Raremark Foundation

Raremark Foundation A safe space platform creating awareness, educating, and breaking boundaries for and their loved ones.

Some of our programs include S for Sickle cell, an awareness branch of our foundation.

12/08/2026

You know the trends, current social media challenges, and everything happening around the world.

But do you know one of the things that could actually actively impact your future?

This International Youth Day, make knowing your genotype part of the things you know about yourself.

đź“ž +256 791 246663
đź“© [email protected]

11/08/2026

“I got to the extent of not working because when you try to look for jobs, people just see your disability instead of your capability.” - Sandra

Sandra Balejusa is a 26-year-old Sickle Cell Warrior and mother from Iganga District.

For 18 years, she lived with Avascular Necrosis that affected her mobility, work, confidence, and everyday life. Along the way, she also experienced the discrimination that many Warriors continue to face.

Through Raremark Foundation’s , Sandra was able to access the hip replacement surgery she had waited years for.

Her surgery was successful.

Now, she is looking forward to regaining her full mobility, rebuilding her confidence, and using her experience to create more Sickle Cell awareness in her community.

Sandra’s story shows what access to care can change in a person’s life, from restoring mobility to regaining independence.

She is deeply grateful to Raremark Foundation and all its partners whose support made it possible for her to walk again and begin this new chapter.

If you would like to support the and help more Warriors access life-changing care, we’d love to talk.

đź“ž +256 791 246663
đź“© [email protected]

Caregivers, taking care of yourself helps you continue showing up for those who need you with strength, patience, and co...
05/08/2026

Caregivers, taking care of yourself helps you continue showing up for those who need you with strength, patience, and compassion.

So, take a moment for yourself today.

How many from the list have you checked off today?

03/08/2026

The things we’re told we can’t do can become the very things we learn to do differently.

Lindrio Diana discovered a love for the gym and, by understanding her body, knowing her limits, and taking things at her own pace, she found something that works for her.

Your journey may look different. Your pace may be different, but don’t let assumptions about what you can or cannot do stop you from discovering what’s possible for you.

Know yourself, know your limits and keep moving.
Welcome to August!

Too often, conversations around sickle cell disease focus only on the condition and forget the person behind it.But Warr...
29/07/2026

Too often, conversations around sickle cell disease focus only on the condition and forget the person behind it.

But Warriors are more than their diagnosis. They are people building careers, raising families, creating, leading, studying, dreaming, showing up, and making impact every day.

Today, we’re acknowledging identity beyond a diagnosis.

Tell us, outside of being a Warrior, who are you?

If you'd like to know more, watch our discussion on Beyond the Condition: Sickle Cell and Identity on our YouTube channel.

Through the , Raremark Foundation, in collaboration with Mulago National Referral Hospital, Hips for Africa, and Digima...
27/07/2026

Through the , Raremark Foundation, in collaboration with Mulago National Referral Hospital, Hips for Africa, and Digimark Communications , is registering eligible Sickle Cell Warriors living with Avascular Necrosis (AVN) for hip replacement support.

AVN can significantly affect mobility, independence, and quality of life. For many Warriors, the biggest barrier to treatment is access to the surgical treatment.

If you are a Sickle Cell Warrior living with AVN, or you know someone who may benefit from this opportunity, we encourage you to get in touch.
đź“ž +256 791 246663
đź“© [email protected]

23/07/2026

Throwing it back to when we partnered with Next Media Services to bring together with Tackle Sickle Cell Africa and Uganda Red Cross Society right to their workplace.

Together, 256 employees accessed:
🧬 Sickle cell screening
đź“š Education and awareness
đź’ˇ Information to make informed health decisions

Every workplace we reach is another opportunity to create awareness, start important conversations, and empower people with knowledge that can shape healthier futures.

Imagine the impact we could make together.

Interested in bringing e to your workplace or community?
đź“ž +256 791 246663
đź“© [email protected]

20/07/2026

What happens when being honest about your health costs you more than you bargained for?

In this upcoming episode of , Diana Lindrio shares one of the most painful moments in her journey, disclosing her diagnosis at work and the life-changing consequences that followed.

Her story is a powerful reminder that behind every diagnosis is a person with dreams, potential, and a life beyond their diagnosis.

🎥 Who You Are Beyond the Condition premieres this Wednesday on our YouTube channel.

Stay tuned.

17/07/2026

In this episode of , we explore what it means to live beyond the condition, the resilience, the dreams, the setbacks, and the strength that make every Warrior more than their diagnosis.

The world often sees the condition first. But what if we chose to see the person instead?

🎥 Beyond the Condition: Sickle Cell Disease and Identity - Coming soon to our YouTube channel.

Stay tuned.

15/07/2026

🎙We're back!

It's been a while, but is officially back with a brand-new season of honest, thought-provoking conversations.

In this upcoming episode, Diana Lindrio opens up about who she is beyond the condition - the struggle of hiding her diagnosis and the journey to embracing her identity.

🎥 The full episode drops next week on our YouTube channel, and trust us, you won't want to miss this powerful conversation.

Stay tuned.

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Ntinda Complex, Ntinda
Kampala
00000

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