Anzmes

Anzmes World 1st ME/CFS organisation. Research, Represent, Educate. National Advisory on ME. Founding Member of the World ME Alliance. Haere Mai!

Member of the Neurological Alliance NZ. We are the National Advisory on ME in Aotearoa/New Zealand. With four decades of knowledge and experience, we are the trusted leaders in ME research, representation, and education. Our expertise comes from a reputable medical team of advisors, including a world renowned expert and MNZM recipient, a fellow of the Royal NZ College of General Practitioners (RNZ

CGP) and a network of academic researchers, clinicians, and representatives from the ME community. The executive committee comprises experts in their respective fields for governance, policy, leadership, representation, and education. Always a trail-blazer, it was the first ME charity of its kind in the world, established in 1980, as ANZMES, to provide support, information dissemination, and representation, achieving past outcomes through dedication, passion, time, and knowledge of lived experience. Today, the
organisation leads as a RNZCGP Continuing Medical Education (CME) Registered Provider, proud funder and generator of vital research, and steward of the community voice. We continue to disseminate evidence-based information nationally, and represent the ME voice globally through advocacy and leadership, as a founding member of the World ME Alliance. ANZMES latest education programme for health professionals – Know M.E. – is a video podcast and news series featuring up-to-date, evidence based research and information on ME and Post COVID Conditions. ANZMES is also a member of the Neurological Alliance, Access Matters, DPA NZ, Carers Alliance, and the Long COVID Alliance. ME is also known as . It was known in NZ as Tapanui flu. On this page, you will find a range of useful information about /CFS, , and for people living with these conditions, and for their whānau/families, caregivers, friends, and medical professionals. It is an evolving page so be sure to like or follow us for updates.

It’s National Volunteer Week Aotearoa!  From 14–20 June 2026 , we celebrate the incredible people who give their time, e...
19/06/2026

It’s National Volunteer Week Aotearoa!
From 14–20 June 2026 , we celebrate the incredible people who give their time, energy, and heart to uplift our communities.

To every volunteer who shows up, lends a hand, and makes a difference — ngā mihi nui. Your generosity strengthens Aotearoa more than you know. 💚

New research funded by an ANZMES Grant has been published by Kahurangi Dey and Dr Mona Jeffreys.  This study explores fo...
17/06/2026

New research funded by an ANZMES Grant has been published by Kahurangi Dey and Dr Mona Jeffreys.

This study explores food insecurity among people living with ME/CFS and/or Long Covid in Aotearoa New Zealand, finding that half of respondents experienced food insecurity in the past 12 months, with both financial pressures and physical limitations affecting access to adequate nutrition.

The authors highlight the need for ME/CFS and Long Covid to be recognised as disabilities within social support systems, and recommend that GPs routinely screen for food insecurity among people living with these conditions.

We’re sharing this research because it provides important evidence about the lived realities of ME/CFS in Aotearoa, and was made possible through ANZMES’ commitment to supporting high‑quality, locally led research.

🔗 Open access article:

Various chronic health conditions are associated with household vulnerability to food insecurity. There is limited evidence regarding the prevalence of food insecurity or the experiences and challe...

National Volunteer Week is here!  🥰💙Celebrating the heart of Aotearoa — our volunteers!14–20 June 2026, is National Volu...
16/06/2026

National Volunteer Week is here! 🥰💙

Celebrating the heart of Aotearoa — our volunteers!
14–20 June 2026, is National Volunteer Week, and we’re shouting out everyone who gives their time to make our communities stronger.

Thank you for your mahi. Thank you for your heart. 💛

This week is National Volunteer Week! 14th June - 20th June 2026We are so grateful for the chance this week provides to ...
14/06/2026

This week is National Volunteer Week! 14th June - 20th June 2026

We are so grateful for the chance this week provides to acknowledge the quiet, steadfast support of our volunteers, many of whom live with ME/CFS.
We at ANZMES truly appreciate you and everything you do!
Happy Volunteer week everyone! 👏🥰

This week is National Volunteer Week! 💙🥰A week which celebrates the collective contribution of the millions of volunteer...
13/06/2026

This week is National Volunteer Week! 💙🥰

A week which celebrates the collective contribution of the millions of volunteers who enrich lives, across Aotearoa New Zealand.

Volunteers are our unsung heroes. They deserve our recognition and thanks.
We wish to extend a heartfelt thank you to all of the volunteers and volunteer carers, working in the ME/CFS and Long COVID community, across New Zealand. 🙏💙

The Mayo Clinic study found people with long COVID and MECFS often aren’t getting treatments that target their main symp...
04/06/2026

The Mayo Clinic study found people with long COVID and MECFS often aren’t getting treatments that target their main symptoms.
Most are treated for sleep or pain—but not things like fatigue, brain fog, or energy crashes.

 U.S. prevalence of chronic fatigue syndrome (CFS), also known as myalgic encephalomyelitis (ME), a multisystem neurologic disease and debilitating chronic condition, averaged 1 million to 2.5 million before the COVID-19 pandemic. Incidence rates are now reported to be 15 times greater, related...

Emeritus Professor Warren Tate and ANZMES President Fiona Charlton will be interviewed 9am, Thursday 4th June on Radio O...
03/06/2026

Emeritus Professor Warren Tate and ANZMES President Fiona Charlton will be interviewed 9am, Thursday 4th June on Radio One 91FM regarding the recent study on health, labour market, and social service outcomes for people with ME on a health/disability benefit in NZ.

Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a debilitating chronic condition characterised by persistent fatigue and multisystem symptom

If you are wanting to make a submission on the Disability Support Services Bill, take a look at the below link to help y...
28/05/2026

If you are wanting to make a submission on the Disability Support Services Bill, take a look at the below link to help you with understanding, submission help guide etc

We have put together a list of tools and resources that are useful for making a submission on the DSS Bill. This includes submission cheat sheets, plain language summaries and writing workshops.

A big mihi to the people who provided the tools! ⭐

Check it out here: tinyurl.com/yc5x3je4

International ME/CFS Conference roundup: Setbacks and new hopes for therapeutic researchWritten by Martin RückerMay 26, ...
28/05/2026

International ME/CFS Conference roundup: Setbacks and new hopes for therapeutic research
Written by Martin Rücker
May 26, 2026
At the Berlin event, researchers presented initial results of new clinical trials. All of the controlled trials presented for the first time at the conference failed to meet goals.
https://thesicktimes.org/2026/05/26/international-me-cfs-conference-roundup-setbacks-and-new-hopes-for-therapeutic-research/

More than 50 experts from around the world presented the latest findings in basic and therapeutic research on myalgic encephalomyelitis (ME) and Long COVID at a conference in Berlin.

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43 Princes Street, Dunedin Central
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