High Desert Scleroderma Awareness

02/28/2024

Celebrate Rare Disease Day on February 29! Looking for ways to celebrate? Share your story, sign up for a Stepping Out to Cure Scleroderma walk, or learn more about scleroderma at scleroderma.org. Looking for more ways to support Rare Disease Day? Visit rarediseaseday.org for downloadable materials and other great opportunities.

02/27/2024

Please do not close the browser window until you have reached the end of the survey as your answers will not be saved. There is no time limit to complete the survey and if you would like to take a break, you can do so at any time by keeping the browser window open. This will allow you to continue co...

02/26/2024

Join us for our next virtual support group meeting.

All are welcome!

Hosted by our New Mexico Support Group
Wednesday, February 28, 2024
6:30 p.m. MT

Join us on Zoom
Please email [email protected] for the Zoom link and password to the meeting.

Contacts:
Maria Tafoya and Jackie Martinez
Email: [email protected]
Phone: 505-503-3545
Debra Droux
Email: [email protected]

02/15/2024

Join our virtual Caregiver Connection support meeting.
This meeting is aimed at providing support and connection for caregivers. All caregivers are welcome to attend!

Hosted by the National Scleroderma Foundation - Rocky Mountain Chapter
Saturday, February 17, 2024, 10 a.m. – 12 p.m. MT

Join us on Zoom
Zoom meeting passwords are listed in our monthly email. Contact the meeting support group leader if you have any questions or need the Zoom password.
Contact: Gary Keschl
Phone: 720-320-7613
Email: [email protected]

02/12/2024

Join Dr. Dinesh Khanna and Dr. Monalisa Ghosh for an in-depth discussion on what you need to know about the new and exciting CAR T Cell therapy. The , "CAR T Cell Therapy in Systemic ," will be held at 12 p.m. ET on February 16 via Zoom.

https://ow.ly/n28650QAo6i

02/10/2024

Are you looking forward to the 2024 National Scleroderma Conference? Get the best deal possible by taking advantage of our Early bird pricing available through May 17, 2024.

https://scleroderma.org/national-conference/

01/30/2024

New financial assistance program!

Financial Assistance From The Assistance Fund Now Available for Eligible People Living With Systemic Sclerosis

01/24/2024

Join us for our next virtual support group meeting.

All are welcome!

Hosted by our New Mexico Support Group
Wednesday, January 24, 2024
6:30 p.m. MT

Join us on Zoom
Please email [email protected] for the Zoom link and password to the meeting.

01/23/2024

We are turning the Emerald City teal at the 2024 National Scleroderma Conference in Seattle, Washington on July 19-21. Stay tuned for more info!

scleroderma.org/national-conference/

01/11/2024

Webinar: CAR T Cell Therapy in Systemic Sclerosis

Join Dr. Dinesh Khanna and Dr. Monalisa Ghosh for an in-depth discussion on what you need to know about the new and exciting CAR T Cell therapy. The webinar, "CAR T Cell Therapy in Systemic Sclerosis," will be held at 12 p.m. ET/10:00 a.m. MT on Feb. 16 via Zoom.

Register here: https://us02web.zoom.us/webinar/register/WN_JiwlvP10RqqNGID_ZeElpg #/registration

01/10/2024

If you are living with systemic sclerosis with interstitial lung disease (SSc-ILD), you may be eligible for financial assistance. The HealthWell Foundation has re-opened a fund that will provide up to $9,000 in medication copayment or insurance premium assistance to eligible patients.

To determine eligibility and apply for financial assistance, click here: https://www.healthwellfoundation.org/fund/systemic-sclerosis-with-interstitial-lung-disease/

01/10/2024

SCLERODERMA RESEARCH ACHIEVEMENT 🌟🌟🌟
The National Scleroderma Foundation recognizes the remarkable accomplishments our researchers and have made (and continue to make), providing HOPE for individuals living with scleroderma.

Here is one such achievement!

Learn more about our research at scleroderma.org/research