Stichting Care4BrittleBones, Het Kerkehout 3a, The Hague (2026)

Bevorderen van wetenschappelijk onderzoek naar Osteogenesis Imperfecta (OI) om de kwaliteit van leven van mensen met OI te verbeteren.

17/06/2026

𝗝𝗼𝗶𝗻 𝘁𝗵𝗲 𝗖𝗮𝗿𝗲4𝗕𝗿𝗶𝘁𝘁𝗹𝗲𝗕𝗼𝗻𝗲𝘀 𝗙𝗼𝘂𝗻𝗱𝗮𝘁𝗶𝗼𝗻!

✅ Would you like to contribute to improving the quality of life for people living with Osteogenesis Imperfecta (OI)?
✅ Do you want to learn what it takes to contribute to a high-impact international charity?
✅ Would you enjoy working with a dedicated team of volunteers across the world?
✅ Do you believe that innovation, research, and collaboration can create better solutions for people with OI?

If this sounds like you, we would love to meet you!

𝗛𝗼𝘄 𝘄𝗲 𝘄𝗼𝗿𝗸
Care4BrittleBones is driven by a combination of a Core Team of volunteers and a formal Board.
We operate as one collaborative team, working closely together on strategy, operations, and ex*****on.
The Board holds the final statutory responsibility, while day-to-day activities are powered by a passionate group of volunteers across different domains.

𝗪𝗵𝗮𝘁 𝘄𝗲 𝗮𝗿𝗲 𝗹𝗼𝗼𝗸𝗶𝗻𝗴 𝗳𝗼𝗿
Across our roles, we are looking for people who:
- Are motivated to make a real difference for people living with OI
- Take initiative and ownership in their work
- Are comfortable working independently in a remote, international setting
- Communicate clearly and effectively in English
- Enjoy working in a collaborative and mission-driven environment
- Are willing to commit time on a regular and reliable basis
- Bring relevant experience or a strong willingness to learn and grow

𝗪𝗵𝗮𝘁 𝘄𝗲 𝗰𝗮𝗻 𝗼𝗳𝗳𝗲𝗿
When you join Care4BrittleBones, you can expect:
1. A chance to create meaningful impact for the OI Community around the world.
2. A supportive, passionate, and driven team
3. Flexible, remote collaboration that fits your schedule
4. Opportunities to develop new skills and gain hands-on experience.
5. Exposure to international work across research, healthcare, and OI community around the world
6. A role where your contribution is visible and truly valued. We like to build on YOUR talents and help you grow.

𝗘𝘅𝗽𝗹𝗼𝗿𝗲 𝗼𝘂𝗿 𝗰𝘂𝗿𝗿𝗲𝗻𝘁 𝗼𝗽𝗽𝗼𝗿𝘁𝘂𝗻𝗶𝘁𝗶𝗲𝘀
We currently have various vacancies:
1. Communications Board member
2. Research Board member
3. Fundraising Coreteam member

03/06/2026

Today is Global Running Day

Today we celebrate every step, every mile, and every person taking on a running challenge! Whether you’re joining a fun run, marathon, charity walk, or community event, your effort can make a real difference.

If you’re planning to take part in an event this year, why not consider raising funds for Care4BrittleBones? Your support can help raise awareness and provide support for people living with Osteogenesis Imperfecta, also known as Brittle Bone Disease.
Together, we can turn every mile into hope, awareness, and support for families affected by OI.

Contact us for more information.

28/05/2026

Did you know?

Osteogenesis Imperfecta (OI), also known as Brittle Bone Disease, is caused by a lack of collagen or faulty collagen in the body.

Collagen is an important protein that helps give bones their strength and structure. When the body cannot produce enough healthy collagen, bones become more fragile and can break more easily.

But OI affects more than just bones — collagen is also found in muscles, teeth, skin, ligaments, and hearing structures, which is why people living with OI can face many different challenges.

Raising awareness helps people better understand life with Brittle Bone Disease and supports those affected every day.

20/05/2026

Did you know?

Osteogenesis Imperfecta is often called “Brittle Bone Disease” because the condition makes bones much more fragile and easier to break than normal.

The word “brittle” describes how delicate the bones can become, sometimes breaking from minor falls, simple movements, or even without a clear injury. This happens because the body doesn’t produce collagen properly — an important protein that helps keep bones strong.

People living with OI show incredible strength and resilience every day, despite the challenges the condition can bring.

12/05/2026

Project spotlight: Basics of Adult Health in OI

As people living with Osteogenesis Imperfecta (OI) are living longer, a new challenge is emerging. Adult-specific healthcare support is still limited in many parts of the world. In some regions, there’s little to no guidance or infrastructure to meet these growing needs.

We’re working to change that.

Our new global project, “Basics of Adult Health”, aims to bring together expert knowledge and real-life experiences from the OI community to create practical, accessible guidance for adult care.

📌 What this means:
✔️ Best-practice recommendations informed by evidence and expert insight
✔️ Support for healthcare professionals and individuals, families, and caregivers
✔️ Guidance on key areas like transition into adult care
✔️ A focus on regions where resources and infrastructure are limited

This is about building something meaningful, inclusive, and globally relevant. So that no adult living with OI is left without guidance or support.

We believe the best solutions come from collaboration. Stay tuned for ways to get involved and help shape this important resource.

06/05/2026

Today is Wishbone Day

On this international day for Osteogenesis Imperfecta (OI), we come together to raise awareness, celebrate strength, and support those living with brittle bone conditions.

OI may be rare, but the courage, resilience, and determination within this community are extraordinary. Today is about shining a light, sharing stories, and standing together in support.

💛 Wear yellow
💛 Share your story
💛 Start a fundraiser
💛 Help spread awareness

Every voice matters. Every action counts.

Let’s make today louder, brighter, and full of hope. Together, we can build a stronger future for everyone affected by OI.

Adres

Het Kerkehout 3a
The Hague
2245XM

Telefoon

+31652096361

Website

https://linktr.ee/care4bb

Meldingen

Wees de eerste die het weet en laat ons u een e-mail sturen wanneer Stichting Care4BrittleBones nieuws en promoties plaatst. Uw e-mailadres wordt niet voor andere doeleinden gebruikt en u kunt zich op elk gewenst moment afmelden.

Contact De Organisatie

Stuur een bericht naar Stichting Care4BrittleBones:

Stichting Care4BrittleBones