Wilhelm Foundations goal is that all children with undiagnosed diseases shall get a diagnosis!
To solve this Wilhelm Foundation has arranged eight International Congresses of Undiagnosed Diseases and is currently planning the ninth one which will be held at Mayo Clinic, Rochester USA. The Congresses are in collaboration with Dr Gahl, NIH in USA and a specialist from the country where the congress is held. Specialists from the whole world are invited to the congresses. An Undiagnosed Diseases Network International (UDNI) was formed at the first and second congress. The UDNI is part of Wilhelm Foundations dream since this is where the specialists from the whole world can collaborate to solve the undiagnosed diseases, improve diagnostic methods and develop medicines for the new diseases they identify. The photograph at the top of the page is from Wilhelm Foundations eight International Congress in Nijmegen, Netherlands.
There are children with undiagnosed diseases worldwide! Out of 10,000 children between
5-6 are affected. That means approximately 50.000 children in Europe and 38.000 in USA are affected every year by mysterious diseases, that are yet to be discovered by medical science.
The undiagnosed diseases are divided in to three groups;
The children who have yet to receive a diagnosis for a known disease.
Those who are misdiagnosed and therefore classed as undiagnosed.
Those who have diseases that aren’t described in medical literature due to the fact that they are yet to be discovered and therefore the diseases aren’t named. Some of the children are affected from birth, others are healthy when born but fall ill sometime during infancy and deteriorate without anyone understanding why.
Many children die of undiagnosed diseases every year and doctors can’t find the cause of the child’s disease, the children are undiagnosed.
Wilhelm Foundation also work to improving the care for the children which in turn hopefully lead to more children receiving a diagnosis.
Wilhelm Foundation give away Silver Linings to children with undiagnosed brain diseases!
Wilhelm Foundation also work with spreading information about that there are diseases that are undiagnosed.
Wilhelm Foundation holds lectures for the general public, parents and also for specialists in Sweden and internationally (Italy, Austria and USA). We take in to consideration to whom we lecture but it’s always about the undiagnosed diseases.
Wilhelm Foundation has a parent group and a grandparent group both here on Facebook. Wilhelm Foundation has arranged four parents weekends where we have a selection of lectures but also lots of time for the parents to meet and talk amongst each other.
Wilhelm Foundation was founded and is driven by parents Mikk and Helene Cederroth. Their three youngest children died of an undiagnosed brain disease, Wilhelm died 16 years old, little Emma died 6 years old (one year after Wilhelm’s passing) and after another two years Hugo died 10 years old. Mikk and Helene are now doing all they can to help other families who have children with undiagnosed brain diseases.
In Sweden Wilhelm Foundation is called Willefonden.
Wilhelm Foundation/Willefonden are members in; Undiagnosed Diseases Network International UDNI, EURODIS Rare Disease Europe, NORD National Organization for Rare Disorders, ICORD and Swedish National Association of Rare Diseases.
Support Wilhelm Foundation by wearing Wilhelm Foundation bracelets, send postcards or donate money. All this is available at Wilhelm Foundations webshop. http://shop.wilhelmfoundation.org/en/
You can start a collection here on Facebook by using Facebook Donations and help undiagnosed children to get a diagnosis. By using your Facebook account you can start a collection choosing Willefonden, select your total and why you want people to donate and then share it on your time line. You can give a donation to Wilhelm Foundation on our page by clicking on the “donate” button at the top of the page.
Go in on www.wilhelmfoundation.org and read more about our foundation.
