Shane's Future Days

Shane's Future Days 501c3 raising awareness, research funds and assisting families affected by rhabdomyosarcoma This is Shane Metzgar.

He is a happy, active 1 year old boy who has captivating blue eyes and a huge, warm smile. On March 28, 2014 at 8 months old, he was diagnosed with Stage 4 alveolar rhabdomyosarcoma, or ARMS. This is a soft tissue cancer and for Shane it started in his re**um and grew to his groin area and later his lungs and bone. It is highly aggressive and the prognosis is low, especially in infants- 1:10. The

other caveat of this cancer is while it responds to chemotherapy, it comes back. After a brave 1 year and two day battle, Shane passed away at 19 months on March 30, 2015. Shane's tumors were donated to research at The Children's Cancer Therapy Development Institute. Shane's Future Days was created as part of Shane's legacy. Our mission is to raise awareness, support research and assist families battling rare childhood cancers. We hope that you share and like Shane's page on your profile and help us spread the word about rare childhood cancers. You never think it will happen to you, until it does. Childhood cancer is the least funded cancer. 96% of all donations come from private funding. To read more about Shane's story or to donate, please visit: www.shanesfuturedays.org

Eleven years ago today we lost Shane.Friday night, his big brother stood on the Abing-THON stage and told his story.Chas...
03/30/2026

Eleven years ago today we lost Shane.
Friday night, his big brother stood on the Abing-THON stage and told his story.

Chase and Ella have been attending AbingTHON since 2015, when Shane was still with us. Over the years we’ve watched Chase grow through the program — from a freshman participant, to captain, to chair, and this year one of the Overalls helping lead the entire event.
This year was also Ella’s first AbingTHON as a freshman. Many of her classmates know pieces of our story, but for some it was the first time they truly understood everything she’s grown up with. She was also the lead fundraiser for the freshman class, which made us incredibly proud.

The Overalls introduced themselves, Chase invited us up to the stage so we could share Shane’s story.

But not this year.

This year he kept the microphone.

As an Overall, he said it was time for him to tell the story himself — his version, as Shane’s brother.

He started with a poem he wrote in third grade. The last line was:

“Blue is how I felt about my brother having cancer.”

At eight years old, he didn’t know how to talk about grief, so he gave it a color.

From there he shared memories of Shane — hospital rooms, IV lines, the beeping of machines becoming normal. He talked about how soccer became the place where life felt steady again.

Then he told the story of one of his last memories with Shane.

During a soccer game, Chase got hurt and was sitting on the sideline frustrated. Shane, who could barely walk at that point, made his way over to him, patted him on the shoulder, and pointed back to the field.

His way of saying, “Get back in there.”

Five days later, Shane passed away. Chase was seven.

Watching Chase stand on that stage and tell that story in front of his peers was something Paul and I will never forget. He spoke with so much composure and honesty. We were completely in awe of him.

Seeing both Chase and Ella up there — honoring their brother in their own ways — was one of those moments that just stops you in your tracks as a parent. Ella has grown up hearing Shane’s story her whole life, and watching her stand there beside Chase last night felt really special.

Watching Chase speak, we kept thinking about how Shane would have loved it — a gym full of kids, music, laughter, and people coming together to help other children fighting cancer.
It felt like Shane was there too.

His life was so short, but moments like this remind us that his impact is still growing through the people who carry his story forward.

We also want to say a special thank you to Chase’s friends who were there last night. Many of them came over to talk with us and watching his friends support him like that meant more than they probably realize.

We are also incredibly grateful to the people who make AbingTHON possible each year. Thank you to Mrs. Karcher and Mr. MacNair for the time, care, and dedication you put into this event and these students. And thank you to Sharon, Laura, and Lainey from Kisses for Kyle and Jen Burke from Sara’s Smiles for being there and continuing their work for childhood cancer and families affected.

Through Chase.
Through Ella.
Through this incredible community of students who continue to show up for kids fighting pediatric cancer.

We are so grateful for AbingTHON and everyone who supports Shane’s Future Days and the mission to give kids with cancer what every child deserves:

More future days. 💛

Thank you for continuing to carry Shane’s story forward with us.

Ella did a thing yesterday 💇‍♀️On a total whim, she cut 10 inches off her hair to donate… the day before the formal!So p...
03/14/2026

Ella did a thing yesterday 💇‍♀️
On a total whim, she cut 10 inches off her hair to donate… the day before the formal!

So proud of her sweet heart and new look!

Happy Valentine's Day from our
02/14/2026

Happy Valentine's Day from our

Today is World Cancer DayFor every child lost. For every child fighting. For every child in remission. For every child y...
02/05/2026

Today is World Cancer Day

For every child lost. For every child fighting. For every child in remission. For every child yet to be diagnosed.

As we close another year and welcome a new one, we’re reminded that New Year’s can be especially hard for bereaved famil...
12/31/2025

As we close another year and welcome a new one, we’re reminded that New Year’s can be especially hard for bereaved families. Each year, the distance grows from the one we lost, and that gap can feel heavier when the calendar turns.

So much has changed since Shane. Our family has grown in ways we never could have imagined—with the addition of Will and Chloe, and with Chase and Ella growing into remarkable young people. Chase is now a senior, and we’re eagerly awaiting where his next chapter will begin in college. Ella started her HS freshman year. Will is reading and started travel soccer and Chloe began kindergarten, full of curiosity and possibility.

While the ache of missing Shane never fades, we are deeply grateful for the communities who continue to walk alongside us. Thank you to AbingTHON and our school community for your unwavering support, and our bereavement program at CHOP, whose heartbeat memories have brought comfort and connection to so many families this year.

As we move into a new year, we carry Shane with us—always—while holding space for both grief and gratitude, remembering that love stretches across time, even as everything else changes. 💛
Happy New Year to you and yours!

❤️
12/24/2025

❤️

In 2015, Chase lost his little brother, Shane, who was cared for at our Center, and our bereavement program helped the family during this difficult time.

"CHOP’s bereavement team taught me how to recognize, share, and manage the emotions I didn’t have words for. In art therapy, I used Polaroids, drawings, and stories to show how I was feeling."

When applying to colleges in the last year, Chase, a high school senior and a member of Abington Senior High School’s state championship soccer team, chose to center his personal essay on the grief that has shaped him and the sport of soccer that helped him navigate it.

Learn more about our bereavement program and services: http://ms.spr.ly/6187toccW.

Cheers to 11 years in our home!We closed on 12/6/14 and that night Shane wound up at CHOP's ER. He and I were quarantine...
12/20/2025

Cheers to 11 years in our home!

We closed on 12/6/14 and that night Shane wound up at CHOP's ER. He and I were quarantined in CHOP for almost a week since he had RSV.
We moved in 12/19/14 and on 12/22/14 I was back at CHOP with Shane for treatment. We came home on Christmas Eve.
Somehow, every child's room was set up as well as most of the house, along with 3 Christmas trees up and fully decorated.

When the stress of the holidays becomes too much, I'm always reminded of this difficult time and how we got through it. It puts everything into perspective.

12/18/2025

In 2015, Chase lost his little brother, Shane, who was cared for at CHOP, and our bereavement program helped the family during this difficult time.

"CHOP’s bereavement team taught me how to recognize, share, and manage the emotions I didn’t have words for. In art therapy, I used Polaroids, drawings, and stories to show how I was feeling."

When applying to colleges in the last year, Chase, a high school senior and a member of Abington Senior High School’s state championship soccer team, chose to center his personal essay on the grief that has shaped him and the sport of soccer that helped him navigate it.

Learn more about our bereavement program and services: http://ms.spr.ly/6187toccW.

Philadelphia friends!CHOP’s Bereavement program was given the opportunity to participate in the Festival of Trees at the...
12/13/2025

Philadelphia friends!

CHOP’s Bereavement program was given the opportunity to participate in the Festival of Trees at the Christmas Village in Love Park. They hung stars to remember children and Shane has his own star! Please go check it out this holiday season!

Today is  ! This year, Shane's Future Days is participating in the   campaign.State your why, make a donation at www.cc-...
12/02/2025

Today is !
This year, Shane's Future Days is participating in the campaign.
State your why, make a donation at www.cc-TDI.org and tag a friend!

There are so many worthy causes that need help this year. For us, children who have cancer should NOT be put aside because of funding cuts. They deserve treatment and more importantly a cure!

Happy Thanksgiving!Today, as we sit with our family and friends, we’ll give thanks for the blessings we’ve had this year...
11/28/2025

Happy Thanksgiving!
Today, as we sit with our family and friends, we’ll give thanks for the blessings we’ve had this year. And yet, my heart always goes back to 11 years ago, when Shane had relapsed and I was carrying a weight no parent should ever know. I remember trying to push through the holidays, trying to save him, and still trying to protect the joy of my other two children. The mix of love, fear, gratitude, and heartbreak is something I will never forget.

Today, research funding cuts are threatening the work that families like ours depend on. That’s why we — the Board of Directors at cc-TDI — are launching the My Why for cc-TDI campaign: to bring awareness, to protect the science, and to keep hope alive for the kids who are fighting right now.

Chase and Ella took part in this campaign to share their “why,” and I’m so proud to share their video with all of you. ❤️

As you gather this Thanksgiving, we invite you to join us — share your why, make a donation if you can, and help us continue the mission of making childhood cancer universally survivable.

Donate at cc-TDI.org

Help us make childhood cancer universally survivable. By giving monthly, you directly support our continued research into discovering effective and less toxic treatments for childhood cancer. Our team is on a mission to make childhood cancer universally survivable! The FDA approves on average 12 dru...

11/26/2025

Right now, childhood cancer research funding is being cut — and cc-TDI needs our help to keep the lab going and continue the mission of making childhood cancer universally survivable.

With Thanksgiving coming up, as we gather with the people we’re grateful for, we are making a donation to cc-TDI’s Continuity Fund to keep this life-saving work moving.

Please share, nominate and tag someone! Chase and Ella have helped with this project and you can TOO!
Stay Strong Antonio Storm the Heavens Hurrikanen's Kids

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P. O. Box 168
Abington, PA
19001

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