Rare Disease Fund

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Rare Disease Fund

A charity fund for patients with rare diseases who need costly medicines for life.
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17/06/2026

This is why the RDF exists. Since 2019, we have been giving Hope for a Lifetime — standing beside rare disease patients and their families who carry a weight most of us will never fully understand.

👉 Donate, share, or learn more at giving.sg/rare-disease-fund

04/06/2026

“Genetic” and “inherited” are not always the same thing. 🧬 Some genetic conditions are inherited, while others happen spontaneously through changes in a gene — even when there is no family history. It is no one’s fault, and understanding this is part of raising awareness. 🩵

To know more about the RDF and the rare disease medicines we cover, go to https://www.kkh.com.sg/giving/rare-disease-fund

01/06/2026

What if your $10 became $40? 💵 It can. For every $1 donated by the public, the Government contributes $3, multiplying the fund’s impact. 💰

To donate, go to giving.sg/rare-disease-fund 💫

28/05/2026

Neurofibromas are tumours that grow along nerves and are commonly seen in individuals with Neurofibromatosis Type 1 (NF1). 🧬 While most are benign, they can still cause pain, discomfort, and affect daily life. Some may appear as small bumps under the skin, while others can grow larger and become more complex over time. ⏰
Because these tumours can grow around nerves and tissues, treatment and removal may be difficult, and ongoing monitoring is often needed. 👀

One of the treatments supported by RDF for plexiform neurofibromas associated with Neurofibromatosis Type 1 is Koselugo (Selumetinib). 💉 For patients, access to treatment can help manage the condition and make everyday life a little easier.

With your donation, RDF can continue supporting more patients and families living with this rare disease. ✨ To donate, go to giving.sg/rare-disease-fund

20/05/2026

Did you know? 👀 Maroteaux-Lamy, also known as MPS VI, is a rare genetic lysosomal storage disorder 🧬 characterised by a complete or partial lack of enzyme activity for arylsulfatase B (also called N-acetylgalactosamine-4-sulfatase), leading to the accumulation of complex carbohydrates called glycosaminoglycans (GAG) in the body.🧍🏻‍♀️ This results in progressive damage to body cells, tissues, and organs. Today, only three children and one adult are known to have MPS VI locally. 🇸🇬

For individuals living with MPS VI — the rare disease covered by the RDF since 2021 — early growth may appear typical before slowing significantly around the age of 8️⃣. Over time, skeletal complications can worsen and affect mobility, with symptoms often becoming noticeable during early childhood. 👧🏻🧒🏻 Life expectancy varies depending on the severity of the condition, but is commonly around 20–30 years.

To know more about the RDF, go to kkh.com.sg/rarediseasefund

17/05/2026

17 May is Neurofibromatosis Awareness Day. 💙

There are three types of Neurofibromatosis — NF1, NF2, and Schwannomatosis. 🧬 Among the three, Neurofibromatosis Type 1 (NF1) is the most frequently diagnosed and is currently supported by RDF. While there is no cure for NF1 yet, treatments are available to help manage the condition and improve quality of life. 💉

Your donation can help patients gain access to the treatment and support they need. Make a difference today: giving.sg/rare-disease-fund 💫

15/05/2026

May 15 is MPS Awareness Day. 🧬 Mucopolysaccharidoses (MPS) are a group of rare genetic conditions where the body lacks the enzymes needed to break down certain sugar molecules known as glycosaminoglycans. ⛓️‍💥 When these molecules are not cleared, they gradually build up in the body, affecting cells, organs, and physical and cognitive development.

In Singapore, only three children and one adult are known to have MPS VI. 🇸🇬 (kkh.com.sg)

For affected families, the journey is financially challenging. 💰The RDF provides financial support for medicine for patients with MPS VI, one of the many types of MPS. This helps ease the burden of long-term treatment and care. 💫

Help give MPS VI patients and their families a relatively normal life. Give Hope for a Lifetime: giving.sg/rare-disease-fund

Disclaimer: Data is based on available sources and may have changed over time.

10/05/2026

Through every moment, big and small. Just love that shows up again and again. ❤️ For every mother, with a love so unconditional and unwavering, this is what motherhood looks like. 💐

This Mother’s Day, and every single day, we honour you. Happy Mother’s Day ❤️💐

01/05/2026

We honour every hand in healthcare. Not just those who treat, but those who stay, support, and fight every single day. ✨ Because behind every patient is a circle of strength. And every act of giving keeps the Hope going.

🌟 While we celebrate work today, some never get a day off from caring. This Labour Day, give Hope for a Lifetime today: giving.sg/rare-disease-fund

15/04/2026

Living with Pompe disease means managing a lifelong condition — one that is physically and emotionally demanding, and often comes with overwhelming costs. 💸 For some patients, treatment can reach up to $55,000 a month. This financial burden doesn’t just affect the individual, but their entire family.

🧬 On Pompe Disease Day, we’re reminded that behind every rare condition is a real person navigating these challenges every day. Your support can help ease the burden and make a meaningful difference in their lives.

To donate, go to giving.sg/rare-disease-fund

Address

100 Bukit Timah Road
Singapore

Telephone

+6563942329

Website

https://www.kkh.com.sg/RareDiseaseFund

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