The TAPS Support Foundation - Twin Anemia Polycythemia Sequence

The TAPS Support Foundation - Twin Anemia Polycythemia Sequence Not-for-profit organisation dedicated to raising the profile of Twin Anemia Polycythemia Sequence an Not all twins are equal.

The complications associated with monochorionic twins inspire our foundation to raise awareness of the differences in twin pregnancies and advocate for routine, standardized screening protocols worldwide. We want to bring positive change to the way twins are diagnosed, cared for, and improve their long-term outcomes. This starts with raising awareness of Twin Anemia Polycythemia Sequence, advocati

ng for policy changes worldwide, and creating meaningful dialogues between politicians, researchers, doctors, and TAPS patients. We want the world to know that having twins isn’t always black and white.

“There is NO diagnosis of twins. There are only monochorionic twins or dichorionic twins. This diagnosis should be written in capital red letters across the top of the patient’s chart.” - Professor Kypros Nicolaides

Our inspiration comes from the quote above, from Professor Nicolaides, and a subsequent paper by Dr. Anthony Johnson, and Dr. Kenneth Moise, who ended with the powerful statement that “The diagnosis of “twins” is no longer acceptable.”

https://www.ajog.org/article/S0002-9378(09)02244-3/fulltext

We are going to revolutionize the way multiple pregnancies are diagnosed, treated, and followed up through research, education, advocacy, connections, and hope. Visit our advocacy website at www.tapssupport.com, and our foundation page at www.tapssupportfoundation.com for more information.

05/06/2026

Monochorionic twin complications can be difficult to explain quickly, especially when different people need different levels of detail.

That’s why we keep clear, shareable pages on the website. Some families share them with a GP or midwife. Some share them with a paediatric team. Some share them with school, or with family members who want to understand what follow-up may involve.

Conversations are better when everyone is starting with the same information.

Visit www.tapssupport.com

| Ask Our CommunityHave a question you haven’t had the chance to ask yet?This is a space to ask our community and hear...
02/06/2026

| Ask Our Community

Have a question you haven’t had the chance to ask yet?

This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. People come at this from different situations and different stages, and sometimes it helps to hear how someone else navigated it.

Questions, practical stuff, and the day-to-day reality are all welcome. If you’re comfortable, share your question in the comments.

So what’s on your mind? You might not be the only person wondering.

(Questions can be also DM'd or emailed to [email protected])

Today is Placenta Health Awareness Day. Our friends at Measure the Placenta are pushing for a vital change in prenatal ...
01/06/2026

Today is Placenta Health Awareness Day.

Our friends at Measure the Placenta are pushing for a vital change in prenatal care, making placental size a routine part of pregnancy scans to identify potential complications early.

WE're supporting this, because when twins share a placenta, they are connected by a shared blood supply. Standard, routine screening is how this is monitored, and helps establish the right care pathways.

Learm nore about their work here: https://sbee.link/9admgetkh8



Illustration by Gautier Scientific Illustration

We teamed up with Nerissa Muijs (Miss Neriss) to create something small for TAPS families: Reti Koalacyte, a free croche...
01/06/2026

We teamed up with Nerissa Muijs (Miss Neriss) to create something small for TAPS families: Reti Koalacyte, a free crochet “lovie” pattern. It’s a simple little koala, and the pattern is available in both US and UK versions.

The name has a reason behind it too. “Reti” is a nod to reticulocytes, a word that can come up in blood tests after birth after TAPS, so it also works as a memory cue when you’re trying to keep track of new medical terms. There’s also a discount code on the page for friends of the foundation for anyone buying Miss Neriss patterns on Ravelry.

Visit the website to download the free pattern and find the discount code: https://www.stichtingtapssupport.com/meet-reti-koalacyte/

On Friday our founder Stephanie caught up with Oleksandra Balyasna from Early Birds Ukraine. They talked about multiple ...
31/05/2026

On Friday our founder Stephanie caught up with Oleksandra Balyasna from Early Birds Ukraine. They talked about multiple births, particularly pregnancies affected by complications such as TTTS, TAPS and sFGR.

They also went through current screening guidelines in Ukraine, and where there is room to bring in newer evidence and updates in screening, including for TAPS.
There was also a discussion about what healthcare in Ukraine looks like in a country under crisis. This does affect fetal therapy services, and the access to up-to-date information, training and equipment needed to support families facing these complex pregnancies.

It was identified there is a need to make sure healthcare professionals and families continue to have access to current information, education and support in these circumstances.

Together, we are coming up with ideas on how we can help with this, and support our community in Ukraine better, but we are also looking at several ways that the wider community can help us move towards this goal. If anyone has ideas, support, or funding routes that could help, we would really appreciate hearing from you as we work on our plans.



@Асоціація батьків передчасно народжених дітей "Ранні пташки"

29/05/2026

The website is where TAPS Support keeps its most reliable, complete information and resources in one place.

It’s used by families and professionals because it’s written to support real-world care conversations: clear pages, consistent wording, and information that can be shared without rewriting it for each audience. It's a patient-led reference point you can use and share.

Visit www.tapssupport.com

| Ask Our CommunityHave a question you haven’t had the chance to ask yet?This is a space to ask our community and hear...
26/05/2026

| Ask Our Community

Have a question you haven’t had the chance to ask yet?

This is a space to ask our community and hear from others with lived experience of monochorionic twin complications. People come at this from different situations and different stages, and sometimes it helps to hear how someone else navigated it.

Questions, practical stuff, and the day-to-day reality are all welcome. If you’re comfortable, share your question in the comments.

So what’s on your mind? You might not be the only person wondering.

(Questions can be also DM'd or emailed to [email protected])

In monochorionic twin care, families may hear “clinical trial” or “research study” early on, sometimes at the same time ...
25/05/2026

In monochorionic twin care, families may hear “clinical trial” or “research study” early on, sometimes at the same time as they are trying to understand everything else. This page puts clear meaning behind those words. It explains what clinical trials are, how they differ from other kinds of research, and the types of studies families may be invited to take part in.

It also sets out what should be in place before anyone joins a trial: review and approval processes, ethics oversight, and what informed consent is meant to look like in practice. It spells out participant rights, including that participation is voluntary and that people can withdraw. The page includes a practical list of questions families can use when a trial is being discussed, as well as a downloadable version of the information.

Visit the website for more information. A free downloadable guide is available on the page: https://www.tapssupport.com/what-are-clinical-trials/

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