past the rain, fix it, skip it, get to the rainbow already. But maybe the goal is...
08/26/2026

We spend so much energy trying to rush past the rain, fix it, skip it, get to the rainbow already. But maybe the goal isn’t to avoid the rain at all, maybe it’s learning you can be okay in it.

You don’t have to have it all figured out or feel hopeful every second to be doing this right. Some days just call for sitting in the rain a little longer, and that’s allowed too. 🌈

08/23/2026

Not saying it fixes everything. But 10 minutes of sun and some fresh air has a way of putting things back into perspective.

Next time you feel the spiral starting, try it before anything else.

08/22/2026

Your body isn’t broken. It’s talking. Christina shares the mindset shift that helped her stop panicking at symptoms and start listening to them instead.

What is your body trying to tell you right now?

person and their dream trip.A few polaroids from the road 🤍These are the moments journeys are built around, the ones peo...
08/19/2026

person and their dream trip.

A few polaroids from the road 🤍

These are the moments journeys are built around, the ones people didn’t think they’d get to have because of their rare genetic condition.

Want to know if you qualify? link in bio.

Crystal & Eric take New York City 🗽

Denise & Ted rocking New York City 🏙️

Nancy & Wally in the trails of Yosemite

Justin & Edmarie experiencing some Disney magic ✨

Brad enjoying the New York City lights ⭐️

KC road-tripping through the Smoky Mountains 🏔️

Noah’s family at a Braves game ⚾️

08/17/2026

It’s easy to fixate on what you don’t have, especially when it feels like it’s everywhere around you. Christina shares how comparison started to turn into bitterness for her, and the moment she realized she had a choice in where her focus went.

Grieving what you don’t have is important. But staying fixated there isn’t the same as grieving, it’s just where bitterness grows.

What’s one thing you’ve been fixating on lately that you feel ready to shift your gaze away from, toward gratitude instead? Tell us below. 👇

08/17/2026

Some days are just rain days, and that’s okay. At Being Positioned, we believe every storm is still leading somewhere so hang in there, and send this to someone who needs it right now.

08/14/2026

Here’s a thought for you: We spend so much energy trying to fix our bodies. What if today, you just let yours have some fun instead?

Not every victory gets celebrated.Sometimes the biggest accomplishment is simply showing up when your circumstances made...
08/12/2026

Not every victory gets celebrated.

Sometimes the biggest accomplishment is simply showing up when your circumstances made it incredibly hard.

This is for the people who keep trying. The ones who keep showing up. The ones whose strength often goes unnoticed because their victories aren’t always visible.

If someone came to mind while reading this, send it to them. Let them know their effort mattered. Sometimes a few simple words can mean more than we realize. ⭐.

08/06/2026

Chronic illness doesn’t just change your body. It can change how you see yourself.
For many women with NF2 or VHL, that includes real, visible changes: Facial paralysis, hearing loss, mobility changes. It’s a loss that’s easy to overlook, but it’s real grief: grieving the identity of who you were.
That’s part of why our retreat ends the way it does, with a sunset photo shoot. We take portraits of each woman there, not to erase what’s changed, but to celebrate who she still is, exactly as she is now. It becomes this beautiful celebration, and for a lot of women, it’s the start of learning to love themselves again.

If this loss of self is something you’ve been carrying, we’d love to meet you at our October retreat, open to women with NF1, NF2, Scwannomatosis and VHL. October 1st–4th. Apply at beingpositioned.org.

08/06/2026

What you eat can help your body heal, even when medicine can’t do it alone.

That’s something Christina, our founder, learned the hard way. After her diagnosis, one of the first things a doctor told her was that food wouldn’t shrink her tumors, so she took that as permission to eat whatever she wanted. But healing isn’t just about the tumors, it’s about giving your body what it needs to get through chemo, chronic stress, and everything else that comes with it.

That’s part of why nutrition is built into our retreats. We bring in a private chef who makes intentional, doable meals, whole foods, protein, veggies, and carbs and we send you home with the recipes and the why behind them, including how to support healthy blood sugar regulation.

If you’ve ever been told food doesn’t matter and want to know what actually helps, this retreat might be for you. October 1st–4th. Apply at beingpositioned.org.

*Not medical advice

Address

Alpharetta, GA
30004, 30005, 30009, 30022

Website

Alerts

Be the first to know and let us send you an email when Being Positioned posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Contact The Organization

Send a message to Being Positioned:

Shortcuts

Share

Category