Retina Perú

21/10/2026

Retina SA - A cure in sight
Foro Discapacidad Perú

21/10/2026

Centre for Eye Research Australia
Foro Discapacidad Perú

Gene therapy is transforming how inherited retinal diseases can be treated, offering new hope for people living with conditions such as retinitis pigmentosa, Stargardt's disease and Usher syndrome. 🧬

At CERA, Dr Jiang-Hui (Sloan) Wang is establishing a Vision Vector Core to engineer the next generation of viral vectors, the essential carriers that transport therapeutic genes directly to cells in the eye.

Many inherited retinal diseases take hold in cells deep within the retina, making treatment delivery one of the biggest challenges in developing new therapies. To address this, Dr Wang is developing advanced vectors engineered to reach these cells through a less invasive injection, improving both how effectively and safely gene therapies can target the cells that need them.

By carrying corrective therapies safely and effectively to the right cells, this research aims to open the door to treatments for inherited retinal diseases that have so far been out of reach.

Read more (link below) in the latest edition of Visionary 👇️

21/10/2026

Usher Kids UK Usher UsherKids Australia Foro Discapacidad Perú Retina Perú

Research Webinar for Young Adults with Usher Syndrome (18+)

🗓️ Tuesday 10th November - 7pm - Online

Are you a young adult living with Usher syndrome and interested in learning about the latest developments in Usher syndrome research?

Join us for an online session exploring the current research landscape, helping to demystify common research terms, and hearing updates directly from organisations involved in Usher syndrome trials and studies.

We’ll also share ways to stay informed about future developments and opportunities.

This session is open to young adults (18+) living with Usher syndrome in the UK. Register by 3 November and we’ll send you the meeting link and joining information.

Register for free here: https://tinyurl.com/ResearchYPWebinar

ID: event poster. In the centre of the page is a cartoon image of a computer, with 9 cartoon people on screen, in a 3 x 3 grid format. Navy text on a light-blue background reads: “Research Webinar for Young Adults with Usher Syndrome (18+) Tuesday 10th November 7-8pm. Exploring the current research landscape, helping to demystify common research terms, and hearing updates directly from organisations involved in Usher syndrome trials and studies. https://tinyurl.com/ResearchYPWebinar”

21/10/2026

Asociación Retina Murcia
Foro Discapacidad Perú

Beacon Therapeutics presenta los nuevos datos a 12 meses del ensayo VISTA con laru-zova, terapia génica en investigación para la retinosis pigmentaria ligada al cromosoma X: mejoras de agudeza visual, perfil de seguridad y pasos hacia la FDA.

21/10/2026

Rare Diseases International EURORDIS-Rare Diseases Europe
Foro Discapacidad Perú

🌐 Connect with the RDI delegation at World Orphan Drug Congress Europe 2026!
 
Next week, Rare Diseases International will be at the World Orphan Drug Congress Europe, connecting with partners, policymakers, industry representatives and advocates to advance collaboration and improve the lives of people living with rare diseases worldwide 🌍
 
Our delegation will be represented by:
 
Ravi Ram — CEO
Sara Brambilla — Global Programmes Manager
Sandy Laham — Resource Mobilisation & Partnerships Manager
Robin Durand — Project Lead
 
🗣️ RDI will contribute to the following sessions:
 
🔹 27 October | 14:40 — The Economic Impact of Living with a Rare Disease in APAC and LATAM – Regional Solutions to Inform a Global Action Plan. Ravi Ram and Robin Durand.
🔹 27 October | 16:10 — Advancing Care Pathways for Rare and Undiagnosed Diseases: From Concept to Implementation. Sara Brambilla
🔹 28 October | 15:00 — Closing Keynote Panel: Pushing Boundaries for the Future – What’s Next for Rare?. Ravi Ram.
 
If you’ll be attending WODC in Amsterdam, feel free to reach out to our team to exchange perspectives and share experiences 💬
 
We look forward to connecting with colleagues and partners across the rare disease community! 🌍
 

21/10/2026

FARPE Foro Discapacidad Perú

21/10/2026

Retina UK Foro Discapacidad Perú

21/10/2026

Retina International Foro Discapacidad Perú

Health research needs your perspective 💬

How can patients, carers and members of the public help shape the evidence that informs healthcare decisions?

Evidence Synthesis Ireland is offering a free six-week online course for anyone interested in learning about evidence synthesis and how to get involved. Evidence syntheses bring together findings from multiple studies to help us understand what research tells us, informing health policies, clinical guidelines and personal health decisions.

You do not require any research experience, just an interest in learning and contributing your perspective!

Course starts: 2nd November 2026
Eligibility: Members of the public, patients, carers, family members currently resident of Ireland & Northern Ireland

Register your interest by: 27th October 2026

Register your interest here: https://us.list-manage.com/15z9TGyI4bR?e=5071c80469&c2id=65e8ca394c19ffee81a0adf36f5170d2



[ID: Evidence Synthesis Ireland is offering a free six-week online course starting 2 November for patients, carers, family members and the public in Ireland and Northern Ireland. Register your interest by 27 October to learn how research evidence is reviewed and how to get involved.]

21/10/2026

EURORDIS-Rare Diseases Europe Foro Discapacidad Perú

⏳ Just 2 days left to register!

On 4 November, policymakers, healthcare professionals and patient representatives will come together in Brussels to discuss a critical question: How can Europe make cross-border healthcare work better for patients?

From access to specialised expertise and clinical trials to strengthening patients' rights, the Expert Dialogue on Cross-Border Healthcare will explore what needs to change as Europe considers modernising its rules.

Convened by the European Parliament Intergroup on Cancer and Rare Diseases and hosted by MEP Giorgos Georgiou, the event will offer an opportunity to bring patient perspectives into the discussion on the future of cross-border healthcare.

📅 4 November 2026📍 European Parliament, Brussels

🚨 Registration closes on 22 October! Places are limited, and advance registration is mandatory for all in-person attendees, including badge holders.

👉 Join us in Brussels – register before the deadline: https://go.eurordis.org/cross-border-expert

European Cancer Organisation | SIOP Europe, the European Society for Paediatric Oncology - SIOPE