MECFS MEISS

30/09/2026

Interesting research for those both long covid.

Everyday activities can require enormous effort for people living with post-COVID fatigue. This study examines the brain mechanisms that may contribute to fatigue.

30/09/2026

Thanks to Tom. We will register as well.

I thought I would repost this to highlight again some of the many varied symptoms that can be found in Myalgic Encephalomyelitis / Chronic Fatigue Syndrome. Fatigue (or synonyms of that) is far from the only symptom.

Particularly relevant when similarities with the Long Covid presentation in some people is being missed

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Of note: “exertional dyspnea” with a prevalence of approx. 80% in ME/CFS:
Shortness of breath during exercise (exertional dyspnea) produces a sensation of not being able to "get enough air" and a feeling of being "out of breath."

30/09/2026

Encouraging.

We’re pleased to share the September 2026 update on the British Psychological Society (BPS) ME/CFS Guidelines.

"We have been carrying out further analysis of the responses to our survey about what people with ME/CFS want psychologists to know to support both the guidelines and a planned research paper.

Participants have said very clearly that the guidelines must recognise ME/CFS is a biological illness that cannot be cured by psychological methods. The role of psychology is support.

The survey has identified multiple different ways that psychologists can potentially give that support and help people with ME/CFS..."

Read the full update: https://meassociation.org.uk/t2tu

30/09/2026

Tomorrow is another day, be kind to yourself today.

27/09/2026

As “fatigue” is such a widely used word, healthy individuals may mistakenly equate their own experience with the reality of fatigue in ME/CFS. Fatigue in ME/CFS is not just tiredness, it is a persistent symptom that is not relieved by rest and significantly impacts activities of daily living. Fatigue, in addition to other symptoms, can be significantly worsened through post-exertional malaise (PEM).

https://tinyurl.com/fatiguesymptomsat

In the fourth deep-dive of our weekly Symptom Saturday series, we explore debilitating fatigue in ME/CFS – including lived experience, research insights, related diagnostic delays, and management.

Read more: https://tinyurl.com/fatiguesymptomsat

27/09/2026

Without research things stay the same. Freak news hearing about these research projects.

Exciting research funded by ME Research UK was showcased at the ISLC-PAIS 2026 conference.

Topics included muscle and blood-vessel abnormalities, post-exertional malaise (PEM), cellular waste, gene regulation, fat metabolism, and changes in brain tissue.

This international event on Post-Acute Infection Syndromes took place in Amsterdam from August 26 to 29.

Discover more about the presentations here: https://tinyurl.com/246rj47b

This is part 1 of three articles on the ISLC-PAIS conference - more to follow over the coming weeks.

27/09/2026

8-page document "ME, CFS and Long Covid Health and Care Passport"

Could be used by people in lots of countries

24/09/2026

Press release from Spain. We'll worth a read.

Press release from Spain 🇪🇸

"New pathways identified to reduce pain and depressive symptoms associated with fibromyalgia"

24/09/2026

Si true!

We know our body the best....

24/09/2026

I saw quite a lot of praise for this at the time it came out, though I still haven't watched it.

Post-Exertional Malaise in ME/CFS - Management and Supports - Webinar for Health Professionals

"Dr Cathy Stephenson (General Practitioner) shares for colleagues what she has learnt about the symptom post exertional malaise while supporting people impacted by ME/CFS, (Myalgic Encephalomyelitis /Chronic Fatigue Syndrome)."