Spina Bifida Association

Spina Bifida Association Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of all those affected by Spina Bifida.
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September is Hydrocephalus Awareness Month and Sepsis Awareness Month — two observances that are especially important to...
09/01/2026

September is Hydrocephalus Awareness Month and Sepsis Awareness Month — two observances that are especially important to the community that we serve.

Hydrocephalus, a buildup of fluid in the brain, affects many people with Spina Bifida, and about 60–80% need a shunt to help manage it. People with Spina Bifida may also face a higher risk of urinary tract, shunt-related, and skin infections. If one becomes severe, it can lead to sepsis, the body’s extreme, life-threatening response that can damage tissues and organs.

Throughout September, we’ll be sharing more about hydrocephalus and sepsis, how they can affect people with Spina Bifida, and why early recognition of the signs of a potential problem is critical.

Awareness gives people the knowledge to recognize changes, ask questions, and advocate for their health.

Our community is getting vocal about protecting access to the individualized, medically necessary urologic and ostemy su...
08/31/2026

Our community is getting vocal about protecting access to the individualized, medically necessary urologic and ostemy supplies that meet their unique needs.

Kailey’s story is one of many. Your voice can make a difference.

📣 Visit the Spina Bifida Association’s Advocacy page to learn how to contact your elected officials and speak up about access to medically necessary supplies.

🔗 Get Involved: https://www.spinabifidaassociation.org/ways-to-get-involved/advocate

GET LOCAL. GET VOCAL.


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🏌️‍♀️⛳️ Community Fundraiser Spotlight!We are incredibly grateful to Cassie Pigg, her family, and the entire Carmi commu...
08/28/2026

🏌️‍♀️⛳️ Community Fundraiser Spotlight!

We are incredibly grateful to Cassie Pigg, her family, and the entire Carmi community for coming together for the 2nd Annual Spina Bifida Association Mulligan Madness Golf Tournament this August at Carmi Country Club, in honor of their sweet Noah. 💙

Together, they raised an incredible $20,793 for the Spina Bifida Association!

Cassie shared: “We are beyond humbled, and this has truly been a labor of love. Our little community has a population of less than 5,000, so achieving something like this is truly unbelievable. This is a prime example of how small towns can really step up in a big way!"

A huge thank you to Cassie, the Pigg family, and the entire Carmi community for putting your hearts behind this event and making such a meaningful difference. Your kindness and generosity are already making a profound impact and providing hope to so many.

📣 Interested in bringing your community together to support the Spina Bifida Association? Contact Lindsay Stanek, Senior Development Manager, at [email protected] to learn more about hosting a community event.

We asked big. You answered even bigger. When we asked our community to show up, you did.Because of your generosity, com...
08/27/2026

We asked big. You answered even bigger. When we asked our community to show up, you did.

Because of your generosity, compassion, and belief in the Spina Bifida community, we raised $43,861 on our Day of Giving. Every gift, every share, and every act of kindness helped move hope forward.

From everyone at the Spina Bifida Association, thank you for being the answer.

Together, we're creating a better & brighter future for individuals and families impacted by Spina Bifida. We couldn't do it without you. Thank you.

🌟 Walk-N-Roll Your Way is coming to communities across the country—and Portland and Charleston are first in the lineup!C...
08/26/2026

🌟 Walk-N-Roll Your Way is coming to communities across the country—and Portland and Charleston are first in the lineup!

Can’t make it to an SBA chapter-hosted event? Walk-N-Roll Your Way gives community members the opportunity to gather, walk, roll, and fundraise together—wherever they are.

Every step, roll, and dollar raised helps provide trusted resources, connections, advocacy, and programs for individuals and families living with Spina Bifida.

💙 Joiin us in Portland, Charleston, or any of the 5 Walk-N-Roll Your Way locations! Register today and be part of Walk-N-Roll.

🔗 Register or learn more: https://vist.ly/5g9tu

Only a few hours remain to make TWICE the impact.The clock is ticking. There are only a few hours left to help us reach ...
08/26/2026

Only a few hours remain to make TWICE the impact.

The clock is ticking. There are only a few hours left to help us reach our goal of 166 gifts and make every dollar go twice as far through our generous matching gift thanks to Paul and Diane Ge**er.

If you've been waiting, now is the time.

Don't let this opportunity pass you by. Give before midnight.

DONATE HERE: https://vist.ly/5g66e

🎯 5 PM GIVING DAY CHALLENGE ⚡ POWER HOUR ⚡25 Donors. 60 Minutes.If we reach 25 gifts by 6 PM, we'll celebrate by unlocki...
08/25/2026

🎯 5 PM GIVING DAY CHALLENGE ⚡ POWER HOUR ⚡

25 Donors. 60 Minutes.

If we reach 25 gifts by 6 PM, we'll celebrate by unlocking an additional $1,660 generously sponsored by SBA’s Board of Directors.

Your gift is already being matched. Now you can help unlock even more support. We need 166 donors today. Will you be one of these crucial 25?

Donate now: https://vist.ly/5g5q5

BECAUSE OF YOU...We're making incredible progress on our Day of Giving! We’re currently at 73 gifts, with just 93 more t...
08/25/2026

BECAUSE OF YOU...

We're making incredible progress on our Day of Giving! We’re currently at 73 gifts, with just 93 more to go to reach our goal of 166.

Because of you, hope is already moving forward. Every donation, every share, and every act of generosity brings us closer to today's goal of 166 gifts.

If you've already given, thank you. If you haven't, there's still time to make your impact—and every gift is still being matched!

Help us finish strong: https://vist.ly/5g53h

TODAY'S THE DAY!What Moves Hope Forward?You Do.Every gift made today helps create a better & brighter future for individ...
08/25/2026

TODAY'S THE DAY!

What Moves Hope Forward?
You Do.

Every gift made today helps create a better & brighter future for individuals and families impacted by Spina Bifida—and thanks to a generous matching gift from Paul and Diane Ge**er, parents of a daughter with Spina Bifida, every dollar goes twice as far.

Let's make today one to remember.

Give now here: https://vist.ly/5f2xk

🎒🛝 Happening Today!We're excited to welcome Dr. Ariel Mansholt, OTR/L, CPSI from Landscape Structures, Inc. as the featu...
08/20/2026

🎒🛝 Happening Today!

We're excited to welcome Dr. Ariel Mansholt, OTR/L, CPSI from Landscape Structures, Inc. as the featured presenter for Back to School: Becoming an Advocate & Champion for Inclusive Play.

Dr. Mansholt is a pediatric and adolescent occupational therapist with clinical experience in outpatient and school settings, working with children, teens, and their families from 18 months to 21 years old. Her expertise in child development and inclusive play will provide valuable insights and practical strategies for creating accessible, engaging play spaces for all.

Join us to learn how inclusive playgrounds can support children with Spina Bifida and how you can become an advocate for meaningful, accessible play in your community.

📅 Today – August 20
⏰ 7 PM ET | 6 PM CT | 5 PM MT | 4 PM PT
🔗 Register now: https://vist.ly/5cnje

Address

2000 Duke Street, Ste 300
Alexandria, VA
22314

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12029443285

Website

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