Euracan

EURACAN is the European Refrence Network (ERN) for rare adult solid cancers: 1 of the 24 ERNs working on a range of thematic issues.

EURACAN connects patients who have rare adult solid cancers to expert health care centres across Europe
We aim to tackle these complex and rare cancers that require highly specialised treatment and concentrated knowledge and resources. Patients: https://euracan.eu/patients/how-euracan-helps-you/
Health professionals: https://euracan.eu/health-professionals/how-euracan-helps-health-professionals/

13/04/2026

From 12–14 March 2026, the international sarcoma and rare cancercommunity gathered in Lugano for the Sarcoma and Rare CancersCongress 2026, one of the leading scientific meetings dedicated to theseoften under-represented tumour types.

The collaboration between EURACAN and ESMO continues to play a key role instrengthening the European ecosystem for rare cancer care and research. Thecongress provides a valuable platform for EURACAN clinicians and researchers toengage with the broader oncology community and exchange expertise withcolleagues from across Europe and beyond.

Events such as the ESMO Sarcoma and Rare Cancers Congress underline theimportance of collaboration across networks, institutions, and disciplines. ForEURACAN, participation in this congress reinforces its mission to strengthencooperation among specialised centres, accelerate research progress, andsupport the development of evidence-based guidelines for rare cancers.

13/02/2026

📢 Call to Action for the rare cancer & rare disease community

We invite all ERN members to endorse and sign the Declaration on a European Innovation and Care Ecosystem for Rare and Complex Diseases, launched during the High Level Meeting for Rare and Complex Diseases (HLM Rare) in December 2025.

This joint political and strategic commitment — developed with patients, healthcare professionals, ERNs, academia and industry — sets out 8 Priority Actions to accelerate progress, improve access to diagnosis and treatment, strengthen clinical research and infrastructure, and secure sustainable funding for ERNs in the 2028–2034 EU framework.

By signing, you help:
• Drive a comprehensive EU Action Plan on Rare Diseases
• Strengthen recognition and long-term sustainability of ERNs
• Amplify our collective voice in EU policy and funding priorities
‍
Over 50 organisations have already joined — now it’s our turn to make an impact.
Sign the Declaration via the link in bio and indicate your ERN affiliation (or “not applicable”).

Thank you for your continued commitment to advancing care for people living with rare and complex diseases.

23/12/2025

Season’s Greetings from EURACAN ✨

As the year comes to a close, we would like to thank all our members, partners, healthcare professionals, patient representatives, and collaborators for their engagement and commitment to improving care for patients with rare adult solid cancers across Europe.
We wish you a Merry Christmas and a joyful holiday season, and we look forward to continuing our collaboration in the year ahead.

Warm regards,
The EURACAN Coordination Team

01/12/2025

The European Commission has published the first-ever Continuous Monitoring Report for the ERNs, confirming a 160% increase in new patients referred to ERN centres between 2018 and 2024 — clear evidence of how this EU infrastructure strengthens Europe’s health capacity and resilience. The report presents detailed indicators across seven core areas, including clinical activity, guidelines, registries, training and cross-border collaboration, reflecting the 2023 & 2024 monitoring cycles.

ERNs connect 1,600+ specialised units in 375 hospitals, creating a single pool of rare disease expertise no country could build alone. An estimated 30 million EU citizens are living with a rare disease. That's a huge challenge, and ERNs are working together to make sure everyone gets the specialised care they need.

The report documents over 2,100 virtual CPMS consultations, delivering expert, multidisciplinary advice across borders so patients can access specialist input without the need to travel.

ERNs, demonstrate the power of European cooperation — strengthening health resilience, supporting clinical excellence, and improving access to expertise for rare disease patients across all Member States.

Read the report and learn more about how ERNs — and the clinicians and multidisciplinary teams who power them — support patients across Europe.

Link in bio

03/11/2025

Last week, EURACAN held a high-level brainstorming session that brought together leading European experts to exchange ideas and define strategic directions for advancing care and research in rare cancers.

The meeting fostered in-depth discussions across several priority areas:

-Artificial Intelligence (AI): exploring its role in improving diagnosis, decision support, and research integration.
- Clinical and Translational Research: bridging innovation with patient care to accelerate the development of effective therapies.
- Data Research: enhancing data sharing, quality, and interoperability to strengthen evidence generation.
- Development of Guidelines – Expert vs. Evidence: examining the balance between expert consensus and data-driven recommendations.
- Funding Opportunities, Partnerships, and Policies: identifying mechanisms to support sustainable collaboration across Europe.
- Rare Cancer Forum: reinforcing exchange and multi-stakeholder engagement.

The session underscored EURACAN’s commitment to fostering collaboration and innovation in the field of rare cancers. By bringing together multidisciplinary expertise from across Europe, EURACAN continues to strengthen the collective effort to improve outcomes for patients with rare cancers.

03/10/2025

💙 Have your say in NET care!

Join SCAN 2025 – the global survey for patients & healthcare professionals on the challenges in access to diagnostics, treatments, and care for neuroendocrine tumours (NETs).

🌍 Available in 15 languages
🗓️ Open until 30 November 2025
👉 Take part here: www.incalliance.org/scan2025/

Your voice matters. Together, we can drive change in healthcare systems and give strength to the NET community worldwide.

01/09/2025

🌍 The 17th Monegasque Cancer Congress will take place from 27–30 January 2026 at the Grimaldi Forum, Monaco.

This multidisciplinary and French-speaking event will bring together 1,500+ healthcare professionals to share knowledge and discuss the latest advances in oncology, haematology, and pharmacy.

As in every edition, the Michel Hery Prize will honor three researchers or clinicians whose work contributes significantly to the field of oncology.

📅 Applications are open until 21 November 2025

📌 More information & registration: biennalecancerologie.org

See you in Monaco for four days of collaboration, innovation, and scientific exchange in the fight against cancer.

09/07/2025

✨ EURACAN Exchange Programme: Empowering Collaboration in Rare Cancer Care

Rare adult solid cancers are complex and challenging to treat, requiring expert knowledge and strong cooperation across borders. The EURACAN Exchange Programme was created to foster this vital collaboration by enabling healthcare professionals and researchers across Europe to share expertise, improve patient care, and advance research.

Today, we are excited to share a testimony from one of our recent participants, Dr Sinan Emre Güler from the LMU Klinikum München who took part in this learning and networking opportunity at The Royal Marsden NHS Foundation Trust.

"Through the EURACAN exchange program, I had the privilege of completing a two-week observership at the Royal Marsden Hospital in London, working with the Sarcoma Unit.

This experience provided an in-depth view of the multidisciplinary management of sarcomas, from initial diagnosis to complex treatment planning. I attended outpatient clinics, MDT meetings, and ward rounds, gaining valuable insight into the hospital’s collaborative and patient-centered approach.

A highlight of the observership was the opportunity to witness the hospital’s active role in clinical research. I could observ several ongoing clinical trials and saw firsthand how trial participation is integrated into routine care, offering patients early access to innovative therapies. This close connection between research and practice was truly inspiring and underscored the hospital’s leadership in rare cancer care.

The professionalism, openness, and expertise of the team created a welcoming and enriching environment. This observership significantly deepened my understanding of sarcoma treatment and reinforced the importance of cross-border collaboration in managing rare cancers.

I am sincerely grateful to EURACAN and the Royal Marsden for this exceptional opportunity and highly recommend the program to colleagues across Europe."

23/06/2025

🩺 CPMS 2.0 Mobile Apps Are Now Available! 📱

We’re excited to announce that the CPMS 2.0 mobile applications are now live and available to the general public on both the Apple App Store and Google Play Store!

The Clinical Patient Management System 2.0 (CPMS 2.0) is a secure, collaborative platform that allows healthcare professionals across the EU to discuss rare and complex patient cases and organise virtual multidisciplinary tumour boards (MTBs) — all in one place.

With the launch of the mobile apps, CPMS 2.0 is now even more accessible:
✅ Consult on patient cases anytime
✅ Organise and join MTBs on the go
✅ Improved performance and user experience

This is a major step forward in supporting cross-border healthcare collaboration and delivering better outcomes for patients with rare cancers and rare diseases. Supported and funded by the European Commission 👏

📲 Download the app today on the Android and Apple stores!

10/06/2025

🤝 We are proud to announce a new collaboration between (Sharing Progress in Cancer Care) and EURACAN, the European Refrence Network (ERN) for rare adult solid cancers.

Through a Memorandum of Understanding signed in May 2025, this partnership sets the stage for joint educational initiatives, mutual exchange, and greater visibility around rare cancers in Europe.
Together, we aim to advance progress where it is most needed. 💪

29/05/2025

Shaping the future of ERNs in Rome! 🌐❤️

EURACAN was honored to be part of the 22nd Coordination Group Meeting in Rome last week. By coming together, we are adapting to new opportunities and driving our network forward. The planning was intense, but every moment was worth it! 💪

Thank you to the ERN Chair Coordinator and DG SANTE team for this perfect organisation 🙏🇪🇺

Adres

Amsterdam

Website

https://linktr.ee/euracan

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