Being Positioned

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Being Positioned Creating life-changing experiences for people with rare genetic conditions. 💛
Journeys • Faith-based Wellness Retreats
Nonprofit | Get involved ⬇️

10/12/2026

Living with a rare chronic illness can get lonely, and sometimes the biggest relief is just being in a room with people who get it.

This is day two of our retreat for women with chronic illnesses, and it’s a little peek into why we built this space. Tag a friend who deserves a place like this.

Every spot at this retreat is covered by us through donations, so cost never stands in the way. If you’re a donor, thank you for making this possible, and if you’d like to apply for next year, comment “REST” and we’ll add you to the waitlist.

Part 3 is coming next!

10/11/2026

Everyone tells you to stay positive when you’re sick but nobody tells you how to actually stop bracing for the next bad thing.

Your brain isn’t wired to make you happy, it’s wired to guess right, and if you’ve rehearsed bad outcomes for years, it gets really good at finding proof for them.

The good news is that means it can be retrained too.

This isn’t about staying positive all the time, we get it, life gets hard, but you can choose to focus on everything that could go wrong, or you can choose to notice what you do have and take back some control over your thoughts and that mental space.

A few things that can help: catch the bracing thought when it shows up and name it, something like “that’s the old pattern talking.” Ask yourself what if this goes well instead of what if it doesn’t. And remember being realistic about your illness and rehearsing worst-case scenarios aren’t the same thing.

Your condition can still be incredibly hard. You don’t have to make it harder by waiting for the next bad thing on top of that.

What’s your version of waiting for the other shoe to drop? Tell us below

10/10/2026

Come spend the days before our retreat with us! 🤍

From making personalized cards for every woman, to a road trip to Florida, to a pool alarm that went off the second we opened the door (you’ll see), this is everything that happens before the women walk through the door. Our founder Christina has been living with NF2 for 10 years now, and everything she’s learned about taking care of her body is why we do this retreat.

This retreat is covered entirely by donations, so if you’re a donor, thank you, this is what you made possible.

Part 2 is up next!

10/08/2026

When you have a rare genetic disorder, there’s no end to what it takes from you. In this group alone, it’s stolen hearing, vision, mobility, organs, dreams, relationships, children, careers, finances…the list goes on.

But for 3 days, these women got to experience the rare opportunity when their diagnosis gives them something back. 🥹

One of the women said, “it took me having VHL to get me here this weekend.” And that’s exactly why Being Positioned exists. To help shift the narrative of what living with these conditions has to look like and disrupt the endless string of loss.

A huge thank you to the KALEO team for helping us put together this beautiful weekend for the most deserving women. We already can’t wait until next year! 💛

10/06/2026

Getting frustrated at your body when you’re sick is so normal, It can feel like it’s let you down.

Your body is working as hard as it can, and it’s fighting this illness right alongside you. That might be worth remembering the next time you’re feeling annoyed at it.

Send this to someone who needs the reminder today 🤍

What would you say to your body right now if it could hear you?

10/04/2026

Our bodies are basically stuck in perpetual summer, and that mismatch might be affecting you more than you’d think.

The perfect example of wanting eternal summer no matter what it does to your body? Olaf. That cute little snowman we all love, dreaming about sunshine even though it would literally melt him haha. Just like him, we need to embrace the cold months too, the falling leaves, the shorter days, all of it.

Summer comes with a lot of light, a lot of fruit, and a lot of energy, and most people thrive in it. But once fall rolls around, our habits need to shift too.

We’re not really built to stay in “summer mode” all year.

Living more in step with the seasons can make a real difference, both in your body and your mental health. A couple small things that help: eating with the sun, so breakfast after sunrise and dinner before sunset, and swapping out bright white lights at home for dim, amber, or red ones once it gets dark. Think campfire, not daylight.

Our bodies are still wired for these rhythms, even if modern life mostly ignores them. Small shifts like these are one way to work with your body through the transition instead of against it.

Comment “seasonal” and we’ll send you the profile for a seasonal food service worth checking out.

10/04/2026

Living with a rare or chronic condition means becoming a walking encyclopedia of symptoms nobody can explain.

At some point all you can do is laugh about it.
Tag someone who’d answer this exact same way 😂


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chronic illness, rare disease, invisible illness, life with a diagnosis, chronically ill, faith and healing, Christian faith, hope in hard times, identity beyond diagnosis, rare genetic disorder, NF2, autoimmune life, mental health journey, nervous system healing, wellness retreat, healing journey, disability awareness, doctor appointments, symptoms

Looking fine and feeling fine aren't the same thing.A lot of people can hide behind normal labs and a small frame for ye...
09/30/2026

Looking fine and feeling fine aren't the same thing.

A lot of people can hide behind normal labs and a small frame for years while their body struggles under the surface.

Hormones can be a mess, digestion can be off, your skin can be breaking out, and still, nobody asks a single question because everything looks okay from their perspective.

Eventually, your body finds a way to speak up.

This isn't about a number, it's about whether what you're eating is actually giving your body what it needs to function.

Are you feeding yourself food that nourishes you, or just whatever's convenient right now? Tell us below 👇

*Not medical advice

09/26/2026

This is what peace looks like here.

We’re so excited to be welcoming 12 women in just a few days, and can’t wait for them to experience this for themselves.

VHL

Bitterness isn’t a character flaw. It’s usually just a sign your eyes have been stuck on the same painful thing for a lo...
09/25/2026

Bitterness isn’t a character flaw. It’s usually just a sign your eyes have been stuck on the same painful thing for a long time.

If there’s something you don’t have, something you’re still mourning, that’s real and it deserves that time to feel it, but you don’t have to stay there forever.

Slowly, you can start noticing what’s still yours. The freedom. The small luxuries. The things you might be overlooking because your gaze has been somewhere else.

What’s something you’ve been fixated on? What would it look like to shift your focus toward gratitude instead?

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Alpharetta, GA
30004, 30005, 30009, 30022

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