14/02/2026
Turning your deepest pain and grief into a purpose is one of life's toughest challenge.
Nivedita Sharma Vij embarked on the difficult journey after she lost her darling daughter to the rare blood condition of Thalessemia. She attributes part of the loss due to lack of awareness and the New Zealand medical system not equipped to deal with it at the time. Which is why she established the Muskan Care Trust named after her daughter, Muskan to continue the awareness campaign that her daughter had initially kicked off.
At our Rotary meeting Nivedita presented the work that Muskaan Care Trust- TASCA NZ (Thalassaemia & Sickle Cell Aotearoa NZ), does, advocating for optimal care and creating awareness about the invisible disability. She has been working relentlessly, educating communities, health professionals and building peer support, just so that those suffering from the rare blood disorder don't have to go through the huge loss she and her husband did.
