Northeast Ohio Sjögren's Syndrome Support Group

Northeast Ohio Sjögren's Syndrome Support Group This is the official page for Northeast Ohio Sjogren's Syndrome Support Group Today, as many as four million Americans are living with this disease.

Sjögren’s (pronounced SHOW-grins) syndrome is a chronic autoimmune disease in which moisture-producing glands are damaged, signifciantly decreasing the quantity and quality of saliva and tears.. Five top symptoms: dry eyes, dry mouth, joint pain, fatigue, and brain fog. Sjögren’s may also cause dysfunction of other organs such as the kidneys, gastrointestinal system, blood vessels, lungs, liver, p

ancreas, and the central nervous system. Patients may also experience extreme fatigue and joint pain and have a higher risk of developing lymphoma.

10/05/2017

The next meeting of the

Northeast Ohio Sjogren’s Support Group:

**Saturday, October 21, 2017**
1:00 to 3:00 p.m.

Cuyahoga Falls Library
Lower Level - Sutliff Room
2015 Third Street
Cuyahoga Falls, Ohio

Our agenda:
• Review the Summary of Major Findings from the SSF Living with Sjogren’s survey conducted in 2016. Learn more about the physical, emotional, and financial impact of the disease on our lives - Presented by Mary McNeil
• “Sharing and Caring” Discussion - A great way to learn from each other. Bring your questions!

Family and friends are welcome!

Please RSVP by contacting:

Mary McNeil, Support Group Leader
(330) 342-7870 or via email [email protected]

02/13/2017

You are invited to attend the next
Northeast Ohio Sjögren’s Support Group Meeting

Saturday, March 4, 2017
2:00 to 4:00 p.m.

Meeting Location:
*Brecksville Library*
Meeting Room
9089 Brecksville Rd, Brecksville, OH 44141

Guest Speaker:

Alexander Kosmidis M.D.
Ophthalmologist
The Eye Centers
Fairview Park, Lakewood, and Lorain OH

• Dr. Kosmidis will speak about the Management of Dry Eye Associated with Sjogren’s including Treatment Guidelines and Complications. He has been practicing for 10 years and has worked with many Sjogren’s patients. Bring your questions!

Caring and Sharing
• In the second hour of the meeting we’ll learn from each other.

Please RSVP by contacting:

Mary McNeil, Support Group Leader
(330) 342-7870 / [email protected]

Family and friends are welcome!

01/05/2017

You are invited to attend the next
Northeast Ohio Sjögren’s Support Group Meeting

Saturday, January 21, 2017
1:00 to 3:00 p.m.

Meeting Location:
*Independence Library*
Meeting Room
6361 Selig Drive, Independence, Ohio

Guest Speaker:

Isam Diab MD
Rheumatologist, Premier Physician Center
Paramount Medical Research and Consulting
Middleburg Heights, OH

• Dr. Diab will provide an overview about Sjogren’s including treatment and disease progression. Dr. Diab has been treating Sjogren’s patients for over 25 years.
• He will also speak about a clinical trial he is currently conducting for two new Sjogren’s specific medications. This is a large international study sponsored by Bristol-Myers Squibb.

Caring and Sharing
• In the second hour of the meeting we’ll learn from each other.

Please RSVP by contacting:

Mary McNeil, Support Group Leader
(330) 342-7870 / [email protected]

Family and friends are welcome!

10/19/2016

You are invited to attend the next
Northeast Ohio Sjögren’s Support Group Meeting

Saturday, November 5, 2016
10:00 a.m. – 11:30 a.m.

Meeting Location:
*Independence Library*
Meeting Room
6361 Selig Drive, Independence, Ohio

Guest Speaker:

Steven Taylor
Chief Executive Officer – Sjögren's Syndrome Foundation

Topic: “Sjögren’s – The Next Chapter”

Since joining the Foundation as CEO in 2003, Steven Taylor has focused on increasing Sjögren’s awareness, changing patient care for Sjögren’s patients while also focusing on introducing large research initiatives that will change how Sjögren’s is treated, perceived and understood.

As the Foundation’s Chief Executive Officer, Steven and his national staff oversee all of its activities, programs and services. At the meeting, Steven will share his vision for the Foundation and provide information about current programs and development activities, especially recent advancements in clinical trials and research breakthroughs.

Join us as Steven will provide an update on the Sjögren’s Syndrome Foundation – what we have accomplished and where we are going. In addition to sharing a wealth of knowledge, Steven brings a big heart and a great sense of humor to all he does. So please bring your questions and ideas and be prepared for a very special meeting!

Please RSVP by contacting:

Mary McNeil, Support Group Leader
(330) 342-7870 / [email protected]

Family and friends are welcome!

08/26/2016

The next meeting of the Northeast Ohio Sjogren’s Support Group

will take place on **Saturday, September 24, 2016**

1:00 to 3:00 p.m. Cuyahoga Falls Library
Lower Level - Sutliff Room
2015 Third Street
Cuyahoga Falls, Ohio

Our agenda:
• Listen to a 30-minute audiotape from the 2016 SSF National Patient Conference: Sjogren’s Syndrome Overview by Timothy Niewold MD, Mayo Clinic
• Brief Overview of the NEW Clinical Practice Guidelines for Rheumatologists Treating Sjogren’s Patients - by Mary McNeil
• “Sharing and Caring” Discussion - A great way to learn from each other.

Family and friends are welcome!

Please RSVP by contacting:
Mary McNeil, Support Group Leader
(330) 342-7870 or via email [email protected]

04/07/2016

The next meeting of the

Northeast Ohio Sjogren’s Support Group

will take place on

**Saturday, April 30, 2016**

1:00 to 3:00 p.m.

Mayfield Branch Library

Medium Meeting Room
500 SOM Center Road
Mayfield Village, Ohio

Our agenda:
• Guest Speaker, Dr. Andres Pinto, Oral Specialist and Sjogren’s expert, from the CWRU School of Dental Medicine, will talk about the recently published Oral Clinical Practice Guidelines for dental/oral care for Sjogren’s patients including cavity prevention.
• “Sharing and Caring” Discussion - A great way to learn from each other.

Friends and family are welcome!

Please RSVP by contacting:

Mary McNeil, Support Group Leader
(330) 342-7870 or via email [email protected]

02/16/2016

Save the Date: Saturday March 19th, 2016
(NEW DATE!)
The next meeting of the

Northeast Ohio Sjogren’s Syndrome Support Group

will take place on

**Saturday, March 19, 2016**
(Rescheduled from March 12th)
10 a.m. to 12 noon

Bedford (Southeast) Branch Library

Meeting Room
70 Columbus Road
Bedford, OH

Our agenda:
• Guest Speaker, Robert Wilson DO, Neurologist with the Cleveland Clinic, making a return visit to discuss the diagnosis and treatment of neurological related complications of Sjogren’s.
• “Sharing and Caring” Roundtable Discussion - A great way to learn from each other.

Friends and family are welcome!

Please RSVP by contacting:

Mary McNeil, Support Group Leader
(330) 342-7870 or via email [email protected]

01/05/2016

The next meeting of the

Northeast Ohio Sjögren’s Syndrome Support Group

will take place on

**SATURDAY JANUARY 16TH 2016

1:00 to 3:00 p.m.

Independence Library
Meeting Room
6361 Selig Drive, Independence, OH

Our Agenda:

•Nancy Fazekas Grubb MD of the Optimal Health Institute of Ohio will speak about functional medicine and the importance of “gut health” especially as it relates to Sjogren’s and other autoimmune diseases.

•“Sharing and Caring” Roundtable Discussion – A great way to learn from each other.

Friends and family are welcome!

Please RSVP by contacting:

Mary McNeil, Support Group Leader

(330) 342-7870 or via email [email protected]

10/30/2015

The next meeting of the Northeast Ohio Sjögren’s Syndrome Support Group

will take place on **Saturday November 14, 2015**
2:00 to 4:00 p.m.
Beachwood Library, Meeting Room/Auditorium
25501 Shaker Boulevard • Beachwood, Ohio 44122

Our Agenda:

•Lisa Lystad, MD, Department of Ophthalmology at the Cleveland Clinic will speak about the Management of Dry Eye Associated with Sjogren’s.
•“Sharing and Caring” Roundtable Discussion – A great way to learn from each other.

Friends and family are welcome!
Please RSVP by contacting:
Mary McNeil, Support Group Leader
(330) 342-7870 or via email [email protected]

09/14/2015

The next meeting of the Northeast Ohio Sjögren’s Syndrome Support Group will take place on

**Saturday September 26, 2015**

1:30 to 3:30 p.m.

Independence Library
Meeting Room
6361 Selig Drive, Independence, OH

Our Agenda:

• Rochelle Rosian, MD, Department of Rheumatologic and Immunologic Disease at the Cleveland Clinic will speak about treating Sjogren’s and answer our questions. Dr. Rosian has over 20 years of experience treating Sjogren’s patients.
• “Sharing and Caring” Roundtable Discussion – A great way to learn from each other.
Friends and family are welcome!

Please RSVP by contacting: Mary McNeil, Support Group Leader
at [email protected] or 330-342-7870

Address

Akron, OH

Telephone

+18004756473

Website

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