Sarcoma Foundation NZ

18/06/2026

This Saturday Charlie is officially shaving his head in support of Cam Suafoa and all those affected by sarcoma in Aotearoa 💛 We’re so grateful and proud of you Charlie! Thank you to everyone who has donated and shown their support.

Enjoy the last couple of days with your blonde locks!

Charlie is shaving his hair off to support Cameron Suafoa in his fight with Sarcoma. Fundraising for the Sarcoma Foundation NZ

15/06/2026

This is why we do what we do 💛

Last month we held our first Sarcoma Patient & Whānau Day and the feedback from those who attended has stayed with us.

Thank you to everyone who attended, shared their story and trusted us with their experience.

And to every clinician, researcher and volunteer who gave their time to make the day possible ~ this is the impact of your mahi.

We're just getting started 💛

11/06/2026

The Five Ways to Wellbeing 💛

Living with sarcoma can bring challenges that affect both our physical and emotional wellbeing. While wellbeing may look different from day to day, small actions can still make a meaningful difference.

At our recent Kōrero for Sarcoma Patient & Whānau Information Day, Anna Tizard, Advanced Clinician – Social Worker shared the Five Ways to Wellbeing - simple, evidence-based ways to support wellbeing through life's challenges.

Connect
Be Active
Take Notice
Keep Learning
Give

You don't need to do all five at once, or every day. Start small, do what feels manageable, and be kind to yourself along the way. 💛

11/06/2026

The people around us matter 💛

At our Kōrero for Sarcoma day, Tom, Hayley and Britt shared powerful reflections on the people who help carry us through the hardest moments.

From being open and honest with loved ones, to friends who continue to treat you like you, to partners who walk beside you every step of the way - support can take many forms.

No one should have to face sarcoma alone.

He waka eke noa - we're all in this together. 🎗️

04/06/2026

Tom learnt early on how important it is to be your own advocate, alongside having someone to advocate for you.

Ask the questions. Make the calls. Follow up when something doesn't feel right. And if you can, bring someone with you to appointments to help listen, take notes and support you.

Your concerns matter. Your questions matter. Your voice matters. 💛

28/05/2026

Meet Charlie 💛

Charlie has followed Cameron Suafoa's journey for years - watching him play for North Harbour, the Blues, the Māori All Blacks, and cheering him on every step of the way. Now Charlie wants to show up for Cam and our entire sarcoma community in the most Charlie way possible.

So he's shaving his head.

As his mum Nicole put it: "if you know Charlie and how proud he is of his blonde mop, it's a big deal."

Charlie is fundraising for the Sarcoma Foundation NZ through Givealittle, with every dollar going directly to support our community. In just 4 days 20 generous donors have already helped him raise $445 of his $500 goal - but let's help him smash it!

To donate, visit the link below or search Charlie's Sarcoma Foundation NZ Fundraiser on Givealittle.

https://givealittle.co.nz/cause/charlies-sarcoma-foundation-nz-fundraiser

Thank you Charlie, you’re an absolute legend! 💛

25/05/2026

One of the outstanding questions from our Kōrero for Sarcoma Patient & Whānau Information Day 💛

“Are there any foods that may help reduce the risk of recurrence?”

Clinical Dietitian Caitlin Davenport shared some general healthy eating guidance around foods and dietary habits that may support overall health and wellbeing.

And one important reminder we loved from Caitlin:

“Food is not just about nourishment - it’s also about joy, connection and shared moments.” 💛

More to come from Caitlin's presentation at Kōrero for Sarcoma!

24/05/2026

A huge thank you to Dr Tiffany Brown for being part of our Kōrero for Sarcoma Patient & Whānau Information Day 💛

Tiffany brought such a grounded and supportive presence to the day. With experience across mental health services and supporting individuals and whānau through complex journeys, she shared not only her knowledge and tools as a Clinical Psychologist, but also took the time to support patients and whānau throughout the event and thoughtfully guide our afternoon panel discussions.

Some of the conversations shared throughout the day were really honest, emotional and vulnerable and Tiffany helped create a space where people felt safe and supported.

Thank you Tiffany for everything you brought to our sarcoma community 🎗️

13/05/2026

Kia ora e te whānau 💛

We are still feeling the warmth from our Kōrero for Sarcoma - Patient & Whānau Information and Networking Day. With around 50 of you coming through the door throughout the day, we just wanted to say a massive thank you.

To our incredible clinicians - thank you for showing up, sharing your knowledge and taking the time to answer every question our patients and whānau brought to the room. Your support meant so much to our community.

To everyone who stayed for lunch and found their people - we were so happy to see connections being made. So many of you told us the networking time was one of the most valuable parts of the day.

To our patient and whānau panel - you are the heart of this community. Hearing your real stories, advice and your lived experience was described by so many as the most powerful part of the day. Thank you for your courage and your generosity in sharing.

And to everyone who came through the door - whether you left with new knowledge, a new connection, or simply feeling a little less alone - that is exactly why we do this.

There is so much more to share from the day! We will be bringing that to you in the weeks to come, so stay tuned 💛

He waka eke noa - we’re all in this together🎗️

08/05/2026

Thank you to everyone who joined us for our very first Patient & Whānau Information & Networking Day 💛

It was special to see our sarcoma community to come together to share, learn and connect!

More to come soon from the day, however in the meantime, we would really appreciate if attendees could complete our feedback form below.

Your feedback helps us understand how patients and whānau experienced the day, and how we can continue to grow and support our sarcoma community moving forward.

Thank you for joining us today. We would really appreciate your feedback to help us understand what was helpful, what could be improved, and how we can better support sarcoma patients and whānau in the future. This form is optional and can be completed anonymously.