ALS Philippines

09/05/2026

𝗧𝗼𝗱𝗮𝘆, 𝘄𝗲 𝗵𝗼𝗻𝗼𝗿 𝘁𝗵𝗲 𝗶𝗻𝗰𝗿𝗲𝗱𝗶𝗯𝗹𝗲 𝗺𝗼𝘁𝗵𝗲𝗿𝘀 𝗳𝗮𝗰𝗶𝗻𝗴 𝗔𝗟𝗦. 💙

To the mothers living with ALS,
to the moms caring for a loved one with the disease,
and to every family carrying this journey together,

your strength shows itself in ways the world does not always see.

In the face of exhaustion, uncertainty, and change, you continue to give love, comfort, and courage to the people around you.

𝗔𝗟𝗦 𝗺𝗮𝘆 𝗰𝗵𝗮𝗹𝗹𝗲𝗻𝗴𝗲 𝘁𝗵𝗲 𝗯𝗼𝗱𝘆, 𝗯𝘂𝘁 𝗶𝘁 𝗰𝗮𝗻 𝗻𝗲𝘃𝗲𝗿 𝗱𝗶𝗺𝗶𝗻𝗶𝘀𝗵 𝗮 𝗺𝗼𝘁𝗵𝗲𝗿’𝘀 𝗹𝗼𝘃𝗲, 𝗿𝗲𝘀𝗶𝗹𝗶𝗲𝗻𝗰𝗲, 𝗼𝗿 𝗽𝗿𝗲𝘀𝗲𝗻𝗰𝗲.

This Mother’s Day, ALS Philippines stands beside every mother affected by ALS, patients, caregivers, and fighters alike.

𝗬𝗼𝘂 𝗮𝗿𝗲 𝘀𝗲𝗲𝗻. 𝗬𝗼𝘂 𝗮𝗿𝗲 𝘃𝗮𝗹𝘂𝗲𝗱. 𝗬𝗼𝘂 𝗮𝗿𝗲 𝗱𝗲𝗲𝗽𝗹𝘆 𝗹𝗼𝘃𝗲𝗱. 🌸

Our thoughts and prayers are with every ALS family today and always. 🙏💙

26/03/2026

We want to provide an update regarding Rilutek (riluzole) for ALS patients in the Philippines.

Local distribution:
• We have known that Rilutek is distributed by GetMeds, but it is available only through compassionate use, meaning the patient’s attending physician must request it.
• Supply is limited and availability may change, so caution is advised when sharing this information.
• We have also received information about a local supplier that patients may try to contact:

Supplier: Bihira Healthcare
Medication: Riluzole 50 mg
Price: ₱20,500 (56 tablets)
Delivery: via JRS or Lalamove
Viber contact: +63 939 240 7579

Community-shared experience:
• We have received reports from a member who was able to obtain Rilutek from international suppliers via IndiaMart (LEAF Pharma).
• They received their medication in less than a week, and the price was lower than previously reported (~$160 for a month’s supply).
• A prescription from a licensed physician is required to order.
• Shipping can be expensive, but some suppliers offer discounts for larger orders. Coordinating with other patients who are also purchasing may help reduce shipping costs and take advantage of bulk discounts.
• If you wish to be coordinated with other patients for potential bulk purchase, please let us know.

Important reminders:
• This information is shared for awareness only.
• We strongly recommend that patients coordinate with their attending neurologist before attempting any purchase.
• We cannot guarantee availability, price, or shipment success. Safety and proper medical guidance come first.

We hope this helps the ALS community stay informed while keeping everyone safe and guided by their doctors. 🙏

04/03/2026

27/02/2026

We’re still receiving many messages asking where Riluzole can be purchased.

If anyone has updated information on where it is currently available (pharmacies, hospitals, or verified suppliers), please share it in the comments so we can help others who are looking.

Also, if anyone has the means to purchase it regularly and is willing to allow others to join their purchase (group buying), please send us a private message so we can help connect people.

Let’s support one another by sharing reliable and helpful information. Thank you.🙏🏻 ALS Philippines