Hemophilia Foundation - Pakistan

Hemophilia Foundation - Pakistan HFP is a national network of Persons with Bleeding Disorders in Pakistan.

For over 2 decades, the “Hemophilia Foundation-Pakistan [HFP]” has provided national leadership to improve and sustain care for people with inherited bleeding disorders, including hemophilia, von Willebrand disease, rare factor deficiencies, and inherited platelet disorders. We save and improve lives of our community by:
•Empowering patients in order to make them community activists;
•Advocating f

or adequate supply of safe treatment products; and
•Educating people with bleeding disorders to help them live healthier, longer and more productive lives. Through our network of committed volunteers and associated stakeholders, the HFP acts as a catalyst to bring about needed change. To this effect, the HFP operates through its Chapters to work with motivated health care providers, patients, their families and members of the community to foster quality health care for people with bleeding disorders. The Hemophilia Foundation-Pakistan [HFP], a national not-for-profit organization, was established in 1995. It is a national network of patients with Hemophilia and has official recognition from the World Federation of Hemophilia [WFH] as National Member Organization [NMO].

🇵🇰 𝐏𝐚𝐤𝐢𝐬𝐭𝐚𝐧 𝐀𝐜𝐭𝐢𝐯𝐞𝐥𝐲 𝐂𝐨𝐧𝐭𝐫𝐢𝐛𝐮𝐭𝐞𝐬 𝐭𝐨 𝐖𝐅𝐇 𝐑𝐞𝐠𝐢𝐨𝐧𝐚𝐥 𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩 𝐨𝐧 𝐍𝐨𝐧-𝐅𝐚𝐜𝐭𝐨𝐫 𝐑𝐞𝐩𝐥𝐚𝐜𝐞𝐦𝐞𝐧𝐭 𝐓𝐡𝐞𝐫𝐚𝐩𝐢𝐞𝐬The 𝐇𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐅𝐨𝐮𝐧𝐝𝐚𝐭𝐢𝐨𝐧–𝐏...
06/08/2026

🇵🇰 𝐏𝐚𝐤𝐢𝐬𝐭𝐚𝐧 𝐀𝐜𝐭𝐢𝐯𝐞𝐥𝐲 𝐂𝐨𝐧𝐭𝐫𝐢𝐛𝐮𝐭𝐞𝐬 𝐭𝐨 𝐖𝐅𝐇 𝐑𝐞𝐠𝐢𝐨𝐧𝐚𝐥 𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩 𝐨𝐧 𝐍𝐨𝐧-𝐅𝐚𝐜𝐭𝐨𝐫 𝐑𝐞𝐩𝐥𝐚𝐜𝐞𝐦𝐞𝐧𝐭 𝐓𝐡𝐞𝐫𝐚𝐩𝐢𝐞𝐬

The 𝐇𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐅𝐨𝐮𝐧𝐝𝐚𝐭𝐢𝐨𝐧–𝐏𝐚𝐤𝐢𝐬𝐭𝐚𝐧 (𝐇𝐅𝐏) proudly represented Pakistan at the World Federation of Hemophilia (WFH) 𝐖𝐨𝐫𝐤𝐬𝐡𝐨𝐩 𝐨𝐧 𝐔𝐩𝐝𝐚𝐭𝐞𝐬 𝐨𝐧 𝐍𝐨𝐧-𝐅𝐚𝐜𝐭𝐨𝐫 𝐑𝐞𝐩𝐥𝐚𝐜𝐞𝐦𝐞𝐧𝐭 𝐓𝐡𝐞𝐫𝐚𝐩𝐢𝐞𝐬 𝐢𝐧 𝐇𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐓𝐫𝐞𝐚𝐭𝐦𝐞𝐧𝐭, held June 2026 at the Sheraton Colombo, Sri Lanka. The workshop brought together healthcare professionals and National Member Organizations from across the region to strengthen knowledge and share practical experiences in the use of Emicizumab and other non-factor replacement therapies.

Pakistan delegation was represented by a multidisciplinary delegation comprising Mr. Masood Fareed Malik, Dr. Abira Maheen, Dr. Lubna, Dr. Ayisha, Dr. Qayyum and Dr. Khizar.

During the scientific program, Mr. Masood Fareed Malik and Dr. Abira Maheen jointly delivered a presentation titled "𝐂𝐨𝐥𝐥𝐚𝐛𝐨𝐫𝐚𝐭𝐢𝐨𝐧 𝐟𝐨𝐫 𝐂𝐚𝐫𝐞: 𝐓𝐡𝐞 𝐖𝐅𝐇 𝐚𝐧𝐝 𝐭𝐡𝐞 𝐇𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐅𝐨𝐮𝐧𝐝𝐚𝐭𝐢𝐨𝐧–𝐏𝐚𝐤𝐢𝐬𝐭𝐚𝐧", highlighting the successful partnership between WFH and HFP in expanding access to comprehensive hemophilia care, strengthening treatment services, and implementing the Humanitarian Aid Emicizumab Donation Program in Pakistan.

In a separate session, Dr. Lubna and Dr. Ayisha presented the healthcare provider perspective on the use of Emicizumab, sharing Pakistan's clinical experience, patient outcomes, and lessons learned from integrating this innovative therapy into routine hemophilia care.

HFP is honoured to have contributed to this important international scientific forum and remains committed to working alongside the WFH, healthcare professionals, government partners, and the bleeding disorders community to improve access to safe, effective, and sustainable care for people with hemophilia in Pakistan.

𝐇𝐅𝐏 𝐃𝐄𝐋𝐄𝐆𝐀𝐓𝐈𝐎𝐍 𝐌𝐄𝐄𝐓𝐒 𝐒𝐀𝐕𝐄 𝐎𝐍𝐄 𝐋𝐈𝐅𝐄 [𝐒𝐎𝐋] 𝐀𝐍𝐃 𝐏𝐀𝐑𝐓𝐈𝐂𝐈𝐏𝐀𝐓𝐄𝐒 𝐈𝐍 𝐒𝐎𝐋’𝐒 𝟐𝟓𝐓𝐇 𝐀𝐍𝐍𝐈𝐕𝐄𝐑𝐒𝐀𝐑𝐘 𝐂𝐄𝐋𝐄𝐁𝐑𝐀𝐓𝐈𝐎𝐍During the 𝙒𝙤𝙧𝙡𝙙 𝙁𝙚𝙙𝙚𝙧𝙖𝙩𝙞...
19/07/2026

𝐇𝐅𝐏 𝐃𝐄𝐋𝐄𝐆𝐀𝐓𝐈𝐎𝐍 𝐌𝐄𝐄𝐓𝐒 𝐒𝐀𝐕𝐄 𝐎𝐍𝐄 𝐋𝐈𝐅𝐄 [𝐒𝐎𝐋] 𝐀𝐍𝐃 𝐏𝐀𝐑𝐓𝐈𝐂𝐈𝐏𝐀𝐓𝐄𝐒 𝐈𝐍 𝐒𝐎𝐋’𝐒 𝟐𝟓𝐓𝐇 𝐀𝐍𝐍𝐈𝐕𝐄𝐑𝐒𝐀𝐑𝐘 𝐂𝐄𝐋𝐄𝐁𝐑𝐀𝐓𝐈𝐎𝐍

During the 𝙒𝙤𝙧𝙡𝙙 𝙁𝙚𝙙𝙚𝙧𝙖𝙩𝙞𝙤𝙣 𝙤𝙛 𝙃𝙚𝙢𝙤𝙥𝙝𝙞𝙡𝙞𝙖 (𝙒𝙁𝙃) 𝘾𝙤𝙣𝙜𝙧𝙚𝙨𝙨 2026 in Kuala Lumpur, the delegation of Hemophilia Foundation - Pakistan (HFP) had the privilege of meeting with 𝙈𝙨. 𝘾𝙞𝙣𝙙𝙮 𝙆𝙤𝙢𝙖𝙧, Executive Director of Save One Life, Inc. (SOL), a longstanding partner whose unwavering support has positively transformed the lives of persons with bleeding disorders in Pakistan.

HFP expressed its sincere gratitude to SOL for more than two decades of support through its 𝙈𝙤𝙣𝙩𝙝𝙡𝙮 𝙀𝙙𝙪𝙘𝙖𝙩𝙞𝙤𝙣 𝙎𝙘𝙝𝙤𝙡𝙖𝙧𝙨𝙝𝙞𝙥𝙨, 𝙈𝙞𝙘𝙧𝙤𝙚𝙣𝙩𝙚𝙧𝙥𝙧𝙞𝙨𝙚 𝙂𝙧𝙖𝙣𝙩𝙨, 𝙖𝙣𝙙 𝙃𝙞𝙜𝙝𝙚𝙧 𝙀𝙙𝙪𝙘𝙖𝙩𝙞𝙤𝙣 𝙎𝙘𝙝𝙤𝙡𝙖𝙧𝙨𝙝𝙞𝙥 𝙋𝙧𝙤𝙜𝙧𝙖𝙢𝙢𝙚𝙨. These initiatives have created a lasting impact by promoting education, financial independence, and long-term empowerment for persons with bleeding disorders and their families across the country.

SOL acknowledged HFP and its affiliated Chapters as valued project partners and appreciated their continued commitment to maintaining close and meaningful engagement with beneficiaries, ensuring the long-term success and sustainability of these programmes.

During the meeting, 𝙈𝙧. 𝙈𝙖𝙨𝙤𝙤𝙙 𝙁𝙖𝙧𝙚𝙚𝙙 𝙈𝙖𝙡𝙞𝙠, Chief Executive Officer of HFP, shared an update on the progress and impact of SOL-supported programmes in Pakistan. He also highlighted a successful community-led initiative developed by one of HFP's Chapters, modelled on SOL's vision, and emphasized that its success has been driven by one defining principle: 𝙎𝙩𝙧𝙤𝙣𝙜 𝙘𝙤𝙢𝙢𝙪𝙣𝙞𝙩𝙮 𝙚𝙣𝙜𝙖𝙜𝙚𝙢𝙚𝙣𝙩 𝙖𝙣𝙙 𝙤𝙬𝙣𝙚𝙧𝙨𝙝𝙞𝙥.

The HFP delegation was also honoured to participate in 𝙎𝙖𝙫𝙚 𝙊𝙣𝙚 𝙇𝙞𝙛𝙚'𝙨 25𝙩𝙝 𝘼𝙣𝙣𝙞𝙫𝙚𝙧𝙨𝙖𝙧𝙮 𝘾𝙚𝙡𝙚𝙗𝙧𝙖𝙩𝙞𝙤𝙣, marking a remarkable milestone of global service and commitment to the bleeding disorders community. Pakistan was invited to address the audience during the celebration, where HFP proudly acknowledged SOL's invaluable partnership and its enduring contribution to improving the lives of the bleeding disorders community in Pakistan.

On behalf of the bleeding disorders community of Pakistan, 𝘿𝙧. 𝘼𝙗𝙞𝙧𝙖 𝙈𝙖𝙝𝙚𝙚𝙣, President of HFP, presented a commemorative shield to 𝙈𝙨. 𝘾𝙞𝙣𝙙𝙮 𝙆𝙤𝙢𝙖𝙧 as a token of appreciation and gratitude for SOL's longstanding partnership and dedication.

Congratulations to the entire Save One Life family on celebrating 25 𝙮𝙚𝙖𝙧𝙨 𝙤𝙛 𝙘𝙝𝙖𝙣𝙜𝙞𝙣𝙜 𝙡𝙞𝙫𝙚𝙨. HFP looks forward to strengthening this valued partnership and continuing our shared mission of improving the lives of persons with bleeding disorders in Pakistan and around the world.

You are requested to send in your nominations by 20th July' 2026."To support youth leadership development and strengthen...
10/07/2026

You are requested to send in your nominations by 20th July' 2026.

"To support youth leadership development and strengthen its National Member Organizations (NMOs), the World Federation of Hemophilia (WFH) is offering a limited number of fellowships for active youth members of NMOs to participate in the 2027–2028 WFH Youth Leadership Program.

Each NMO may nominate one (1) youth applicant. Nominated candidates will then be invited to complete an online application. Applications will be reviewed by a selection committee and evaluated on merit. The WFH will award a total of 15 youth fellowships.

Selected fellows will be invited to attend a Global Capacity Development Training, on April 12 to 13, and the WFH Comprehensive Care Summit, from April 14 to 16, in Prague, Czechia."

10/07/2026
𝐏𝐚𝐤𝐢𝐬𝐭𝐚𝐧’𝐬 𝐉𝐨𝐮𝐫𝐧𝐞𝐲 𝐓𝐨𝐰𝐚𝐫𝐝 𝐁𝐞𝐭𝐭𝐞𝐫 𝐇𝐚𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐂𝐚𝐫𝐞 𝐇𝐢𝐠𝐡𝐥𝐢𝐠𝐡𝐭𝐞𝐝 𝐚𝐭 𝐆𝐥𝐨𝐛𝐚𝐥 𝐑𝐨𝐜𝐡𝐞 𝐒𝐲𝐦𝐩𝐨𝐬𝐢𝐮𝐦 𝐝𝐮𝐫𝐢𝐧𝐠 𝐭𝐡𝐞 𝐖𝐅𝐇 𝟐𝟎𝟐𝟔 𝐖𝐨𝐫𝐥𝐝 𝐂𝐨𝐧𝐠𝐫𝐞...
09/07/2026

𝐏𝐚𝐤𝐢𝐬𝐭𝐚𝐧’𝐬 𝐉𝐨𝐮𝐫𝐧𝐞𝐲 𝐓𝐨𝐰𝐚𝐫𝐝 𝐁𝐞𝐭𝐭𝐞𝐫 𝐇𝐚𝐞𝐦𝐨𝐩𝐡𝐢𝐥𝐢𝐚 𝐂𝐚𝐫𝐞 𝐇𝐢𝐠𝐡𝐥𝐢𝐠𝐡𝐭𝐞𝐝 𝐚𝐭 𝐆𝐥𝐨𝐛𝐚𝐥 𝐑𝐨𝐜𝐡𝐞 𝐒𝐲𝐦𝐩𝐨𝐬𝐢𝐮𝐦 𝐝𝐮𝐫𝐢𝐧𝐠 𝐭𝐡𝐞 𝐖𝐅𝐇 𝟐𝟎𝟐𝟔 𝐖𝐨𝐫𝐥𝐝 𝐂𝐨𝐧𝐠𝐫𝐞𝐬𝐬

A proud and inspiring moment for Pakistan’s bleeding disorders community as Dr. Munira Borhany, Member of the National Medical Advisory Board, Hemophilia Foundation - Pakistan (HFP), represented Pakistan as an expert speaker at the Roche-sponsored symposium held during the WFH 2026 World Congress in Kuala Lumpur.

The symposium, titled “𝙎𝙏𝙍𝙊𝙉𝙂𝙀𝙍 𝙏𝙊𝙂𝙀𝙏𝙃𝙀𝙍: 𝘾𝙧𝙚𝙖𝙩𝙞𝙣𝙜 𝙈𝙤𝙧𝙚 𝘼𝙘𝙘𝙚𝙨𝙨 𝙩𝙤 𝘼𝙙𝙫𝙖𝙣𝙘𝙚𝙙 𝙋𝙧𝙤𝙥𝙝𝙮𝙡𝙖𝙘𝙩𝙞𝙘 𝙏𝙧𝙚𝙖𝙩𝙢𝙚𝙣𝙩, 𝙂𝙡𝙤𝙗𝙖𝙡𝙡𝙮,” brought together leading international experts, advocates, and stakeholders to discuss strategies for expanding equitable access to advanced prophylactic therapies for people living with haemophilia A worldwide.

Dr. Borhany delivered a highly impactful presentation on “𝙇𝙀𝘼𝙍𝙉𝙄𝙉𝙂𝙎 𝙁𝙍𝙊𝙈 𝙋𝘼𝙆𝙄𝙎𝙏𝘼𝙉: 𝙊𝙪𝙧 𝙅𝙤𝙪𝙧𝙣𝙚𝙮 𝙩𝙤 𝙄𝙢𝙥𝙧𝙤𝙫𝙚𝙙 𝘼𝙘𝙘𝙚𝙨𝙨 𝙩𝙤 𝙋𝙧𝙤𝙥𝙝𝙮𝙡𝙖𝙭𝙞𝙨,” highlighting Pakistan’s progress, ongoing challenges, and collaborative efforts to strengthen haemophilia care and improve access to modern treatment options. Her presentation showcased Pakistan’s experience on a prestigious global platform alongside internationally renowned leaders, including 𝘿𝙧. 𝙂𝙡𝙚𝙣𝙣 𝙋𝙞𝙚𝙧𝙘𝙚 and 𝙈𝙧. 𝘿𝙚𝙤𝙣 𝙔𝙤𝙧𝙠.

The Hemophilia Foundation Pakistan takes immense pride in Pakistan’s representation at such a distinguished international forum and acknowledges Dr. Munira Borhany’s valuable contribution in amplifying the voice of Pakistan’s haemophilia community globally.

Through collaboration, advocacy, and shared learning, we continue moving closer to a future where every person with haemophilia has access to safe, effective, and equitable care.

𝐇𝐈𝐍𝐀 𝐅𝐀𝐓𝐈𝐌𝐀 𝐁𝐑𝐈𝐍𝐆𝐒 𝐁𝐎𝐓𝐇 𝐒𝐂𝐈𝐄𝐍𝐓𝐈𝐅𝐈𝐂 𝐄𝐗𝐏𝐄𝐑𝐓𝐈𝐒𝐄 𝐀𝐍𝐃 𝐆𝐑𝐀𝐒𝐒𝐑𝐎𝐎𝐓𝐒 𝐄𝐗𝐏𝐄𝐑𝐈𝐄𝐍𝐂𝐄 𝐓𝐎 𝐓𝐇𝐄 𝐅𝐑𝐄𝐄 𝐏𝐀𝐏𝐄𝐑 𝐒𝐄𝐒𝐒𝐈𝐎𝐍: 𝐖𝐎𝐌𝐄𝐍 𝐀𝐍𝐃 𝐆𝐈𝐑𝐋𝐒' 𝐇𝐄𝐀𝐋𝐓...
07/07/2026

𝐇𝐈𝐍𝐀 𝐅𝐀𝐓𝐈𝐌𝐀 𝐁𝐑𝐈𝐍𝐆𝐒 𝐁𝐎𝐓𝐇 𝐒𝐂𝐈𝐄𝐍𝐓𝐈𝐅𝐈𝐂 𝐄𝐗𝐏𝐄𝐑𝐓𝐈𝐒𝐄 𝐀𝐍𝐃 𝐆𝐑𝐀𝐒𝐒𝐑𝐎𝐎𝐓𝐒 𝐄𝐗𝐏𝐄𝐑𝐈𝐄𝐍𝐂𝐄 𝐓𝐎 𝐓𝐇𝐄 𝐅𝐑𝐄𝐄 𝐏𝐀𝐏𝐄𝐑 𝐒𝐄𝐒𝐒𝐈𝐎𝐍: 𝐖𝐎𝐌𝐄𝐍 𝐀𝐍𝐃 𝐆𝐈𝐑𝐋𝐒' 𝐇𝐄𝐀𝐋𝐓𝐇 𝐀𝐍𝐃 𝐑𝐄𝐒𝐄𝐀𝐑𝐂𝐇.

With an MPhil in Microbiology and her role as a Research Officer, her work focuses on the clinical and public health dimensions of inherited bleeding disorders. also serves as an Executive Board Member of the Hemophilia Foundation - Pakistan (HFP) and leads the Women’s Group of the Rawalpindi Chapter.

Her presentation, “𝘾𝙪𝙡𝙩𝙪𝙧𝙖𝙡 𝙖𝙣𝙙 𝘾𝙡𝙞𝙣𝙞𝙘𝙖𝙡 𝘽𝙪𝙧𝙙𝙚𝙣 𝙤𝙛 𝙄𝙣𝙝𝙚𝙧𝙞𝙩𝙚𝙙 𝘽𝙡𝙚𝙚𝙙𝙞𝙣𝙜 𝘿𝙞𝙨𝙤𝙧𝙙𝙚𝙧𝙨 𝙞𝙣 𝙒𝙤𝙢𝙚𝙣 𝙖𝙣𝙙 𝙂𝙞𝙧𝙡𝙨 𝙞𝙣 𝙋𝙖𝙠𝙞𝙨𝙩𝙖𝙣,” highlights critical issues such as delayed diagnosis, the role of consanguinity, and the wide spectrum of clinical symptoms all of which play a significant part in the clinical diagnosis and research of these conditions. The talk also addresses key gaps in access to care and the broader systemic challenges affecting women and girls with bleeding disorders across the country.

The session brings together a diverse group of global researchers to shed light on the often-overlooked challenges faced by patients with von Willebrand disease (VWD), including delayed diagnosis, inadequate treatment, and significant social stigma. 𝙄𝙩 𝙥𝙧𝙚𝙨𝙚𝙣𝙩𝙨 𝙚𝙫𝙞𝙙𝙚𝙣𝙘𝙚 𝙤𝙣 𝙝𝙤𝙬 𝙩𝙝𝙚 𝙘𝙤𝙣𝙙𝙞𝙩𝙞𝙤𝙣 𝙞𝙢𝙥𝙖𝙘𝙩𝙨 𝙚𝙙𝙪𝙘𝙖𝙩𝙞𝙤𝙣, 𝙚𝙢𝙥𝙡𝙤𝙮𝙢𝙚𝙣𝙩, 𝙢𝙚𝙣𝙩𝙖𝙡 𝙝𝙚𝙖𝙡𝙩𝙝, 𝙖𝙣𝙙 𝙤𝙫𝙚𝙧𝙖𝙡𝙡 𝙦𝙪𝙖𝙡𝙞𝙩𝙮 𝙤𝙛 𝙡𝙞𝙛𝙚 𝙥𝙖𝙧𝙩𝙞𝙘𝙪𝙡𝙖𝙧𝙡𝙮 𝙙𝙪𝙚 𝙩𝙤 𝙞𝙨𝙨𝙪𝙚𝙨 𝙡𝙞𝙠𝙚 𝙝𝙚𝙖𝙫𝙮 𝙢𝙚𝙣𝙨𝙩𝙧𝙪𝙖𝙡 𝙗𝙡𝙚𝙚𝙙𝙞𝙣𝙜. This research supports better clinical practices, promotes gender-sensitive care, and strengthens advocacy for improved diagnosis, access to appropriate treatments and the integration of hematology with gynecological care in Pakistan.

Together, these contributions strengthen the evidence base and advance more inclusive, informed care for women and girls living with bleeding disorders.

𝐀𝐍𝐎𝐓𝐇𝐄𝐑 𝐒𝐓𝐑𝐎𝐍𝐆 𝐕𝐎𝐈𝐂𝐄 𝐅𝐑𝐎𝐌 𝐏𝐀𝐊𝐈𝐒𝐓𝐀𝐍 𝐌𝐀𝐑𝐊𝐄𝐃 𝐈𝐓𝐒 𝐏𝐑𝐄𝐒𝐄𝐍𝐂𝐄 𝐎𝐍 𝐓𝐇𝐄 𝐆𝐋𝐎𝐁𝐀𝐋 𝐒𝐓𝐀𝐆𝐄 At the 𝙒𝙁𝙃 𝘾𝙤𝙣𝙜𝙧𝙚𝙨𝙨 2026 in Kuala Lumpur, Mr....
05/07/2026

𝐀𝐍𝐎𝐓𝐇𝐄𝐑 𝐒𝐓𝐑𝐎𝐍𝐆 𝐕𝐎𝐈𝐂𝐄 𝐅𝐑𝐎𝐌 𝐏𝐀𝐊𝐈𝐒𝐓𝐀𝐍 𝐌𝐀𝐑𝐊𝐄𝐃 𝐈𝐓𝐒 𝐏𝐑𝐄𝐒𝐄𝐍𝐂𝐄 𝐎𝐍 𝐓𝐇𝐄 𝐆𝐋𝐎𝐁𝐀𝐋 𝐒𝐓𝐀𝐆𝐄

At the 𝙒𝙁𝙃 𝘾𝙤𝙣𝙜𝙧𝙚𝙨𝙨 2026 in Kuala Lumpur, Mr. Hassan Raza delivered a thought-provoking session titled “𝙉𝙖𝙫𝙞𝙜𝙖𝙩𝙞𝙣𝙜 𝙨𝙩𝙞𝙜𝙢𝙖, 𝙞𝙙𝙚𝙣𝙩𝙞𝙩𝙮, 𝙖𝙣𝙙 𝙚𝙫𝙚𝙧𝙮𝙙𝙖𝙮 𝙡𝙞𝙛𝙚 𝙬𝙞𝙩𝙝 𝙖 𝙗𝙡𝙚𝙚𝙙𝙞𝙣𝙜 𝙙𝙞𝙨𝙤𝙧𝙙𝙚𝙧” at the Plenary Theatre contributing to one of the Congress’s most nuanced and patient-centered discussions.

A Person with Hemophilia “A” and a leading figure within Hemophilia Foundation - Pakistan (HFP), Mr. Hassan has been instrumental in transforming Pakistan’s National Member Organization (NMO) into a cohesive, patient-led institutional platform. 𝙈𝙧. 𝙃𝙖𝙨𝙨𝙖𝙣’𝙨 𝙘𝙤𝙣𝙩𝙧𝙞𝙗𝙪𝙩𝙞𝙤𝙣𝙨 𝙝𝙖𝙫𝙚 𝙨𝙥𝙖𝙣𝙣𝙚𝙙 𝙜𝙤𝙫𝙚𝙧𝙣𝙖𝙣𝙘𝙚, 𝙨𝙩𝙧𝙖𝙩𝙚𝙜𝙞𝙘 𝙖𝙙𝙫𝙤𝙘𝙖𝙘𝙮, 𝙖𝙣𝙙 𝙥𝙤𝙡𝙞𝙘𝙮 𝙙𝙚𝙫𝙚𝙡𝙤𝙥𝙢𝙚𝙣𝙩 𝙞𝙣𝙘𝙡𝙪𝙙𝙞𝙣𝙜 𝙖 𝙘𝙚𝙣𝙩𝙧𝙖𝙡 𝙧𝙤𝙡𝙚 𝙞𝙣 𝙨𝙝𝙖𝙥𝙞𝙣𝙜 𝙩𝙝𝙚 𝙁𝙤𝙪𝙣𝙙𝙖𝙩𝙞𝙤𝙣’𝙨 𝘾𝙤𝙣𝙨𝙩𝙞𝙩𝙪𝙩𝙞𝙤𝙣, 𝙋𝙖𝙧𝙩𝙣𝙚𝙧𝙨𝙝𝙞𝙥 𝘼𝙜𝙧𝙚𝙚𝙢𝙚𝙣𝙩𝙨 𝙖𝙣𝙙 𝙎𝙩𝙧𝙖𝙩𝙚𝙜𝙞𝙘 𝙋𝙡𝙖𝙣. He is currently serving as VP of the Pakistan-NMO and has also been the Advisor to national committee in the past.

Hassan introduced the concept of biographical disruption which forces a PwBD to give up on the societal roles which are expected of them and impressed upon the need to transform that into biographical repair by ensuring that we as community share our resilience and make that a core identity of ours in our personal and professional life. He also talked about the 𝙘𝙝𝙖𝙡𝙡𝙚𝙣𝙜𝙚𝙨 𝙛𝙖𝙘𝙚𝙙 𝙗𝙮 𝙢𝙖𝙣𝙮 𝙥𝙚𝙤𝙥𝙡𝙚 𝙞𝙣 𝙇𝙈𝙄𝘾𝙨 𝙧𝙚𝙡𝙖𝙩𝙞𝙣𝙜 𝙩𝙤 𝙨𝙤𝙘𝙞𝙖𝙡 𝙨𝙩𝙞𝙜𝙢𝙖𝙨 𝙖𝙣𝙙 𝙩𝙝𝙚 𝙬𝙖𝙮𝙨 𝙩𝙝𝙧𝙤𝙪𝙜𝙝 𝙬𝙝𝙞𝙘𝙝 𝙩𝙝𝙚𝙮 𝙘𝙖𝙣 𝙗𝙚 𝙤𝙫𝙚𝙧𝙘𝙤𝙢𝙚.

He also shared his own experiences and the way in which he was able to consolidate his multiple identities and continues to be a corporate lawyer along with teaching at university level while ensuring that he moved from being cared for to caring for others. He introduced the perspective of THRIVE to ensure that every PwBD should be equipped to have the conversations about his disease with the HCPs and caregivers.

Through a compelling blend of personal insight and advocacy-driven perspective, Mr. Hassan emphasized the importance of reframing societal narratives around bleeding disorders, fostering a stronger sense of community identity, and embedding mental health within holistic care frameworks.

His participation at WFH 2026 reflected the growing influence of Pakistan’s patient leadership on the international stage while contributing meaningfully to global discourse and advancing a more inclusive, person-centered approach to care.

𝐇𝐅𝐏 𝐌𝐄𝐄𝐓𝐒 𝐑𝐎𝐂𝐇𝐄 𝐆𝐋𝐎𝐁𝐀𝐋 𝐀𝐓 𝐖𝐅𝐇 𝟐𝟎𝟐𝟔 𝐖𝐎𝐑𝐋𝐃 𝐂𝐎𝐍𝐆𝐑𝐄𝐒𝐒During the WFH World Congress 2026 in Kuala Lumpur, the Hemophilia Foun...
02/07/2026

𝐇𝐅𝐏 𝐌𝐄𝐄𝐓𝐒 𝐑𝐎𝐂𝐇𝐄 𝐆𝐋𝐎𝐁𝐀𝐋 𝐀𝐓 𝐖𝐅𝐇 𝟐𝟎𝟐𝟔 𝐖𝐎𝐑𝐋𝐃 𝐂𝐎𝐍𝐆𝐑𝐄𝐒𝐒

During the WFH World Congress 2026 in Kuala Lumpur, the Hemophilia Foundation - Pakistan (HFP) held a productive meeting with the Roche Global team to reflect on a valued partnership that continues to strengthen haemophilia care and support services in Pakistan.

HFP expressed its sincere gratitude to Roche Global for its generous contributions to the World Federation of Hemophilia (WFH). Through the WFH Humanitarian Aid Program, Pakistan remains among the beneficiary countries receiving critical support for persons living with bleeding disorders. This assistance has played a significant role in enhancing HFP’s ability to reach and support patients and families nationwide.

HFP also acknowledged the availability of Roche products across healthcare institutions in both the public and private sectors of Pakistan. Special appreciation was extended for Roche’s seed-grant support for diagnostic services during the establishment phase of Pakistan’s first-ever public sector Haemophilia Treatment Centre (HTC), as well as Roche’s recent commitment to sponsor IEC materials aimed at increasing awareness and education at the grassroots level.

During the meeting, Roche Global appreciated HFP’s strong organizational structure, active chapter network, and sustained engagement with the bleeding disorders community across Pakistan. HFP also recognized the continuous support and active collaboration of Roche Pakistan in advancing advocacy and patient-focused initiatives at the local level.

HFP values this meaningful partnership and remains committed to ensuring that every person with haemophilia and other bleeding disorders in Pakistan has access to care, support, and hope for a better future.

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