Gladiator X Project

Gladiator X Project GXP is a 501c3 organization aiming to raise awareness around SUDEP while helping w/ immediate needs for those undergoing epilepsy treatment.

A Repost from 4/8/25The Beauty Pure Innocence Thru a child’s eyesCharlotte, you were heavy on my mind the other day.You ...
04/09/2026

A Repost from 4/8/25

The Beauty
Pure Innocence
Thru a child’s eyes

Charlotte, you were heavy on my mind the other day.
You are a FORCE!

, one ripple at a time and you continue to create waves. Waves of IMPACT!

April 7th (Charlotte Figi Day in Colorado)
Read from 4/7
Stories were shared
Our family story is on GXP Facebook as well as what led to us moving forward w/ Medical Ma*****na forever holds a special place in our 🖤

X will forever have a young mind d/t the significant impact on his cognition.

X’s story (a part of a medical J article & Natl. Webinar)
He has quality days & that is huge given his diagnosis’s
Seizures today-some weeks worse than others. He’s on 3 different blends of MM tincture, along w/ other meds

We are very passionate about others eyes being opened to the possibilities of MM for the pediatric population

It is not a cure

We do not see many characteristics of autism now.
Years ago it took both of us to put his shoes on. He used to be fearful to leave the house. His aggression and impulsiveness were unmanageable. There is so much MORE that the MM has helped with beyond his seizure burden.

Let’s OPEN our eyes to the possibilities for the usage for kiddos w/ other neuro-developmental diagnosis’s. They take ‘big time’ medication. It’s not an answer but it’s worth being an option.

Xavier is now 13. It will be exactly 6 yrs, the week of 4/21, that he’s been on his MM. We met w/ his medical team on 4/19/19 to move forward w/ MM. It was a day that shook me to the core. One of fear, hope and desperation.

WE have been given the opportunity to MEET and interact with OUR son once seizures, aggression & impulsivity calmed down. We still have HARD days w/ outbursts w/ Xavier. They are short and he is redirect able. We have been given time to learn better approaches as well. We get to work with him vs against.

Because of YOU Charlotte.....
Because of YOU Paige......
Our kiddo is living quality days .....
There’s a calm to this Storm
Thank YOU!

Please learn more about Charlotte Figi

A Force that has unveiled the beauty of a plant

Your energy
Your spirit
FOREVER a piece of so many

Embrace the SIMPLICITY of Life while truly living in the MOMENT of it all ⚔️
04/05/2026

Embrace the SIMPLICITY of Life while truly living in the MOMENT of it all ⚔️

Yesterday… March 26th (International Epilepsy Awareness Day).“March 26, known as Purple Day or World Epilepsy Day, was c...
03/27/2026

Yesterday… March 26th (International Epilepsy Awareness Day).

“March 26, known as Purple Day or World Epilepsy Day, was created in 2008 by then 9-year-old Cassidy Megan of Nova Scotia, Canada. Motivated by her own struggles with epilepsy, she aimed to raise global awareness, dispel myths, and assure those with the condition that they are not alone.” “The color purple was chosen because lavender is recognized as the international flower of epilepsy.”

In 2016 as I was trying to connect so many dots with Xavier It turned into a tangled web that never untangled. But Him living with an incurable progressive form of epilepsy (LGS) was NEVER a thought for I knew very little about epilepsy.

10 years later … Purple day … now resonates with me with meaning and growth.

We have been humbled and given GRACE.
Simple days are RICH in meaning.
Xs heart of gold teaches pure forgiveness
We learn FROM him
His world is not tainted with stigmas nor symbolism
He navigates life with feeling

Is it HARD? Yes, it is exhausting but it’s part of the journey. We are a family and we keep it REAL.

Beyond grateful for the quality of his days.

I’ve never asked WHY but rather HOW can we help.
GXP was a feeling and now it’s own 501(c)3
We will continue to help those on their journey. It will take time for insurance companies to understand, value and cover the cost of seizure alert devices. We will continue to help. We understand so many of the unpredictable costs that parallel a journey of such uncertainty.

Epilepsy is rarely talked about nor recognized.
As a community we can do better ⚔️



epilepsy


RARE Disease Day 2/28/2670% OF GENETIC RARE DISEASES START IN CHILDHOODRare Disease DayRare Epilepsy SyndromesThank you ...
02/28/2026

RARE Disease Day 2/28/26

70% OF GENETIC RARE DISEASES START IN CHILDHOOD

Rare Disease Day
Rare Epilepsy Syndromes

Thank you for the explanations (pics)

RARE DISEASES CURRENTLY AFFECT 5% OFTHE WORLDWIDE POPULATION



Every year on the last day of February (either the 28 or 29
February-the rarest day! *), the world comes together to raise awareness for the 300 million people living with a rare disease.

Since 2008, Rare Disease Day has grown into a truly global movement. It brings together patients, families, caregivers, researchers, clinicians and advocates — a community standing side by side.

Rare Disease Day matters because too often people living with rare diseases are unseen and unheard. This day shines a light on them, their stories, and their urgent need for equity in healthcare and social opportunities.
You can be join this movement by spreading awareness, illuminating landmarks, sharing personal experiences, calling on policymakers, and starting conversations that matter!

Coming to a close with…..Seizure Action Plan Awareness Week Seizures are unpredictable Having a plan in place …. Lifesav...
02/14/2026

Coming to a close with…..
Seizure Action Plan Awareness Week

Seizures are unpredictable
Having a plan in place …. Lifesaving

The 3rd pic is a small piece of Xavier’s Seizure Action Plan
inc follows the plan in place every time which not only keeps Xavier safe but allows them to learn more about his epilepsy and seizures. The team remains calm. We, his parents as well as his medical team do NOT want his emergency medication administered every time. Xavier has proven to show resistance to multiple medications. We do NOT want him to develop a resistance to this one. The plan is individualized for Xavier’s needs as it should be for anyone living with epilepsy.

Establish your plan today!

has covered the expense of the costly emergency medication for families. It’s an immediate need for those living with epilepsy.

First 2 pics & info. below copied from:

It’s Seizure Action Plan Awareness Week!

We can’t teach everyone we know seizure first aid, but even if we could, not all seizures are the same! That’s where a Seizure Action Plan comes in. It’s a customizable document that makes it easy for someone to help you during a seizure, even if it’s their first time. You can include information like when you need emergency medical treatment, how to use your rescue medication if you have one, and how to help you recover after the seizure ends.

Visit the Seizure Action Plan Coalition website, where you can find our fillable PDF SAP template and download for free, link in comments!



International Epilepsy Day 2026 …. Monday 2/9/26is always celebrated the second Monday in February to raise awareness ab...
02/11/2026

International Epilepsy Day 2026 …. Monday 2/9/26
is always celebrated the second Monday in February to raise awareness about Epilepsy⚔️

I loved reading through so many posts to raise such awareness on a topic that’s rarely talked about nor recognized.

post hit home. We know that our Xavier falls into the high risk category of dying from SUDEP. We do sleep at night knowing we will be notified of Xavier’s prolonged seizures requiring intervention. Xavier has taken ownership of his watch always making sure it’s been charged before he lays down for the night. Thank YOU .

remains committed to raising awareness & education around SUDEP through the distribution of seizure alert devices.

Please read post below:

Millions of people worldwide live with epilepsy, and behind every diagnosis is a person, a family, and a community navigating daily life together. Epilepsy can also carry serious risks, including SUDEP, which is why awareness, understanding, and the right support matter so deeply.

Yesterday’s International Epilepsy Day was a moment to raise awareness, challenge stigma, and stand together for better care, safety, and inclusion but the work continues well beyond a single day.

At Empatica, supporting the epilepsy community is at the heart of what we do. Our work focuses on helping people live with greater confidence and peace of mind, through research and technology that reflect real life, including:
Research exploring whether seizures can one day be predicted, with the goal of supporting more timely care.

EPlstress, a recently published study using Empatica’s E4 device to explore how stress and everyday experiences may relate to seizures, captured through real-world data.

Epilepsy is about more than seizures alone; it can affect sleep, stress, and everyday moments.

Looking ahead to 2026, we remain committed to advancing epilepsy research and supporting patients and loved ones through tools like EpiMonitor, designed to help detect possible seizures and alert caregivers when it matters most.

...

Sea turtles symbolize longevity, wisdom, patience, and endurance. Xavier picked a sea turtle for his balloon animal 21s...
01/30/2026

Sea turtles symbolize longevity, wisdom, patience, and endurance. Xavier picked a sea turtle for his balloon animal 21st annual Winter Walk Saturday 1/24. The walk is a reminder of community & support.

Copied from :
“January 26th is . That’s how many people will develop epilepsy in their lives. Onset is most common in children & older adults, but it can start at any age, for anyone, many times without a known cause.

Even though epilepsy effects so many people, there’s still so many people who don’t know:

There is more than one kind of seizure
Epilepsy is not contagious
You should never restrain someone having a seizure, or put anything in their mouth to “bite down on”
You cannot swallow your tongue during a seizure

Today, make it your goal to teach at least one person one thing about epilepsy 💜”

Monday: 1 in 26 is real! Education & awareness must continue around a topic that is rarely recognized nor talked about.

Yesterday evening, an example of awareness unveiled itself. Xavier and I were tooling around & made a final stop store in Stow, OH. We were commenting on the cute clothes & even singing to the fun music. I had my back turned to him but then no longer heard his voice. As I turned I saw his face stiffen then his body so I supported him as he fell to the ground in a full seizure. I caught the attention of the beautiful soul working explaining that he has epilepsy & it’s okay. I was able to retrieve his emergency pack from my back pack using his magnet on his VNS. This seizure was longer and it took him longer to return to baseline.

The beautiful soul working remained calm & listened to me ramble as I had tears streaming down my face as X was still seizing. I THANKED her for how calm she was. She did explain that she had training for another situation but never had to use it. Her ability to remain calm & available allowed me to remain CLEAR.

PLEASE WHEN you are a bystander:

Assess if the situation is emergent

If a caregiver is w/ the victim, FOLLOW their lead

REMAIN CALM bc 9/10 the caregiver is emotionally breaking, I do!

Symbolism of a sea turtle (patience/endurance)

🖤🩶🤍Happy Holidays to ALL🖤🩶🤍Embrace the love of those around you allowing it to overflow into the new year.
12/25/2025

🖤🩶🤍Happy Holidays to ALL🖤🩶🤍

Embrace the love of those around you allowing it to overflow into the new year.

Wrapping up …….Infantile Spasm Awareness Week:December 1-7WHAT IS INFANTILE SPASMS?Infantile spasms is a rare and partic...
12/06/2025

Wrapping up …….
Infantile Spasm Awareness Week:
December 1-7

WHAT IS INFANTILE SPASMS?

Infantile spasms is a rare and particularly severe epilepsy syndrome that typically begins within the first year of life. Infantile spasms is characterized by subtle seizures which can have large neurological effects, potentially leading to developmental delays and cognitive and physical deterioration.

Sadly, many primary care doctors and parents are not familiar with the signs and symptoms of infantile spasms. So, many children with infantile spasms do not receive treatment during the critical window within the weeks and months after the emergence of symptoms.

Please see: https://www.cureepilepsy.org/get-involved/awareness-days/infantile-spasms-awareness-week/



12/01/2025

November: National Epilepsy Awareness Month

This video.... Many years ago.... was part of the 'unveiling' of what was to come.

Yes, Xavier has a seizure in this video! It didn't stop him then and it doesn't stop him now.

Those living with epilepsy plow through life with such resilience & strength. The webs that are woven can be a mess at times. However, a spider's web is stronger than steel, flexible, tough and purpose-built.

Life's journey..... perspective gained...Leaving your heart open for the moments that are filled RICH in meaning.

GXP.... Started with a strong desire to help others on their journey ⚔️

Embrace the simplicity of life while truly LIVING in the moment of it all.

Address

Akron, OH

Telephone

+17658810869

Website

https://gladiatorxproject501c3.company.site/

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