Childhood Cancer International

Childhood Cancer International CCI believes that every child with cancer deserves access to best possible treatment and medical care

Childhood Cancer International

The experience of a child undergoing cancer treatment can be traumatic, distressing and isolating for parents and siblings as well as the patient. The impact on the whole family has been well understood by health professionals for many years, as has, the medical needs of the child, but also the necessity to provide services which look after the emotional and social

needs of the family of the child. Parent support groups have been formed over the past thirty years to provide information and practical, emotional and financial support for families to enable them to cope with the difficulties associated with lengthy treatment – often many miles from home. The International Confederation of Childhood Cancer Parent Organizations – ICCCPO – was set up in 1994 and is an umbrella organisation currently representing 177 parent organisations in 90 countries (28/11/2014). In 2014 ICCCPO has changed the name of the organization into “CHILDHOOD CANCER INTERNATIONAL (CCI)”.

21/08/2026

💛🌍 Let’s turn the world gold together this September!

CCI and SIOP are getting ready for Gold September 2026.
Campaign toolkit and participation details coming next Monday! 👀💛

International Society of Paediatric Oncology - SIOP

⏰ Late Registration closes today!This is your final opportunity to secure your spot at the Late Registration rate before...
18/08/2026

⏰ Late Registration closes today!

This is your final opportunity to secure your spot at the Late Registration rate before it closes on Tuesday, 18 August, for the 32nd CCI Annual Conference in San Antonio.

Join survivors, parents, advocates, healthcare professionals, and member organisations from around the world for four days of learning, collaboration, and connection.

📍 San Antonio, Texas�📅 15–18 September 2026�
⏳ Late Registration closes on Tuesday, 18 August.�
🔗 Register now: https://siop-congress.org/register/

Secure your spot before the rate increases. We look forward to seeing you in San Antonio! 💛

🙌 Welcoming our Board of TrusteesThe strength of Childhood Cancer International lies not only in its global community, b...
11/08/2026

🙌 Welcoming our Board of Trustees

The strength of Childhood Cancer International lies not only in its global community, but also in the dedicated leaders who help guide its mission and strategic direction.
This year, we are delighted to welcome two new members to CCI's Board of Trustees and congratulate 🇬🇷 Georgia Kokkinou on her re-election for another three-year term.

Joining the Board are:
🇿🇦 Eugene Subban (CHOC Childhood Cancer Foundation, South Africa)
🇺🇸 Ruth Hoffman (American Childhood Cancer Organization – ACCO, United States)

Together with the rest of CCI's Board of Trustees, they bring diverse expertise, regional perspectives, and a shared commitment to advancing equitable care for children and adolescents with cancer, survivors, and their families worldwide.

👉 Swipe through the graphics to meet each of our Board members and learn more about the people helping guide CCI's mission.

🌍 Welcome Our New Members On 18 July 2026, Childhood Cancer International held its Annual General Assembly (AGA), bringi...
10/08/2026

🌍 Welcome Our New Members

On 18 July 2026, Childhood Cancer International held its Annual General Assembly (AGA), bringing our global community together to reflect on the past year and shape the future of our organisation.
We were delighted to welcome six new organisations to the CCI network.

Please join us in celebrating:

🇬🇭 Little Steps Foundation, KATH
🇸🇱 Cancer Sierra Leone
🇱🇻 Latvian Children's Oncology Foundation
🇨🇱 Fundación Vivir más Feliz
🇨🇴 Fundación Rafael SanadoporDios
🇲🇽 Dr. Sonrisas

Together, these organisations strengthen our shared commitment to improving the lives of children and adolescents with cancer and their families around the world.

With these new additions, CCI now brings together 222 member organisations across 106 countries—a growing global community united by a common purpose.

💛 Welcome to the CCI family! We look forward to working together to create lasting impact.

🌍 Every childhood cancer survivor has a story. Together, those stories can shape the future of survivorship.To improve s...
05/08/2026

🌍 Every childhood cancer survivor has a story. Together, those stories can shape the future of survivorship.

To improve survivorship care worldwide, we need to better understand the realities survivors face long after treatment ends. Yet globally comparable data remains limited.

That’s why SurNet has launched a global survey to capture the experiences of childhood cancer survivors from every region of the world.

By participating, survivors can help highlight:

💛 The challenges they continue to face
🤝 The support they need
📢 The changes that can strengthen care, advocacy, and policy for future generations

📅 The survey is open until the end of August.
🕒 It takes around 25 minutes to complete.
👉🏻 Take the survey here: https://iscteiul.co1.qualtrics.com/jfe/form/SV_1H3OeABxajCO3Sm?fbclid=IwY2xjawTgd71leHRuA2FlbQIxMABzcnRjBmFwcF9pZBAyMjIwMzkxNzg4MjAwODkyAAEeNLirt-sQgxk5H6d1wc2g4vzaN5SASCyaUrTxEYvFQI7ymdTBL4QcvCMbotA_aem_4DUPvHEoqFUWzTA-binSdg

If you work with or know childhood cancer survivors, please help spread the word. Every response brings us closer to building a stronger, more inclusive future for survivors everywhere.

🌻 “Today I’m a psychologist.”Seven years after being diagnosed with Ewing sarcoma, Raquel López is now a psychologist an...
01/08/2026

🌻 “Today I’m a psychologist.”

Seven years after being diagnosed with Ewing sarcoma, Raquel López is now a psychologist and is continuing her studies to work in a public hospital, supporting others through their own healthcare journeys.

Her story reminds us that cancer is only one chapter—not the whole story.

This Sarcoma Awareness Month, we celebrate survivors like Raquel, whose experiences inspire hope and show that life after cancer can be filled with purpose, growth, and new opportunities.

💛 Thank you, Raquel, for reminding us that cancer does not define your future.

Twenty years after his last relapse, Pablo Allard has transformed his own experience into a lifelong commitment to suppo...
31/07/2026

Twenty years after his last relapse, Pablo Allard has transformed his own experience into a lifelong commitment to supporting others.

Diagnosed with clear cell sarcoma of the kidney at the age of two, Pablo spent much of his early childhood facing repeated relapses. Today, he is a psycho-oncologist, supports adolescents with cancer at Fundación Camino, co-founded Luz de Esperanza—Chile's national network of childhood cancer survivors—and contributes to global survivorship initiatives through St. Jude's Together Program and SurNet.

His story is a powerful reminder that childhood cancer does not define a person's future.

"What came so close to taking my life so many times now gives my life purpose and meaning, and motivates me to keep working for those who need it most."

🌻 Every survivor's story brings hope, strengthens our community, and reminds us why awareness matters.

🌻 “What once seemed impossible has become a source of joy, strength, and gratitude.”Twenty-five years after treatment fo...
30/07/2026

🌻 “What once seemed impossible has become a source of joy, strength, and gratitude.”

Twenty-five years after treatment for osteosarcoma, Mary Grace “Ging” Aclan is exploring the underwater world through freediving and building endurance through swimming—experiences she never imagined would be possible during childhood cancer treatment.
Today, every breath, every stroke, and every moment in the water reminds her of how far she has come.

Her journey is a powerful reminder that cancer does not define what is possible.

💛 Thank you, Ging, for sharing your inspiring story with our community.

🌻 July is Sarcoma Awareness Month.Sarcoma is a rare cancer, but awareness can make a life-changing difference.Because sa...
30/07/2026

🌻 July is Sarcoma Awareness Month.

Sarcoma is a rare cancer, but awareness can make a life-changing difference.

Because sarcoma has many different subtypes, it can be difficult to recognise and diagnose. Earlier diagnosis, access to specialist care, and multidisciplinary treatment can improve outcomes for people affected by the disease.
Behind every sarcoma diagnosis is a person, a journey, and a future still waiting to be written. The stories we share remind us that cancer does not define what is possible.

Every conversation raises awareness. Every story inspires hope.

💛 Together, let’s shine a light on sarcoma and support everyone affected.

"People often think surviving cancer is crossing the finish line. But I think of it more like standing at the start of a...
28/07/2026

"People often think surviving cancer is crossing the finish line. But I think of it more like standing at the start of a completely different race… I wasn't just healing from cancer; I was getting to know myself all over again."

Survivorship is so much more than the end of treatment. It is about rebuilding, rediscovering yourself, navigating vulnerability, overcoming stigma, and finding your place in a life forever changed by cancer.

In this inspiring keynote from our Empowered for Life: Education, Work, Wellbeing & Independence After Childhood Cancer webinar, Wadzanayi Mayiseni shares a deeply personal perspective on survivorship - touching on recovery, identity, survivor's guilt, loneliness, resilience, and the journey towards living, not just surviving.

We invite you to watch the full talk and reflect on what survivorship truly means - not only for those who have experienced childhood or adolescent cancer, but also for the families, healthcare professionals, educators, employers, and communities who walk alongside them.

As July marks Sarcoma Awareness Month, we also want to celebrate survivors. While this conversation is inspired in part by the sarcoma community, its message resonates with survivors of all childhood and adolescent cancers.

Many survivors are not only living beyond cancer - they are advocates, researchers, healthcare professionals, leaders, artists, parents, mentors, and changemakers. They remind us that survivorship is not defined by what happened to them, but by the lives they continue to build and the impact they make.

🌻 The sunflower has become a symbol of sarcoma awareness and hope. Today, we share it in honour of every survivor and every journey beyond cancer.

Watch the keynote and join us in celebrating the strength, courage, and voices of survivors: https://youtu.be/OzsdBDwmRDg

Keynote Speech by Wadzanayi MayiseniThis keynote was delivered as...

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