The Creutzfeldt-Jakob Disease (CJD) Foundation, Inc.

The Creutzfeldt-Jakob Disease (CJD) Foundation, Inc. HELPLINE: 1-800-659-1991
[email protected] Our mission is to support families and loved ones touched by CJD.

The mission of the Creutzfeldt-Jakob Disease Foundation is to support families affected by Prion Disease, raise awareness, and support medical education and research. The Creutzfeldt-Jakob Disease Foundation is a 501(c)(3) non-profit foundation consisting of members who are concerned about the complexity of issues surrounding this fatal brain disease.

Help boost your fundraising efforts and raise awareness of prion disease by sharing why you stride and getting the word ...
08/25/2026

Help boost your fundraising efforts and raise awareness of prion disease by sharing why you stride and getting the word out about Strides for CJD. We've created images for you to share in memory of your loved one on social media or in an email to your friends and family!

https://conta.cc/4gPOR2q

Email from Creutzfeldt-Jakob Disease (CJD) Foundation, Inc. Access Promotional Materials and the Fundraising Schedule and Outreach Templates Share Why You Stride Help boost your fundraising efforts an

Fundraising Competition Ends: Thursday, September 3rdThe Top Two Fundraising Teams nationally, based on total donations...
08/21/2026

Fundraising Competition Ends: Thursday, September 3rd

The Top Two Fundraising Teams nationally, based on total donations made by Thursday, September 3rd at 11:59pm Eastern will receive:
- Recognition of the team and tribute to their loved one on the CJD Foundation website.
- Recognition of the team, tribute to their loved one, and a memorial award to be presented at the CJD Foundation Annual Family Conference in Chicago, IL in July 2027.
- One free conference registration, one hotel room, and conference meals for a representative of the team to receive the memorial award for fundraising at the 2027 CJD Foundation Annual Family Conference (travel expenses not included.)
- Recognition of the team on social media.
- A page (“quilt square”) on CJD Foundation Memory Quilt.

The Top Team at each event location, based on total donations made by Thursday, September 3rd at 11:59pm Eastern (minimum of $1,000.00) will receive special recognition at their event.

Here's the team leaderboard as of today at 8:30am ET!

The countdown is on—just 3 months until the NYC Marathon!Kelly has already reached 50% of his fundraising goal as he tra...
08/18/2026

The countdown is on—just 3 months until the NYC Marathon!
Kelly has already reached 50% of his fundraising goal as he trains in honor of his brother Jeremy.

Every step forward is a tribute—and every donation helps families facing CJD. 👟💜

Be part of the journey:
https://secure.qgiv.com/event/cjdfoundation/account/2261025/

Thank you to all who have been part of Strides for CJD in the past. Because of supporters like you, we continue to honor...
08/18/2026

Thank you to all who have been part of Strides for CJD in the past. Because of supporters like you, we continue to honor loved ones, support families and move research forward.

It promises to be another meaningful day of remembrance, connection, and hope. We hope you’ll join us again and help make this year’s event our strongest yet.

Here are a few deadlines to keep in mind:
1. T-Shirt Deadline: Register by tomorrow, August 19th at 11:59pm ET to be guaranteed a free Strides for CJD t-shirt with your registration.
2. Fundraising Competition Deadline: The team fundraising competition ends on Thursday, September 3rd at 11:59pm ET.
3. Early Bird Registration Deadline: Adults can register for $30.00 and youth 12 & under can register for $20.00 now thru Thursday, September 10th at 11:59pm ET. Registration costs will increase by $5.00 on 9/11/26.

Fundraising teams like yours are the heart of Strides for CJD and help fund critical research and programs.

Register or learn more about the fundraising competition and prizes for the top two fundraising teams nationally here: www.strides4cjd.com.

If you have any questions, feel free to reach out. We’d love to connect. Just email [email protected] or call the CJD Foundation at 1-800-659-1991.

We're two months away from Strides for CJD! Register and update your fundraising page - After you register, you will hav...
08/14/2026

We're two months away from Strides for CJD! Register and update your fundraising page - After you register, you will have a fundraising page that is customizable to help you tell your story about why your friends, family, and coworkers should get involved.

Supporters can choose to:
1. Join your team as a fundraising participant -- As a fundraising participant, they would receive a personal fundraising page as a member of your team
2. Join your team as a non-fundraising participant
3. Donate to your team

You’ll want to customize your team fundraising page before reaching out to your network to let them know why they should support you and Strides for CJD!

Reminder: Register by this Wednesday, August 19th at 11:59pm ET to be guaranteed a free Strides for CJD t-shirt with your registration.

https://secure.qgiv.com/event/stridesforcjd2026/register/

Strides for CJD 2026 T-Shirt Deadline: Register by Wednesday, August 19th at 11:59pm ET to be guaranteed a free Strides ...
08/12/2026

Strides for CJD 2026 T-Shirt Deadline: Register by Wednesday, August 19th at 11:59pm ET to be guaranteed a free Strides for CJD t-shirt with your registration.

https://conta.cc/3SqKwJE

Email from Creutzfeldt-Jakob Disease (CJD) Foundation, Inc. Register by Wed., August 19 at 11:59pm ET to be guaranteed a free Strides for CJD t-shirt with your registration. Register and update your f

Thank you for making Strides for CJD 2025 a huge success! As a reminder, here are the Sponsorship and Team Fundraising d...
08/05/2026

Thank you for making Strides for CJD 2025 a huge success! As a reminder, here are the Sponsorship and Team Fundraising deadlines for Strides for CJD 2026:

Team Fundraising Deadline: Sunday, August 9th at 11:59pm ET:
Teams who raise $1,000 by the team fundraising deadline will have their loved one's name listed on participant t-shirts.

Sponsorship Deadline: Sunday, August 9th at 11:59pm ET:
- Premier: $20,000 - Name (individual) or logo (company) displayed on participant t-shirts, our website, and signage.
- Diamond $10,000 - Name (individual) or logo (company) displayed on participant t-shirts, our website, and signage.
- Platinum $5,000 - Name (individual) or logo (company) displayed on participant t-shirts and our website, and signage.
- Gold $1,000 - Name listed on participant t-shirts and our website.
- Silver $500 - Name listed on our website.
- Bronze $250 - Name listed on our website.

https://secure.qgiv.com/event/stridesforcjd2026/

Strides for CJD is an annual walk/run to raise awareness of prion disease and funds for the CJD Foundation. Sunday, Augu...
08/03/2026

Strides for CJD is an annual walk/run to raise awareness of prion disease and funds for the CJD Foundation.

Sunday, August 9th at 11:59pm ET is the Sponsorship Deadline & Team Fundraising Deadline:

SPONSORSHIP DEADLINE: Premier, Diamond and Platinum Sponsors who donate by this date will have their name (individual) or logo (company) displayed on participant t-shirts. Gold Sponsors will have their name (not their logo) listed on participant T-shirts. Sponsors who donate after this date will have their name or logo displayed on the Strides for CJD website only.

TEAM FUNDRAISING DEADLINE: Teams who raise $1,000 by this deadline will have their loved one's name listed on participant t-shirts.

Email from Creutzfeldt-Jakob Disease (CJD) Foundation, Inc. Register and start fundraising today with these quick start resources. We Need Your Help - Strides for CJD 2026 Strides for CJD is an annual

Thanks to the amazing researchers, experts and families who convened in Chicago for the CJD Foundation Family Conference...
07/11/2026

Thanks to the amazing researchers, experts and families who convened in Chicago for the CJD Foundation Family Conference!

Address

3634 W Market Street #110
Akron, OH
44333

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