Spina Bifida Association

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Spina Bifida Association Since 1973, SBA has been the only national voluntary health agency solely dedicated to enhancing the lives of all those affected by Spina Bifida.
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10/16/2026

📣 ICYMI: What’s Happening at SBA! 💙

There’s a lot happening across the Spina Bifida community during Spina Bifida Awareness Month! Have you caught up on the latest edition of What’s Happening? Here’s a peek at what’s inside. 👀

🎶 Don’t Stop Us Now! — Celebrate Spina Bifida Awareness Month with our high-energy community video!

👟 Walk-N-Roll® for Spina Bifida — Find an upcoming event, join Team Spina Bifida, or participate your way.

📚 Upcoming Educational Events — Explore upcoming webinars on feeding and swallowing, oral hygiene, and independence.

💡 Resource Spotlight — Learn more about precocious puberty in children with Spina Bifida and hydrocephalus.

📅 SBA Chapter Events — Discover opportunities to connect, learn, and celebrate with chapters across the country.

🔬 Participate in Research — Explore current studies and research opportunities for adults, children, families, and expectant families.

💙 Backbone Alliance — Help us welcome 10 new monthly donors this October to support SBA’s mission.

🤝 Sponsor Spotlight — Check out resources and information from our corporate partners on incontinence care, catheterization, and more.

📩 Catch up on everything happening!

Read the latest What’s Happening newsletter: https://vist.ly/5nrvx

Our corporate partners play an important role in supporting SBA's programs, advocacy, education, and community connectio...
10/16/2026

Our corporate partners play an important role in supporting SBA's programs, advocacy, education, and community connections. We're grateful to share the following sponsored message from Coloplast, one of the organizations helping build a stronger future for the Spina Bifida community.

"Not all Spina Bifida challenges are visible. Bowel challenges like chronic constipation or incontinence can be a daily challenge for people living with Spina Bifida, but they often go unseen and unaddressed. Because these
challenges aren't always visible to others, they can be difficult to talk about, leaving some individuals feeling uncomfortable discussing the impact on their daily lives.

This Spina Bifida Awareness Month, let's help raise awareness about the importance of
bowel health, bowel management, and having honest conversations with healthcare
providers about available treatment options.

Peristeen® Plus Transanal Irrigation System is one bowel management option that may help some individuals have more confidence and control of their bowels. Not sure how to take the next step? Visit Coloplast Care to learn more and access resources like the Bowel Check to help you talk with your healthcare provider about bowel management: https://vist.ly/5npcx

𝑃𝑟𝑖𝑜𝑟 𝑡𝑜 𝑢𝑠𝑒, 𝑟𝑒𝑓𝑒𝑟 𝑡𝑜 𝑝𝑟𝑜𝑑𝑢𝑐𝑡 𝑙𝑎𝑏𝑒𝑙𝑙𝑖𝑛𝑔 𝑓𝑜𝑟 𝑐𝑜𝑚𝑝𝑙𝑒𝑡𝑒 𝑝𝑟𝑜𝑑𝑢𝑐𝑡 𝑖𝑛𝑠𝑡𝑟𝑢𝑐𝑡𝑖𝑜𝑛𝑠 𝑓𝑜𝑟 𝑢𝑠𝑒, 𝑐𝑜𝑛𝑡𝑟𝑎𝑖𝑛𝑑𝑖𝑐𝑎𝑡𝑖𝑜𝑛𝑠, 𝑤𝑎𝑟𝑛𝑖𝑛𝑔𝑠 𝑎𝑛𝑑 𝑝𝑟𝑒𝑐𝑎𝑢𝑡𝑖𝑜𝑛𝑠. 𝐹𝑜𝑟 𝑖𝑚𝑝𝑜𝑟𝑡𝑎𝑛𝑡 𝑠𝑎𝑓𝑒𝑡𝑦 𝑖𝑛𝑓𝑜𝑟𝑚𝑎𝑡𝑖𝑜𝑛 𝑓𝑜𝑟 𝑃𝑒𝑟𝑖𝑠𝑡𝑒𝑒𝑛 𝑃𝑙𝑢𝑠 𝑝𝑙𝑒𝑎𝑠𝑒 𝑣𝑖𝑠𝑖𝑡: 𝐼𝑛𝑡𝑟𝑜𝑑𝑢𝑐𝑖𝑛𝑔 𝑃𝑒𝑟𝑖𝑠𝑡𝑒𝑒𝑛® 𝑃𝑙𝑢𝑠

For many children with Spina Bifida, complex medical care begins early in life. Awareness starts with understanding the ...
10/15/2026

For many children with Spina Bifida, complex medical care begins early in life. Awareness starts with understanding the experiences and support children and families may need.

Explore resources: https://vist.ly/5nk9p

🪥 REGISTRATION IS NOW OPEN!COMMUNITY INFORMATION SESSION: Oral Hygiene & Independence in Spina BifidaMaintaining oral hy...
10/15/2026

🪥 REGISTRATION IS NOW OPEN!

COMMUNITY INFORMATION SESSION: Oral Hygiene & Independence in Spina Bifida

Maintaining oral hygiene can be challenging when motor skills, sensory needs, positioning, or independence affect daily care. Join SBA for a practical session exploring strategies to support successful oral hygiene routines and greater independence.

📅 November 10, 2026
⏰ 7 PM ET / 6 PM CT / 5 PM MT / 4 PM PT

Topics include:
🪥 Factors that can impact oral hygiene skills
🛠️ Adaptive tools and toothbrushing strategies
💪 Supporting independence with daily care and self-feeding
🤝 Collaborating with healthcare professionals

🎤 Featuring Dr. Alam, Speech-Language Pathologist

A 30-minute interactive Q&A will follow the presentation, with an opportunity to ask questions about feeding, swallowing, and oral care.

🔗 Register today: https://vist.ly/5nhj6

What an incredible day in Nashville! Thank you to everyone who joined us for the Walk-N-Roll for Spina Bifida and helped...
10/14/2026

What an incredible day in Nashville! Thank you to everyone who joined us for the Walk-N-Roll for Spina Bifida and helped make this event so special. 💙

🙌 242 registered participants!
💰 $25,000 raised to date!

From bringing the Spina Bifida community together to raising awareness and funds to support the mission of the Spina Bifida Association, Nashville showed up in a BIG way!

A special thank-you to our participants, families, volunteers, community partners, sponsors, and supporters who made this event possible. Your involvement makes a difference! 💙

And thank you to Monroe Carell Jr. Children’s Hospital at Vanderbilt for hosting us indoors and helping us keep the celebration going despite the weather!

✨ The impact doesn’t stop here! Fundraising continues, so there’s still time to support the mission and help us reach even more people in the Spina Bifida community.

Meet Lori House, a proud member of our Backbone Alliance. 💙Lori, 66, lives with lipomyelomeningocele, a form of Spina Bi...
10/13/2026

Meet Lori House, a proud member of our Backbone Alliance. 💙

Lori, 66, lives with lipomyelomeningocele, a form of Spina Bifida. When she lost bladder function in kindergarten, her parents were told she was “just being lazy.” For years she went without answers. Then a new urologist stepped in and changed everything.

Lori went on to raise three children, become a CPA, and work full time for 40 years. Today she gives monthly so the next generation gets the care she had to wait for.

“I am fortunate enough to have a little extra money to support something that will help others with the medical care my childhood lacked.”

This Spina Bifida Awareness Month, will you join Lori? Whether it’s $10 or $50 a month, your gift helps people with SB get the care they deserve, sooner.

👉 Join the Backbone Alliance: https://bit.ly/BBA-2026

📣 Email Address Reminder!As a reminder, all Spina Bifida Association email addresses now end in .org instead of .org.📧 E...
10/13/2026

📣 Email Address Reminder!

As a reminder, all Spina Bifida Association email addresses now end in .org instead of .org.

📧 Example:
Old: [email protected]
New: [email protected]

✅ Please update your contacts and add our new email addresses to your safe sender list to help ensure you receive our emails!

🔗 Find updated contact information: https://vist.ly/5n79t

📣 Study Opportunity: Living Well with Spina BifidaHow do teens and adults with Spina Bifida navigate health challenges l...
10/12/2026

📣 Study Opportunity: Living Well with Spina Bifida

How do teens and adults with Spina Bifida navigate health challenges like incontinence—and how does it affect everyday life?

The Indiana University School of Medicine wants to hear your experiences and how they change over time.

🔗 Learn more & participate: https://vist.ly/5n4cy

Spina Bifida Awareness Month may happen every October, but the conversations it starts can make a difference all year lo...
10/12/2026

Spina Bifida Awareness Month may happen every October, but the conversations it starts can make a difference all year long. 💙

This month is all about celebrating the Spina Bifida community, sharing information, highlighting important issues, and recognizing some of the people and programs doing incredible work on behalf of those living with Spina Bifida.

There’s still time to add your voice. Share a post. Start a conversation. Advocate for an issue that matters to you. Celebrate someone in the Spina Bifida community.

Find ideas and ready-to-share resources in our Spina Bifida Awareness Month Toolkit:
https://vist.ly/5mzx5

Help us keep the conversation going throughout October and beyond. 💙

Tag us and use .

Address

2000 Duke Street, Ste 300
Alexandria, VA
22314

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm

Telephone

+12029443285

Website

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