The Creutzfeldt-Jakob Disease (CJD) Foundation, Inc.

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The Creutzfeldt-Jakob Disease (CJD) Foundation, Inc. HELPLINE: 1-800-659-1991
[email protected] Our mission is to support families and loved ones touched by CJD.

The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research. The Creutzfeldt-Jakob Disease Foundation is a 501(c)(3) non-profit foundation consisting of members who are concerned about the complexity of issues surrounding this fatal brain disease.

If you would like to learn more about prion disease, please join us for a Q&A webinar on October 22 via Zoom led by Dr. ...
10/15/2026

If you would like to learn more about prion disease, please join us for a Q&A webinar on October 22 via Zoom led by Dr. Brian Appleby, Medical Director, CJD Foundation, and Director, National Prion Disease Pathology Surveillance Center. You will have the opportunity to ask questions to Dr. Appleby.

To register, please contact our Helpline at 800-659-1991 or [email protected].

Broad Institute has announced that NN112 or PRiSM, their clinical trial of a divalent siRNA for prion disease, is now op...
10/14/2026

Broad Institute has announced that NN112 or PRiSM, their clinical trial of a divalent siRNA for prion disease, is now open to pre-symptomatic participants at high risk of genetic prion disease.

Read the full community statement:
https://cjdfoundation.org/wp-content/uploads/2026/10/NN112_Community_Statement_2026-10-14.pdf

Race day is almost here!In just weeks, Kelly will take on the NYC Marathon—running through all five boroughs in honor of...
10/12/2026

Race day is almost here!

In just weeks, Kelly will take on the NYC Marathon—running through all five boroughs in honor of his brother Jeremy.

He’ll wear the CJD Foundation on his jersey as more than a million spectators line the course.

Help carry him to the finish line: https://secure.qgiv.com/event/cjdfoundation/account/2261025/

10/08/2026

More events are happening this weekend! Let us know who you're striding in honor of!

Thank you to everyone who participated in Strides for CJD this weekend! You can upload your photos using the links below...
10/07/2026

Thank you to everyone who participated in Strides for CJD this weekend! You can upload your photos using the links below!

Austin, TX: https://thecjdfoundation.smugmug.com/upload/pf362J/Austin

Boston, MA: https://thecjdfoundation.smugmug.com/upload/qNkmmr/Boston

Brownton, MN: https://thecjdfoundation.smugmug.com/upload/qzPqrk/Brownton

Charleston, WV: https://thecjdfoundation.smugmug.com/.../5r6bxB/Charleston

Chicago Area, IL: https://thecjdfoundation.smugmug.com/upload/WBNrKM/Chicago

Cincinnati, OH: https://thecjdfoundation.smugmug.com/.../gRRd4R/Cincinnati

Denver, CO: https://thecjdfoundation.smugmug.com/upload/2VpHxz/Denver

Johnsonburg, PA: https://thecjdfoundation.smugmug.com/.../PVrTSP/Johnsonburg

Morris County, NJ: https://thecjdfoundation.smugmug.com/.../C8vq9s/MorrisCounty

Phoenix Metro, AZ: https://thecjdfoundation.smugmug.com/upload/T3mmLw/Phoenix

Pittsburgh, PA: https://thecjdfoundation.smugmug.com/.../h52K8M/Pittsburgh

San Diego, CA: https://thecjdfoundation.smugmug.com/upload/Z7HbdK/SanDiego

Solon, IA: https://thecjdfoundation.smugmug.com/upload/xvHDpS/Solon

St. Louis, MO: https://thecjdfoundation.smugmug.com/upload/Vt8X53/StLouis

Individuals and Small Groups: https://TheCJDFoundation.smugmug.com/.../dRXc4p/Individual

There is still time to register! Register online by tomorrow, October 8 at 12pm ET for this weekend's events, or registe...
10/07/2026

There is still time to register! Register online by tomorrow, October 8 at 12pm ET for this weekend's events, or register in-person on event day!

Register for events in Akron, central Indiana, Fairfax, Lowcountry, Portland, Rockwall County, and Santa Clarita here: https://secure.qgiv.com/event/stridesforcjd2026/register/

There is still time to register! Register online by tomorrow, October 8 at 12pm ET for this weekend's events, or registe...
10/07/2026

There is still time to register! Register online by tomorrow, October 8 at 12pm ET for this weekend's events, or register in-person on event day!

Register for events in Akron, central IN, Fairfax, Lowcountry, Portland, Rockwall County, and Santa Clarita here: https://secure.qgiv.com/event/stridesforcjd2026/register/

Fourteen Strides for CJD events took place this past weekend from East Coast to West Coast! Seven more events are happen...
10/05/2026

Fourteen Strides for CJD events took place this past weekend from East Coast to West Coast! Seven more events are happening this weekend! If you're interested in attending Strides for CJD this weekend in Akron, OH; central IN; Fairfax, VA; Lowcountry, SC; Portland, OR; Rockwall County, TX; or Santa Clarita, CA; you can still register here: https://secure.qgiv.com/event/stridesforcjd2026/register/

If you participated in this weekend, please upload your photos using the links below!

Austin, TX: https://thecjdfoundation.smugmug.com/upload/pf362J/Austin

Boston, MA: https://thecjdfoundation.smugmug.com/upload/qNkmmr/Boston

Brownton, MN: https://thecjdfoundation.smugmug.com/upload/qzPqrk/Brownton

Charleston, WV: https://thecjdfoundation.smugmug.com/upload/5r6bxB/Charleston

Chicago Area, IL: https://thecjdfoundation.smugmug.com/upload/WBNrKM/Chicago

Cincinnati, OH: https://thecjdfoundation.smugmug.com/upload/gRRd4R/Cincinnati

Denver, CO: https://thecjdfoundation.smugmug.com/upload/2VpHxz/Denver

Johnsonburg, PA: https://thecjdfoundation.smugmug.com/upload/PVrTSP/Johnsonburg

Morris County, NJ: https://thecjdfoundation.smugmug.com/upload/C8vq9s/MorrisCounty

Phoenix Metro, AZ: https://thecjdfoundation.smugmug.com/upload/T3mmLw/Phoenix

Pittsburgh, PA: https://thecjdfoundation.smugmug.com/upload/h52K8M/Pittsburgh

San Diego, CA: https://thecjdfoundation.smugmug.com/upload/Z7HbdK/SanDiego

Solon, IA: https://thecjdfoundation.smugmug.com/upload/xvHDpS/Solon

St. Louis, MO: https://thecjdfoundation.smugmug.com/upload/Vt8X53/StLouis

Individuals and Small Groups: https://TheCJDFoundation.smugmug.com/upload/dRXc4p/Individual

10/01/2026

14 Strides for CJD Events are taking place this weekend! Will we see you at one of these events? Let us know where you will be striding from!

Register today! The deadline to register online for Strides for CJD events on October 3-4 is today, October 1 at 12:00pm...
10/01/2026

Register today! The deadline to register online for Strides for CJD events on October 3-4 is today, October 1 at 12:00pm ET. Register for Strides for CJD events on October 10-11 by Thursday, October 8 at 12:00pm ET!

Register here: https://secure.qgiv.com/event/stridesforcjd2026/register/

Address

3634 W Market Street #110
Akron, OH
44333

Telephone

+18006591991

Website

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