Galactosemia Foundation

Galactosemia Foundation Contact information, map and directions, contact form, opening hours, services, ratings, photos, videos and announcements from Galactosemia Foundation, Nonprofit Organization, 350 Northern Boulevard STE 324/1079, Albany, NY.

Galactosemia Foundation is a national, non-profit, volunteer organization whose mission is to provide information, support, and networking opportunities to families affected by galactosemia.

Thank you Let’s Roam for your generous donation scavenger hunt tickets to support our organization, your in-kind donatio...
06/06/2026

Thank you Let’s Roam for your generous donation scavenger hunt tickets to support our organization, your in-kind donation will help us raise funds and bring people together. Let's Roam

06/02/2026

We need your help!

SILENT AUCTION DONATIONS NEEDED

Many people have never heard of Galactosemia, a rare genetic disorder that prevents the body from properly processing galactose, a sugar found in milk and dairy products. Children born with Galactosemia require a strict lifelong dairy-free diet, but even with perfect dietary management, many still face serious long-term challenges including speech difficulties, learning disabilities, neurological complications, and reproductive health issues.

For decades, families in our community have lived with no approved treatment beyond dietary restrictions. Recently, we experienced heartbreaking news when access was lost to the one promising treatment that was showing potential to improve outcomes for those living with this devastating disease.

Our community is small, but our need is great. We need your help now more than ever to continue funding research, advocacy, family support, and awareness efforts that bring us closer to better treatments and ultimately a cure.

🎉 We are seeking donations for our upcoming Silent Auction!

We are looking for:
✨ Gift cards
✨ Vacation stays
✨ Event tickets
✨ Gift baskets
✨ Services
✨ Experiences
✨ Specialty products

Do you own a business or have a connection to one? We’d love your help! You can also create a themed basket by collecting donations from family, friends, neighbors, or coworkers.

📅 All donations are needed by June 30.

📧 To coordinate a donation, please contact:
Tara McCoy
[email protected]

The Galactosemia Foundation is a registered 501(c)(3) nonprofit organization. We can provide documentation of our nonprofit status and donation receipts for tax purposes.

❤️ PLEASE HELP US SPREAD THE WORD!
✔️ Like this post
✔️ Share this post
✔️ Tag at least 3 friends or business owners who may be willing to donate

Every donation, share, and connection helps bring hope to families who live with Galactosemia. Together, we can ensure that this rare disease community is not forgotten and that progress toward treatments continues.

Research opportunity! Do you have a child 11-14 who has childhood apraxia of speech? You may be eligible for a virtual s...
05/29/2026

Research opportunity! Do you have a child 11-14 who has childhood apraxia of speech? You may be eligible for a virtual speech research study through the University of North Carolina at Chapel Hill. Read the flyer for more information and fill out the prescreening form if you’re interested. Reach out to the Principal Investigator with any questions!https://galactosemia.org/wp-content/uploads/2026/05/SFT-CAS-Study-Recruitment-Flyer.pdf

The Conference Countdown is on! Prices increase in one month so check it off your to do list today. Let us know if you'v...
05/15/2026

The Conference Countdown is on! Prices increase in one month so check it off your to do list today. Let us know if you've registered in the comments and what you're most looking forward to! We can't wait to see you July 16-18 in Aurora, CO! https://www.zeffy.com/en-US/ticketing/galactosemia-foundation-2026-conference?fbclid=IwY2xjawRz9ppleHRuA2FlbQIxMABicmlkETExREpVZkszRk9hUXZsT3A1c3J0YwZhcHBfaWQQMjIyMDM5MTc4ODIwMDg5MgABHuw2G0HKpwP63lwzw07P3Mywp8WTnU7Bnvf5Cz9OC7ujZIYZWVCqFrdlgU2M_aem_YpShjPUG94XUj1gnMqWsDw

05/07/2026

🌟 Volunteer Opportunity – G-Force Youth Group Leader 🌟

Are you passionate about connecting with teens and helping create an unforgettable conference experience? The Galactosemia Foundation is looking for a volunteer to shadow and eventually take over leadership of our G-Force Youth Group (ages 12–18) at future conferences!

📅 Conference Schedule:
Friday & Saturday | 9:00 AM – 5:00 PM

Currently, Sabrina and Nick lead this amazing group (as well as Generation G (Ages 19–25) and will continue running it at this year’s conference. This gives the new volunteer the opportunity to shadow them throughout the event and learn the ropes before officially stepping into the role for our next conference.

💥 What is G-Force?
G-Force is our teen group designed specifically for ages 12–18, with their own schedule of activities and experiences throughout conference weekend, including:
• Social activities with doctors and researchers
• Participation in the “No Whey Cafe”
• Offsite activities and outings on both Friday and Saturday
• Opportunities to build friendships and connections within the galactosemia community

We are looking for someone who is organized, energetic, dependable, and enjoys working with teens in a fun and supportive environment.

Interested or want to learn more? Send us an email [email protected].
Or complete our form: https://forms.cloud.microsoft/r/fsPzyVEnqt

We would love to talk with you! 💙

✨ Silent Auction Donations Needed! ✨We’re gearing up for the upcoming Galactosemia Conference and are so excited to brin...
04/11/2026

✨ Silent Auction Donations Needed! ✨

We’re gearing up for the upcoming Galactosemia Conference and are so excited to bring back one of everyone’s favorite parts—the Silent Auction! 💙

We’re currently seeking donations to help make this year’s auction a success—and we’d love your help spreading the word! Please consider reaching out to your friends, family, workplaces, and local businesses to see if they’d be willing to donate an item or experience.

You can also rally your community to put together a themed gift basket or even contribute funds to purchase gift cards to donate!

Some great donation ideas include:
• Gift cards (restaurants, shopping, experiences)
• A piece of jewelry
• A bottle of bourbon or wine
• Tech items like AirPods
• Airbnb or vacation stays 🏡
• Themed gift baskets (state-themed, local favorites, self-care, sports teams, etc.)
• Experiences, services, or unique items

Every donation—big or small—helps us raise funds to support families and advance awareness for Galactosemia.

Donations are tax-deductible, and we’re happy to provide a receipt for any contributions as a 501(c)(3) organization.

If you’re interested in donating, have a connection, need a receipt, or have questions, please reach out to Tara McCoy at [email protected].

If you’re unable to attend the conference, we’re happy to coordinate getting your item—just note that we will need items in hand by the end of June if they are not being brought with you.

Thank you so much for tapping into your networks and helping us make this year’s auction our best yet. Your support truly makes a difference! 💫

04/09/2026

Dont forget our Nashville Outreach Event is happening in 10 days!! Right now we have 65 people signed up, which is our biggest event yet!! We are SO excited to see you! Please make sure if you are planning to come that you fill out this form: https://forms.cloud.microsoft/r/ebkiWQWkVP so that we can have purchase admission and lunch!

If you are already signed up, you should have received an email from Brittany, who is coordinating the event!

Let us know if you have any questions or need help getting signed up!

Address

350 Northern Boulevard STE 324/1079
Albany, NY
12204

Telephone

+18669007421

Website

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