MECFS MEISS

18/06/2026

Various chronic health conditions are associated with household vulnerability to food insecurity. There is limited evidence regarding the prevalence of food insecurity or the experiences and challe...

18/06/2026

Medical Matters – Low sodium levels/Hyponatraemia

Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA.

Q: What are the symptoms of low sodium levels and is there any overlap with ME/CFS Symptoms?
A: https://meassociation.org.uk/medical-matters/items/symptoms-hyponatraemia-low-sodium-levels/

Search the free information database Medical Matters here:

https://meassociation.org.uk/medm

15/06/2026

It is great to see this research around the world. It is only through research things will change for those with ME/CFS/LC

ME Research UK is currently funding 14 ME/CFS research studies around the world, and throughout this week we’d like to remind you about some of those which are now well underway or due to finish in the next few months.

Rob Wüst and colleagues at Vrije Universiteit Amsterdam are investigating the causes of muscle abnormalities and post-exertional malaise in ME/CFS, specifically by looking at microclot accumulation in muscle fibres, and immune cell activation. bit.ly/wust068

One of our four PhD-level projects involves Jo Nijs and student, Jente Van Campenhout, at VUB - Vrije Universiteit Brussel, who are investigating whether mitochondrial dysfunction in ME/CFS depends on how severely an individual is affected by autonomic nervous system abnormalities. bit.ly/nijs004

12/06/2026

12/06/2026

Genomes, GWASs, whole genome sequencing (WGS): the different aspects of the genetics of ME/CFS can get quite confusing.

In light of SequenceME & Long COVID, a study utilising WGS, we have compared GWASs to WGS and other key genetic terms to aid your understanding.

Read more: https://tinyurl.com/9us6ste7

09/06/2026

Independent Nurse: Understanding the complex nature of chronic fatigue [syndrome, ME/CFS]

To mark ME Awareness month, Independent Nurse (online) published a post attributed to Dr Charles Shepherd, MEA Hon. Medical Adviser. We’ve been able to share information about ME/CFS, and emphasise the vital role that nurses play in supporting people with ME/CFS.

"HCPs, particularly nurses, play a vital role in the care of people with ME/CFS. Often the first professional a patient speaks to, nurses are key to supporting individuals, recognising symptoms early, and guiding them towards appropriate care. Early diagnosis and referral to specialist ME/CFS services can significantly improve a person’s ability to manage their condition. A major challenge remains as most nurses receive little or no training on ME/CFS, so improving education and awareness among nurses is a change the charity is keen to see."

Read more: https://www.independentnurse.co.uk/content/blogs/understanding-the-complex-nature-of-chronic-fatigue

07/06/2026

Medical Matters – Unrefreshing Sleep

Dr Charles Shepherd and the ME Association's other advisers answer questions from members of the MEA.

Q: What is unrefreshing sleep in ME/CFS and what causes it?
A: https://meassociation.org.uk/medical-matters/items/what-is-non-restorative-unrefreshing-sleep/

Search the free information database Medical Matters here:

https://meassociation.org.uk/medm

04/06/2026

A new study reveals that antibodies from some long COVID patients attacked brain and nerve tissues.

02/06/2026

A positive life begins with a grateful heart, a peaceful mind, and the courage to keep moving forward every day

01/06/2026

Some clinics are touting pressurized oxygen chambers as a treatment for long COVID, but the evidence is mixed