Disability Hub NZ

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Post by Glen McMillan: The Disability Support Services Bill – What it really meansImagine a 3-year-old gets meningitis, ...
26/06/2026

Post by Glen McMillan:

The Disability Support Services Bill – What it really means

Imagine a 3-year-old gets meningitis, loses a limb, and needs a wheelchair.

Under this new Bill, the state is unlikely to provide either the wheelchair or the home help they need.

Why? Because the Bill now states that responsibility for care rests first with family and whānau. The government describes its support as only a "contribution" to care.

So where does that leave this child? Their care would fall to extended family. It assumes grandparents, aunts, uncles – whoever is available – will step in, without state support, to provide care and cover the costs of equipment.

This isn't a hypothetical. This Bill:

Closes the door on family carers being recognised as employees with rights, overturning a recent Supreme Court decision.

Shifts responsibility from the state onto families who are already struggling.

Creates the legal framework to introduce means-testing in the future, meaning support could depend on what you or your family can pay.

The Minister says there are "no immediate changes," but the foundation is being laid for a future where disabled people and their families are left to fend for themselves.

This Bill will leave many disabled people in despair – not just because of what it does now, but because of what it allows to happen next.

Here is the link

This website is the official home for New Zealand Acts, Bills, and secondary legislation.

02/06/2026

Hey there Disability Sector. I just wanted to let you know that there is hope for us in the future going forward. I want to suggest you go to Mariameno Kapa-Kingi's page - go to links and have a look at what Te Tai Tokerau Party has to offer. Many of you who know me - absolutely know that if something is off - I'll tell you straight.

I went to the Inaugural Hui last night which was well supported by a widd cross-section: rangatahi (youth), kuia and kaumatua, and the disability sector.

In all honesty I believe it will be Mariameno Kapa-Kingi and Te Tai Tokerau Party that will make things happen for our sector - which continually gets a hammering by those who should know better.

I stand by Mariameno because she has served in Parliament and understands how to navigate what is an awkward space. She has also stood up to political bullies in Court and like many of us - demands accountability for and on constituent's behalf.

If you think The Tai Tokerau Party is another separatist Party, it's not. Circumstances and the culture of politics has made things difficult and the only way to push forward is to start all over again.

I was darn impressed with last night's hui. I want to suggest you go have a look at TeTai Tokerau Party on Instagram as the posts are brief but impactful.

All of us have been politically damaged since 2020 - with some never recovering from what mainstream politics has done to us. But there is hope and a brighter and better future for us all - even though the kaupapa is Maori - no one has actually explained what this means. It means everything is situated around aroha and concern for others - which is the norm in our world.

Being heard and validated is important. Great to see input across multiple groups: rangatahi, kuia and kaumatua, and the...
02/06/2026

Being heard and validated is important. Great to see input across multiple groups: rangatahi, kuia and kaumatua, and the disability sector. The voice of the disabled is finally being acknowledged sincerely by a political party! We wish Mariameno Kapa-Kingi all the best for Tai Tokerau and the upcoming electiona.

https://www.facebook.com/share/p/18Vuvm8Nzw/

First community hui ☑️

Packed room and online participants.

One of the themes that came out of lastnights hui "I felt heard and validated".

Dates, venues and times for upcoming hui TBC.

11/04/2026

Here is some info to support our disability community during Cyclone Vaiau :
For our disability community, being prepared is best. Here is info specifically design for people with disabilities with accessible formats included - https://www.wremo.nz/alternative-formatsresources-for-disabled-people

Some evacuation centres may not be fully wheelchair accessible. Due to flooding, alternative/back up evacuation centres were used. It is good idea to check on the accessibility of the evacuation centre and its back up.

For people with service dogs, it is good to have a plan on keeping your animal safe if you have to go into an evacuation centre as there may be other untrained dogs at the evacuation centre. In the busyness of people organising evac, this can be missed.

Advice from disability community - if the vegetables and fruit in the garden is touched by the flooding, do not eat the food from it as it will make you sick.

For Deaf, hard of hearing or you have a speech impairment, if you need to contact phone numbers, NZ Relay Services can be used, however it is dependent on internet or mobile access during the cyclone.

For Deaf, hard of hearing or you have a speech impairment and have pre-registered. You can text 111 for emergencies (Police, Fire, or Ambulance). Registration is required for the service to function. Register online at the NZ Police 111 TXT page

Far North District Council Moko Tepania's update - https://www.facebook.com/reel/2487867371669165 - there are no subtitles for this video

Useful websites but note that the videos may not have subtitles:
www.getready.govt.nz
https://www.civildefence.govt.nz/
https://www.facebook.com/civildefencenorthland
https://www.metservice.com/ or https://www.facebook.com/MetService
https://www.facebook.com/WhangareiDC
https://www.facebook.com/FarNorthDistrictCouncil
https://www.facebook.com/ngatiwaitb

Human Rights Commission and Whaikaha are working on emergency preparedness for our disability community throughout Aotearoa NZ.

Supported by Te Tai Tokerau EGL Leadership Group.

31/01/2026

We want to hear from anyone else who has similar stories. More exposure needed and our elderly need protection. Message us in the first instance or post here. 🌟💬👍💕

31/01/2026

Whistleblowers risk everything to bring wrongdoing to light. But what happens when they're met with violence and intimidation? Reports are surfacing of people in New Zealand having their vehicles firebombed after exposing corruption. This is a direct attack on transparency and accountability. We must stand in solidarity with these brave individuals and ensure their voices are heard. How can we better protect whistleblowers and encourage others to come forward without fear? 🌟💡🔥💪

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