05/22/2026
“Laryngomalacia isn’t even a thing”
“Laryngomalacia doesn’t affect a lot of babies that’s why no one knows about it”
Common lies “medical professionals” will tell you. It affects more than HALF of the babies born world wide! Noisy breathing, apnea spells, turning blue, choking on feeds, failure to thrive, not gaining weight, sounding like they can’t breathe while they eat, and more! It’s so often mistaken or dismissed as “reflux” and passed on with no follow ups or therapy or any kind of assistance. All parents often get is “He’s fine, you’re just hearing stuff there’s nothing wrong.” And sent home with no help or guidance other than feeling like they failed their child when they know something is truly wrong.
I want ALL of the hospitals to send our pamphlets home when parents get discharged. I want to have free educational seminars for not only parents and caregivers but medical professionals, daycare workers, and more to educate them on Laryngomalacia. I want to show off these babies who have made great progress in feeding therapy and their weight has improved along with their symptoms. I want these parents to come and talk about their traumatic experiences when they were passed off or their positive experiences when someone finally listened to them and helped advocate for them and their child.
One day, our voice will be heard and we will stop dismissing parents and placing blame on them. One day we will stand up for these babies and their parents and others will know about this condition. One day, the world will be a more inclusive place for medically completed children and their families. They are not alone, no one is alone and everyone deserves to know that.
One day.
Sadie Robertson
star Sadie Robertson shared an update on her 9-month-old daughter Kit’s “horribly traumatic” choking incidents. (📸: Instagram) bit.ly/4tMuVk4