Hemophilia Advocates-Philippines

29/05/2026

🎥 MUST-WATCH
We are proud to share the official One Hemophilia, One Philippines advocacy video: a call for unity, awareness, and better care for every Filipino living with hemophilia and bleeding disorders.

Together, we move forward as one community.

One Voice. One Goal. One Philippines. 🇵🇭💙

23/05/2026

Let’s unite for awareness, education, and hope.



Join us for the Hemophilia Awareness Webinar!
https://us06web.zoom.us/j/74840035471?pwd=6U5r7ZWzaWzcBCjf9jT3a0pxRw4aE8.1

Meeting ID: 748 4003 5471
PW:

22/05/2026

Join us for the Hemophilia Awareness Webinar as we unite and hear powerful real-life stories from the Philippine bleeding disorders community alongside insights from two globally distinguished experts — Dr. Amber Federizo of Nevada, US and Dr. Tulika Seth of India — as we come together to spread awareness, share knowledge, and strengthen support for every individual living with bleeding disorders.❤️🩸

🗓 May 23, 2026
⏰ 6:00 P.M. – 8:00 P.M.
📍 Live via Facebook and Zoom

Let’s unite for awareness, education, and hope.

21/05/2026

Join us for an inspiring evening of learning, hope, and advocacy at the One Hemophilia, One Philippines Webinar on May 23, 2026 (Saturday), 6pm. Hear powerful real-life stories from the Philippine bleeding disorders community alongside insights from two globally distinguished experts — Dr. Amber Federizo of Nevada, US and Dr. Tulika Seth of India — as we come together to raise awareness, strengthen patient care, and unite as one community. ❤️🩸

Topic: One Hemophilia, One Philippines
Time: May 23, 2026 06:00 PM Singapore

Meeting ID: 748 4003 5471
Passcode:

Be part of the conversation.

09/05/2026

Behind every person with hemophilia is a mother, grandmother, sister, or caregiver whose love never gives up.

Today, we honor the women who comfort through pain, stay strong during difficult moments, and quietly fight battles so their loved ones can live fuller and brighter lives.

To all moms in the hemophilia community, thank you for your endless love, sacrifice, and strength. Happy Mother’s Day. ❤️❤️❤️

07/05/2026

Behind every vial distributed is a life protected, a family supported, and a patient given another chance to heal.

From January to April 2026, Hemophilia Advocates-Philippines assisted 140 patients across the country, including individuals facing life-threatening brain and intracranial bleeds.

This would not have been possible without the compassion and generosity of Save One Life, Inc. – Project SHARE and Ms. Laurie Kelley LA Kelley Communications, Inc., whose continued support helped provide urgent treatment and hope to members of the bleeding disorders community in the Philippines.

Thank you for helping us remind every Filipino with hemophilia that they are not alone. 💙

02/05/2026

Ngayong bakasyon, marami sa atin ang maglalabas, magbi-beach, at mag-eenjoy kasama ang pamilya at mga kaibigan. Mahalaga ‘yan at kailangan din nating makapamasyal at mag-relax.

Pero sana, huwag nating kalimutan: wala po tayong superpowers.

👉 Magdala ng factor at gamot saan man pumunta
👉 Piliin ang activities na ligtas sa atin
👉 Uminom ng maraming tubig at magpahinga kapag kailangan
👉 Iwasan ang aksidente—ingat sa untog, bangga, at sugat
👉 Sabihan ang kasama kung ano ang gagawin in case of emergency

Ilan na rin sa ating mga kasama ang nagkaroon ng malalang pagdurugo—lalo na sa ulo—dahil sa simpleng aksidente. Iwasan nating mangyari sa atin yan.

Mag-enjoy tayo, pero doble ingat.
Para tuloy-tuloy ang saya, hindi ang problema.

💙 Have fun. Stay safe. We’ve got this.

27/04/2026

Hemophilia Advocates-Philippines participated in the recently concluded World Federation of Hemophilia (WFH) World Congress 2026, held at the Kuala Lumpur Convention Centre in Kuala Lumpur, Malaysia 🇲🇾 from April 19 to 22, 2026.

The delegation included our Medical Adviser, Dra. Marilou A. Abiera, core officer Ricarte Felipe, youth leaders Peter Paul Carreon and Kristian Lanzar, together with the Pammit Family.

The congress provided a meaningful platform for networking, collaboration, and exchange of ideas with hemophilia communities from around the world. Through insightful sessions and discussions, we gained valuable knowledge and strengthened our commitment to improving care, awareness, and support for persons with bleeding disorders in the Philippines.

Together, we continue to advocate for better access to treatment and a stronger future for our community.

23/04/2026

From all of us at Hemophilia Advocates-Philippines, we proudly celebrate one of our own—Gft “Taochan” Agoncillo, a 14-year-old person with hemophilia whose voice carries a story of strength, resilience, and hope.

Through his original song, “Stronger Than My Pain,” Taochan transforms his personal journey living with hemophilia into something deeply powerful. His music reflects not only the challenges he faces, but also the courage, determination, and spirit that define so many in our community.

A big part of Taochan’s story is the generosity of many who have stood behind him. Through donations coursed via Save One Life, Inc. and Project SHARE, alongside the support of Laurie Kelley and donors who entrusted their help through HAP, Taochan has been given a chance at a semblance of normalcy. This collective support has allowed him not just to manage his condition, but to pursue his passion and share his voice with the world.

At HAP, we believe that every story matters. Taochan’s journey reminds us that young people living with hemophilia are not defined by their condition—they are artists, dreamers, and changemakers.

We invite you to listen, support, and be inspired by his journey:

Spotify: https://tinyurl.com/strongerthanmypain

YouTube: https://www.youtube.com/watch?v=kQ7E5Quvz5Y&list=RDkQ7E5Quvz5Y&start_radio=1

Together, we continue to amplify voices, raise awareness, and show that strength comes in many forms.

Aaron Negapatan, Gft Agoncillo · Stronger Than My Pain · Song · 2026

17/04/2026

Today, April 17, we join the global community in observing World Hemophilia Day, a moment to raise awareness about hemophilia and other bleeding disorders and to stand in solidarity with all those affected.

This year’s theme, “Diagnosis: First Step to Care,” highlights a critical gap that continues to impact many Filipinos. Without proper and timely diagnosis, individuals are left without access to the treatment, support, and protection they need. Too many still endure years of uncertainty, misdiagnosis, or delayed care.

At Hemophilia Advocates-Philippines, we believe that every Filipino with a bleeding disorder deserves early diagnosis, access to safe and adequate treatment, and the opportunity to live with dignity. Behind every case is a story, a family, and a future that depends on a responsive and compassionate healthcare system.

Today, we call on stakeholders, healthcare providers, and communities to strengthen awareness, improve access to diagnostics, and ensure that no one is left behind.

Diagnosis is not the end. It is the beginning of care, hope, and a better quality of life.