The Creutzfeldt-Jakob Disease (CJD) Foundation, Inc.

06/10/2026

Monday, June 15th: Hotel Reservation Deadline
We have reserved a limited block of discounted rooms, which will be open until Monday, June 15. Reserve your room early to be guaranteed a room in our block.

Email from Creutzfeldt-Jakob Disease (CJD) Foundation, Inc. Reserve your room for the 2026 CJD Foundation Family Conference! Monday, June 15th: Hotel Reservation Deadline Hotel reservations are not i

05/21/2026

There are several sponsorships available for this year's family conference, taking place July 10-12 in Chicago, IL. The CJD Foundation strives to keep Family Conference registration costs as low as possible for attendees. Sponsorships help us bring together families impacted by prion diseases in an event that can be truly transformational for them.

Email from Creutzfeldt-Jakob Disease (CJD) Foundation, Inc. Please consider sponsoring the conference in one of these opportunities. Family Conference Sponsorship Opportunities There are several spons

05/11/2026

The CJD Foundation is proud to announce our 2026-27 Research Grant and Fellowship Applications are now open! Projects may be focused on pathophysiology, molecular mechanisms, cell and animal disease models, diagnostics, clinical and translational research, studies identifying treatment targets or biomarkers, genetics, bioinformatics, or other areas related to human prion diseases.

💰 Research Grants: Up to $100,000
🎓 Fellowships: Specialized training for the next generation of prion disease experts.

Don't miss the deadline for your Letter of Intent!
📍 LOI Deadline: July 16, 2026
📍 Fellowship Deadline: Oct 30, 2026

🔗https://cjdfoundation.org/researchers/

05/08/2026

There are 2 more virtual support groups this month:
May 12 @ 7pm ET: Current Caregiver Virtual Support Group
May 19 @ 6pm PT: Western Region Virtual Support Group

To register, email [email protected]. If you haven’t been in touch with us before, please check in with our Helpline at 1-800-659-1991.

05/08/2026

Jeremy Flowers was just 49 years old when CJD took his life—only 43 days after his diagnosis.

What began as small memory lapses and balance issues quickly became something much more serious. Like many families facing rare diseases, Jeremy’s loved ones struggled to find answers. Behind every diagnosis is a family forever changed.

Read Jenny’s story and learn how the CJD Foundation supported them during their most difficult days: https://cjdfoundation.org/flowers-familys-story/

And learn more about Jeremy’s brother, Kelly’s NYC Marathon fundraiser here: https://secure.qgiv.com/event/cjdfoundation/account/2261025/

Jeremy Flowers was just 49 years old when CJD took his life—only 43 days after his diagnosis. What began as small memory lapses and balance issues quickly became something much more serious. Like many families facing rare diseases, Jeremy’s wife Jenny struggled to find answers. Read Jenny’s st...

05/07/2026

Don't miss these upcoming deadlines for the Family Conference!

Friday, May 22nd at 11:59pm ET: Early Bird Registration Deadline
Registration costs will increase to $250.00 on Saturday, May 23.
🔗: https://secure.qgiv.com/event/2026cjdfoundationfamilyconference/

Monday, June 1st: Photo Tribute Banner Deadline
If you are registered to attend conference, to have a photo of your loved one included on our conference banner, please email it in a .JPG format.
📨: [email protected].

Monday, June 15th: Hotel Reservation Deadline
We have reserved a limited block of discounted rooms, which will be open until Monday, June 15. Reserve your room early to be guaranteed a room in our block.
🏢: https://www.marriott.com/event-reservations/reservation-link.mi?id=1759852286810&key=GRP&app=resvlink

04/22/2026

Please see the Broad Institute of MIT and Harvard's Community Statement on their first-in-human clinical trial to evaluate an investigational drug called PrP-siRNA in patients diagnosed with prion disease.https://cjdfoundation.org/wp-content/uploads/2026/04/NN112-Community-Statement-2026-04-22.pdf

More information on drug development here: https://cjdfoundation.org/drug-development/

04/20/2026

Get the latest updates from leading CJD experts and researchers 🔬at the CJD Foundation Family Conference. Knowledge empowers. Join us in July in Chicago.

🔗 Register now:

Join us for the 2026 CJD Foundation Family Conference from July 10-12 in Chicago, IL!

04/20/2026

Have you always wanted to attend the CJD Foundation Family Conference but are concerned about costs? 

With support from our donors, the CJD Foundation is offering assistance to a limited number of patient family members who wish to attend the 2026 CJD Foundation Family Conference in person and are seeking financial assistance for conference expenses.

Email your completed application to [email protected] by tomorrow, Tuesday, April 21. Learn more about applying here: https://secure.qgiv.com/event/2026cjdfoundationfamilyconference/page/4220675/

04/08/2026

Why attend the CJD Family Conference?
Because no one should face CJD alone. 💜
Learn, connect, and find support July 10–12.
🔗 Register: https://secure.qgiv.com/event/2026cjdfoundationfamilyconference/