Wilhelm Foundations goal is that all children with undiagnosed diseases shall get a diagnosis! To solve this Wilhelm Foundation has arranged nine International Congresses of Undiagnosed Diseases and is currently planning the tenth one which will be held in Italy. The Congresses are in collaboration with Dr Gahl, NIH in USA, Wilhelm Foundation and a specialist from the country where the congress is held. Wilhelm Foundation is co-founder to Undiagnosed Diseases Network International (UDNI). The UDNI is part of Wilhelm Foundations dream since this is where the specialists from the whole world can collaborate to solve the undiagnosed diseases, improve diagnostic methods and develop medicines for the new diseases they identify. One mission is also to raise awareness about the undiagnosed diaseases
Wilhelm Foundation was founded and is driven by parents Mikk and Helene Cederroth. Their three youngest children died of an undiagnosed disease, Wilhelm died 16 years old, little Emma died 6 years old (one year after Wilhelm’s passing) and after another two years Hugo died 10 years old. Mikk and Helene are now doing all they can to help other families who have children with undiagnosed diseases. In Sweden Wilhelm Foundation is called Willefonden. Wilhelm Foundation/Willefonden are members in; Undiagnosed Diseases Network International UDNI, Rare Diseases International, EURODIS Rare Disease Europe, NORD National Organization for Rare Disorders, Observer member of UN’s NGO Committee for rare diseases, ICORD and Swedish National Association of Rare Diseases. You can start fundraising here on Facebook by using your Facebook account choosing Willefonden (the Swedish name of the foundation) select your total and why you want people to donate and then share it on your time line. You can give a donation to Wilhelm Foundation on our page by clicking on the “donate” button at the top of the page.
