MECFS MEISS

MECFS MEISS Myalgic Enceplomyelitis Information Support Service (MEISS) is ME/CFS information and support service. Information and Support Service for those with ME/CFS.

We have monthly support groups, library, newsletters and provide information and advocacy for our members. Support group meetings run, a library available, information sheets and Drs booklets. Coffee mornings run.

27/05/2026

You make a very valid point and one that I […]

26/05/2026

ME Research UK-funded researchers Prof. Elisa Oltra and Prof. Simon Carding have recently contributed to a review article on the role of human endogenous retroviruses (HERVs) in ME/CFS. Published in the International Journal of Molecular Sciences, the article discusses the evidence linking this family of viruses to immune and neurocognitive dysfunction in the disease, the potential of HERV signatures as biomarkers, and the promise of HERV-targeted antibodies as treatments for ME/CFS. Read more: bit.ly/3R9aZut

23/05/2026

On the 7th and 8th of May, the International ME/CFS Conference 2026 took place in Berlin and online, and ME Research UK was in attendance remotely. Highlights of the conference included a presentation on the results from the DecodeME study and discussion of next steps, and a presentation on whole-body positron emission tomography (PET) scans for ME/CFS.

Read more: https://tinyurl.com/2crj6zd6

20/05/2026
17/05/2026

A faulty ion channel function is a consistent biological feature of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS), providing long-awaited

15/05/2026

What does yesterday's funding announcement for Sequence ME & Long Covid mean for the future of ME research?

In his latest blog, Simon McGrath explores why this landmark £4.75 million investment matters, what makes the study so significant, and how advanced DNA sequencing could help uncover the biology behind ME and Long Covid.

“This is an extraordinary moment for ME/CFS. It used to get by on the dregs of research funding, but now has a study that will probably be the largest using this hi-tech technique for any single disease. It is also the result of a lot of work by a lot of people.”

🧬 Read the full blog here: https://mecfsresearchreview.me/2026/05/12/dna-sequencing-study-to-help-pinpoint-biology-of-me-gets-4-7m/

14/05/2026

This week, ME Awareness week 2026, ME Research UK are considering research progress, and challenges faced, when working to understand key symptoms of ME/CFS.

Today, the focus is on Brain fog (also known as cognitive dysfunction): https://bit.ly/42bpC2D

Thanks to Emeritus Professor Warren Tate for writing the editorial that went with our ME/CFS day push for awareness rais...
14/05/2026

Thanks to Emeritus Professor Warren Tate for writing the editorial that went with our ME/CFS day push for awareness raising. Thank you to the sponsors who supported us to get this information into the Star Newspaper.

Interesting reading.
14/05/2026

Interesting reading.

Only 10 major long COVID clinical trials have been published thus far but that's enough to come away with some interesting takeaways. They include treatments that prevent long COVID don't necessarily treat it, broader based treatments are probably best, manipulating the gut can help with fatigue (bu...

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