Rare Disease Fund

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Rare Disease Fund A charity fund for patients with rare diseases who need costly medicines for life.

28/09/2026

Greater awareness can turn confusion into understanding, isolation into support, and rare conditions into conversations that matter. 💬💡

To learn more, visit our website: www.kkh.com.sg/giving/rare-disease-fund 💫

More than 300 million people worldwide live with one of over 7,000 rare diseases. In Singapore, an estimated 2,000 to 3,...
23/09/2026

More than 300 million people worldwide live with one of over 7,000 rare diseases. In Singapore, an estimated 2,000 to 3,000 people are affected by rare diseases. 700 of them are children.

While each condition may be rare, the need for awareness, understanding and support is not. For patients who require costly medicines for life, the RDF provides long-term financial support when other available schemes are insufficient. For every $1 donated, the Singapore Government contributes another $3, helping your support go further. Donate today: giving.sg/rare-disease-fund

Our RDF beneficiary shares a message for other young people living with a rare disease: accept yourself, flaws and all, ...
20/09/2026

Our RDF beneficiary shares a message for other young people living with a rare disease: accept yourself, flaws and all, and never let other people’s judgment make you feel less. ✨

Her words are a reminder that a rare disease diagnosis should never make anyone feel less worthy or less confident in who they are. 🩵

To know more about the RDF’s mission, visit our website: www.kkh.com.sg/giving/rare-disease-fund

It was a special evening as we gathered to acknowledge our donors and partners who extend a lifeline to our rare disease...
17/09/2026

It was a special evening as we gathered to acknowledge our donors and partners who extend a lifeline to our rare disease patients. 🧬

This year's RDF Donor Appreciation Evening, themed Rare, Recognised & Renewed, was a timely reminder to recognise the lived realities of our rare disease patients, and providing them with sustained meaningful support.

It was our privilege to have Mr Ong Ye Kung, Minister for Health and Coordinating Minister for Social Policies, grace the evening as our Guest of Honour, and to welcome Emeritus Professor Roy Joseph in his new role as Chairman of the Rare Disease Fund Committee. 🙏🏻

It was also a moment to reflect on how far the Fund has come, since recently expanding its support to three additional conditions and seven more beneficiaries. Hearing the stories of two of them was a heartwarming reminder of the lives your generosity continues to transform. 🌟

Thank you for journeying with us. 💙🧡

KK Women's and Children's Hospital

Watching a child grow is one of life’s most meaningful milestones.For Chris and Zecia, however, growing older and gainin...
10/09/2026

Watching a child grow is one of life’s most meaningful milestones.

For Chris and Zecia, however, growing older and gaining weight also means requiring higher doses of medicine, and facing increasing treatment costs.

Your support can help ensure their treatment continues to keep pace with their growth, allowing them to move forward with the care they need.

07/09/2026

Some rare conditions only reveal their symptoms later, leaving families searching for answers they never expected to need.

For new parents beginning the rare-disease journey, the uncertainty can feel overwhelming. But you do not have to carry every fear or question alone. Your love, patience and determination matter more than you may realise, and there is a community ready to listen, understand and walk beside you.

You may be entering an unfamiliar journey, but you are not walking it alone.

To know more about the RDF, go to https://www.kkh.com.sg/giving/rare-disease-fund



Disclaimer: Photos and videos are stock imagery used for illustrative purposes only. They do not depict actual patients, caregivers, or medical professionals affiliated with the RDF.

04/09/2026

Long-chain fatty acid oxidation disorders are rare, inherited and can be difficult to recognise. 🧬 Symptoms may appear during fasting, illness or prolonged exercise, when the body cannot properly break down long-chain fats for energy.

⚠️ Signs may include low blood sugar, muscle pain, weakness or exercise intolerance. In more severe forms, the heart, liver and skeletal muscles can be affected.

🔁 Share this post! Awareness can change lives.

Nurses will probably tell you the thing they miss most is sleep. 💤 Just one night where they don't have to wake up and c...
30/08/2026

Nurses will probably tell you the thing they miss most is sleep. 💤 Just one night where they don't have to wake up and check on someone. So when that night finally comes, when they actually get to rest, it's not nothing. It's the win. 🏅

Help make more of these moments possible: giving.sg/rare-disease-fund 🌟

Not a promise that things will be easy, but a promise that no family faces it alone. That's what your support makes poss...
26/08/2026

Not a promise that things will be easy, but a promise that no family faces it alone. That's what your support makes possible. 🤝

The small things you carried today matter. We see you. 👀 No one claps when a parent gets through another long night in a...
25/08/2026

The small things you carried today matter. We see you. 👀 No one claps when a parent gets through another long night in a hospital chair. But we see it every single time. ✨

To every parent still standing after today, the small things you carried mattered. 🤗

Want to help carry it with them? Start here: giving.sg/rare-disease-fund

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100 Bukit Timah Road
Singapore

Telephone

+6563942329

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