The Heart of Gold Sickle Cell Foundation of Northern Virginia, Inc.

08/24/2026

Join The Heart of Gold Sickle Cell Foundation of Northern Virginia in supporting the
20th Anniversary Cure Sickle Cell Now 5K Walk/Run! ❤️🩸

📅 September 12, 2026
�📍 Howard University – Louis Stokes Health Sciences Library Courtyard

Come walk, run, and stand with the sickle cell community as we raise awareness and continue the fight for a cure!

👕 Register by TODAY, August 24, to guarantee your event T-shirt!�🎉 Activities • Vendors • Prizes
Register: HUlCureSCnow2026.eventbrite.com

08/19/2026

Supporting Sickle Cell Care in Northern Virginia! 💛

The Heart of Gold Sickle Cell Foundation of Northern Virginia, Inc. was proud to present the Inova Adult Sickle Cell Center and Inova Foundation with a $5,000 donation in support of the upcoming Sickle Cell Town Hall and Adult Sickle Cell Center.

📅 Tuesday, September 8, 2026
⏰ 4:30–8:00 p.m.
📍 8100 Innovation Park Drive, Fairfax, VA

We hope you’ll join us on September 8 for an evening of information, community, and support. ❤️



LR - BSN-RN, Bethany Cesaro, Valerie Bey, Board Member, Heart of Gold Sickle Cell Foundation, Melanie Pearson Hurley, CEO and President, Heart of Gold Sickle Cell Foundation, Sheinei Alan, MD, PhD
Director, Inova Adult Sickle Cell Program, RN, BEN-RN, Rania Fusisi, Patient Navigator, Ashley Bordeaux, Cooper Pate, Philanthropy Director, Inova Health

08/06/2026

https://www.facebook.com/share/1EkMK2xtFq/?mibextid=wwXIfr

🩸 Help support our community by donating blood at an upcoming library blood drive. Our bloodmobile will be in the parking lot.

As a thank you, donors will receive a special lifesaver T-shirt (while supplies last).

👉 Find a library drive near you and schedule your donation at InovaBlood.org

Fairfax County Public Library Alexandria Library

07/24/2026

The Heart of Gold Sickle Cell Foundation of Northern Virginia is honored to partner with the Prince William County Alumnae Chapter of Delta Sigma Theta Sorority, Inc. for the Candis King 1.5-Mile Sickle Cell Disease Awareness Memorial Walk and Community Blood Drive.
Please join us as we celebrate the life and lasting legacy of Candis King, their Forever Delta GEM, while raising awareness about sickle cell disease, encouraging lifesaving blood donations, and connecting families with education, screenings, advocacy, and community resources.

📅 Saturday, September 26, 2026�⏰ 9:00 a.m.–1:00 p.m.�📍 Charles J. Colgan Sr. High School, Manassas, Virginia

The event will include a celebration of Candis’ life, a 1.5-mile memorial walk, an American Red Cross blood drive, sickle cell trait screenings, educational resources, and opportunities to meet community partners.
September is both Candis’ birth month and National Sickle Cell Awareness Month. Together, we can honor her memory, increase awareness, support families affected by sickle cell disease, and help save lives through blood donation.
Please register using the QR code on the flyer and share this event with your family, friends, and community.

07/21/2026

Inova Adult Sickle Cell Center now offers virtual appointments!

07/02/2026

The Schar Cancer Institute’s Adult Sickle Cell Center and the Heart of Gold Sickle Cell Foundation of Northern Virginia cordially invite you to the Annual Sickle Cell Town Hall on Tuesday, September 8, from 4:30 PM to 8:30 PM at 8100 Innovation Park Drive, Fairfax, VA.

This event presents a critical opportunity for the community to unite, share resources, and support individuals and families affected by sickle cell disease.

🗓 Date: September 8, 2026
⏰ Time: 4:30 PM – 8:00 PM
📍 Location: 8100 Innovation Park Drive, Fairfax, VA

This impactful community-centered event will bring together patients, caregivers, adolescents, young adults, healthcare providers, advocates, and community partners to raise awareness, share resources, and foster meaningful dialogue about sickle cell disease.

Our goal is to provide families with direct access to trusted providers, insurance representatives, mental health professionals, wellness resources, educational tools, and community support organizations.

06/19/2026

06/19/2026

Happy World Sickle Cell Day/Juneteenth- Raise Awareness and support sickle cell warriors worldwide.

06/16/2026

NEWPORT NEWS, VA — Governor Abigail Spanberger today signed a first-in-the-nation, comprehensive legislative package focused on improving education, training, access, and coordinated care for Virginians with sickle cell and their families.

The Queen Candis Act was created in memory of Candis Gabriella King — a brilliant, vibrant 15-year-old whose passing sparked a unified effort to protect and uplift others battling sickle cell disease. At Sentara Community Care Center in Newport News, the Governor celebrated the life and advocacy of Candis together with her parents — Joshua King and Secretary of the Commonwealth Candi Mundon King — and the entire King family while signing the new legislation into law.

Abigail D. Spanberger, Commonwealth, Governor of Virginia, governor, virginia, VA

06/08/2026

🌍❤️ World Sickle Cell Day Symposium 2026 ❤️🌍

Join us as we bring together leading voices in healthcare, advocacy, and research for an inspiring conversation on living well with sickle cell disease.

This year's theme, "Is 50 the New 20? Boldly Living Your Best Life with Sickle Cell Disease," celebrates progress, resilience, and the evolving journey of individuals living with sickle cell disease.

We are honored to welcome Wayne A. I. Frederick, Howard University President Emeritus, as a featured speaker alongside an esteemed panel of experts and advocates dedicated to advancing awareness, education, and patient-centered care.

📅 Thursday, June 18, 2026
⏰ 10:00 a.m. – 12:00 p.m.
📍 Howard University Hospital – Towers Auditorium

Attendees will enjoy:
✨ Expert speakers and thought-provoking discussions
🏆 An awards ceremony recognizing excellence and impact
🤝 Opportunities to connect with patients, caregivers, advocates, and healthcare professionals
🍽️ Lunch provided

Together, we can continue to raise awareness, drive advocacy, and advance care for the sickle cell community.