The Sierra Rayn Foundation

05/26/2026

05/26/2026

MRI PRELIM RESULTS

It was an early start to the day with an arrival time of 6:30am. She liked the cool walk to the hospital though!

Her oncologist called and said the MRI showed that the spots were still there, but that the radiologist is having a hard tike reqlly saying that theyre definitively cancer. He said they havent grown. The final read is not back yet. That was just the quick read. So, if all of that is true, I'll take it! We were looking for no growth and no new spots! 🥰🥰🥰.

Yesterdays immunotherapy went alot smoother than Monday. Like ALOT smoother. Tomorrow is day 3 of immunotherapy and then saturday, we start our drive home!

Thankful for this short trip!

Please continue to pray for our girl. God hears us! Slow and steady seems to be winning this race ( or obstacle course, rather). 🥴.

Pic: today was prom at MSK..Hazel tested positive for 2 viruses on sunday, so she is in isolation and could not attend. But we made sure to snag her a few donated things... which she rocked the whole walk home from the hospital today😉.

Amazon wishlist.... mostly some spring/summer fun stuff. 🌞🏖 Nothing necessary to live. Just fun. 😊.

https://www.amazon.com/hz/wishlist/ls/ZLLSVPEUD8QA?ref_=wl_share

04/30/2026

Send G all the love as he starts radiation tomorrow. 🎗️

He will have at least 12 sessions and has to be sedated for everyone. He has never received radiation before so we’re all anxious going into it. Also being sedated everyday brings a lot of anxiety too.

He seems to be doing pretty well being home after this last round. It took a couple days for the hives to go away and we are dealing with a few side effects from the chemo, but he’s always happy and smiling. 🫶🏼

The plan is to drive back and forth everyday, as long as he can tolerate it since it’s 4 hours round trip, but the whole family just does so much better when we’re all home together.

After radiation is done he only has one more round of chemo/immunotherapy and he will be finished with treatment, again. 💛🫶🏼

03/15/2026

02/18/2026

The night before we left, RMH has a night where multiple volunteer dogs came. Hazel is such a dog lover. She was so excited! One day she will need a dog of her own. 🥰

Kimberly, we might have to have a charlie visit!

Would love to see your dogs (or cats... or any pets) again. She LOVES to scroll through videos and photos of dogs! 🧐

02/03/2026

YES!!!!!!!!!

01/31/2026

11/26/2025

Neuroblastoma (NB) is the most frequent extracranial solid tumor in children. More than 50% of patients present with widespread (stage M) or refractory disease. In these patients, event-free and overall survival was improved by the addition of the ...

11/23/2025

My Sierra love.......
Today, 15 years ago, at 4pm, you drew your last breath, and you were gone.
Ever since then my heart has cried everyday for you my baby love.
You were on this earth for 933 days.
That was all, 933 days.

You were my best 933 days.

On some days it feels like some time has passed, and I can think of you and smile, and then on some days it feels like just yesterday - and I have trouble just breathing.

It truly never gets easier.

I think about how you will never have your first kiss, never get married, never have kids of your own.
We will never have a mommy/daughter date, never go shopping for prom dresses, never go get pedicures together.

I often wonder what you would look like, how your voice would sound.
What foods would you love?
What would your favorite song be?

I feel so robbed.
I'll never have answers to those questions.
No new memories.
All that I have left of you are memories in my mind, in my heart, and a picture in a frame.

I love you and miss you with every heartbeat, every breathe......every second of everyday.
Please be close to me today, my sweet girl. ❤️

933 days.