Neuroendocrine Cancer New Zealand

30/03/2026

Before the tax year ends, making a gift means your donation can go even further.

Donate before 31 March and you can claim back one-third of your gift of $5 or more.

Give today while making the most of your support

Make a donation and help thousands of Kiwis living with neuroendocrine cancer (NETs) today. Neuroendocrince Cancer NZ is an organisation dedicated to revolutionising the way that neuroendocrine tumours are diagnosed and managed in New Zealand.

21/11/2025

Incase you missed it 👉 Surgery for Neuroendocrine Cancer Tumours

This week we had the pleasure of hosting Mr Jonathon Koea for our monthly Zoom-In session. He offered invaluable insights into surgical practice and patient care.

Click the link to view the recording:

Watch our latest information videos from recent Zoom-In sessions

02/11/2025

🌟 Marathons for Malcolm – His Spirit Lives On 🌟

An incredible effort from Sam Ge**er (pictured on the right, with his dad Ivor) who completed the Auckland Marathon while raising over $2k and awareness for Neuroendocrine Cancer NZ!

The spirit of Malcolm Legget continues to shine so brightly through Marathons for Malcolm, as our dedicated fundraisers keep lacing up and going the distance to make a difference.

Sam, your determination and heart truly embody Malcolm’s legacy, running not just for yourself, but for everyone affected by NET cancer. Thank you for carrying the torch with such energy!

Sam's donation page is still open - Please donate if you are in a position to and help him get to $2.5k:
https://aucklandmarathon2025.grassrootz.com/net-cancer-nz/sam-g?tab=donations

12/10/2025

⭐️ Shoutout to Linda Reynolds! ⭐️

2022 was a year Linda Reynolds won’t forget. After experiencing years of symptoms, including extreme weight loss, chronic diarrhoea, and pain, Linda was diagnosed with a rare neuroendocrine cancer — Zollinger Ellison syndrome — and underwent surgery to remove a gastrinoma from her pancreas. Thankfully, she didn’t require any follow-up treatment.

Linda’s journey has inspired her to give back. Recently, she completed the Dunedin Half-Marathon walk and has raised $1,000 for Neuroendocrine Cancer NZ 👏

Linda credits NECNZ for providing vital support throughout her journey — from clear, accessible information to webinars, Zoom coffee chats, and expert advice. She says the support is invaluable, not just for her, but for patients navigating more complex experiences with NETs.

💛 Thank you, Linda, for your incredible effort and generosity. Your fundraising will help us continue supporting patients and families across Aotearoa.

25/09/2025

WE NEED YOUR VOICE!

In 2019, the International Neuroendocrine Cancer Alliance (INCA) conducted an online self-reported survey among 2359 NET patients and 436 healthcare professionals (HCPs) from 68 countries across 6 continents, in 14 languages. This was the largest survey and compendium of data on NET diagnostics and care worldwide.

In 2025, INCA is launching the SCAN 2025 Global Survey to compare the results on the same key measurements from 2019 and map the status of NET diagnostics, treatments and care from the point of view of patients and healthcare professionals.

There are two separate questionnaires designed for NET patients/caregivers and for healthcare professionals.

TAKE THE SURVEY HERE: https://incalliance.org/scan2025/

21/09/2025

✨ We’re proud to share that our very own Michelle Sullivan represented Neuroendocrine Cancer NZ at the 13th INCA Global NET Patient Advocate Summit in Bulgaria.

This annual gathering brings together advocates from around the world to share knowledge, strengthen connections, and amplify the voices of people living with NETs. Michelle joined international colleagues to explore new ways of improving awareness, access to treatment, and support for our community here in New Zealand.

🌍 It’s inspiring to see our local advocacy connected to the global movement — working together to ensure that no NET patient feels alone, no matter where they live.

Ngā mihi nui Michelle, for carrying the NECNZ voice to the global stage 💛

✅Here you can read the detailed report on the 13th INCA Global NET Patient Advocate Summit: https://incalliance.org/inca-global-net-patient-advocate.../


Photos from: NET Cancer Day

14/09/2025

Congratulations Linda Reynolds! For weeks you've been training and preparing for this half marathon. We are all so impressed by your dedication and support — we’re so grateful to have you representing our cause and raising awareness and funds for NECNZ.

You are amazing! 👏💜

It was a great event, the sun shone, it stayed dry. There was just a pesky head wind as we came back up the Otago Peninsula. So pleased with a respectable 3 hours 12 mins 🥰

11/08/2025

NET EDUCATION DAY - Next Monday 18 August, Wellington

Meet our incredible MDM panel for next Monday’s Education Day in Wellington.

- Dr Ben Lawrence, Oncology
- Dr Jane Reeve, Radiology
- Avril Hull, NET Nurse Specialist
- Dr Sharon Pattison, Oncology
- Dr Stephanie Wood, Pathology
- Dr Rachelle Steyn, Nuclear Medicine
- Dr Ahmed Barazanchi, Surgical
- Dr Michelle Sullivan, CEO, NECNZ

We are so grateful to these experts for generously giving up their time to share their knowledge, answer questions, and support our NET community.

We are also pleased to include a 'Living Well With NETs' session run by Rebecca Osborne and Anna Sisley from Cancer Society New Zealand and Kelsang Pagma from the Kadampa Meditation Centre () that focuses on wellbeing, practical tips, and strategies to help people thrive beyond their diagnosis.

We hope you can join us in Wellington! For more information and to register, follow the link: https://www.neuroendocrinecancer.org.nz/net-education-day

06/08/2025

WATCH ON-DEMAND: MIBG and Alpha Therapies for Neuroendocrine Tumours

Catch up on our recent Zoom-In session with Dr Rachelle Steyn and Dr Andrew Henderson as they explore the use of MIBG (meta-iodobenzylguanidine) and alpha therapies in treating neuroendocrine tumours (NETs).

These informative sessions covers key topics including what the therapy process involves, and what to expect during and after treatment.

Click the link to watch the replays on our website anytime and deepen your understanding of these emerging treatment options for NETs.

https://www.neuroendocrinecancer.org.nz/net-videos