Mothers About Preventing Sickle S-Cell

Mothers About Preventing Sickle S-Cell An online support group for Mothers that have Children with Sickle Cell, Mothers & Children with Sickle Cell, & Mothers that want to learn more.

To advovate for the better treatment of Sickle Cell Patients, in healthcare facilities, doctors offices
and hospitals around the world. To make Doctors and Nurses aware of their treatment of Sickle Cell Patients.

Parents, complete our short survey by the 31st December, to have your say on ‘A Parent’s Guide to Managing Sickle Cell D...
12/27/2019

Parents, complete our short survey by the 31st December, to have your say on ‘A Parent’s Guide to Managing Sickle Cell Disease’. Find out more and give your feedback here: sicklecellsociety.org/parentsguidefe…

If your newborn baby or older child has sickle cell then we want your feedback on our 'Parent's Guide to Managing Sickle Cell Disease'

12/21/2019

You may know people who have struggled with sickle cell anemia in their family. If so, you know how difficult that can be. Kids Rock Cancer is an innovative program

Hey this is for you Moms
09/11/2019

Hey this is for you Moms

It’s National Sickle Cell month and I’m back with a new post about raising children with Sickle Cell anemia. When my daughter was little, I heard so many horror stories online that we didn’t do much because I lived in fear. As she grew, I quickly learned that being afraid all of the time was ....

Day 7:
09/08/2019

Day 7:

09/04/2019
School is about to begin and along with your form you have to make sure that   are   when it comes to our   They    Stud...
09/04/2019

School is about to begin and along with your form you have to make sure that are when it comes to our They Students with sickle cell disease may:

1)need to go to the school nurse's office and take medication to help manage pain.

2)need to drink water throughout the day to avoid dehydration, which increases sickling of red blood cells

3) can be tired in class and need occasional rests from classroom activities

4)need to have classroom air temperature adjusted to avoid becoming overheated or too , which can trigger episodes of pain
experience symptoms that require immediate , such as severe , , breathing difficulties, , or paleness, extreme fatigue, of hands and feet, severe headaches, seizures, and other neurologic symptoms (such as sudden vision changes, slurred speech, weakness or inability to move any part of the body, or loss of consciousness)

What Teachers Can Do:
1)Students with disease may miss class time or be absent for doctor visits or hospital stays. Give these students special consideration regarding missed instruction, assignments, and testing.

2) or pain can make some students appear that they are not motivated to learn. Knowing the well can help you make a proper assessment.

3)Kids and teens with sickle cell disease may not be able to play contact sports or participate in strenuous exercise — check with their parents. Otherwise, encourage your students with sickle cell disease to participate in moderate physical exercise and other school activities.

4)Allow your student to carry a bottle of water and take bathroom breaks.
5)Allow breaks from instruction and activities when necessary.
6)Avoid outdoor activities when it's very hot or very cold.

7)Have a plan in place in case your students experience any symptoms that require immediate medical attention.

Address

Alexandria, VA

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