21/03/2026
It took me years before I could understand what Down Syndrome really is. I've always heard "extra chromosome" but couldn't comprehend the main concept.
In recent years, I've come to understand that this is so for many people, thus, the reason for this write up.
For many people, the idea of an “extra chromosome” can sound complex or confusing, but it can be explained in a simple and relatable way.
Here is it!
Every human being is made up of tiny cells, and inside these cells are chromosomes that carry the information that shapes how we grow and develop.
Typically, people have 46 chromosomes, but individuals with Down syndrome have one extra copy of chromosome 21, making a total of 47. This is why the condition is also known as Trisomy 21.
This extra chromosome may influence how a person learns, develops, and sometimes how their body functions, but it is important to understand that Down syndrome is not a disease or an illness.
It is a genetic condition, and it does not DEFINE a person’s value, identity, or potential.
Will the condition influence it? Yes! Just as the environmental, family and educational background of every child could INFLUENCE their value, identity or potential, but does not DEFINE it.
Children and adults with Down syndrome have diverse personalities, interests, and abilities. Like everyone else, they learn at their own pace, build relationships, and pursue their dreams when given the right opportunities and support.
Unfortunately, many misconceptions still exist, often leading to stigma or low expectations. In reality, individuals with Down syndrome can thrive in inclusive environments.
With access to education, healthcare, and supportive networks, they can develop skills, express creativity, participate in sports, and contribute meaningfully to their communities and workplaces.
Their lives are not defined by limitations but by their strengths, resilience, and individuality.
Creating a more inclusive society begins with a shift in mindset. Using respectful, person-first language acknowledges their dignity and humanity. Showing acceptance, support to families, and advocating for inclusion in schools and workplaces are simple but powerful steps individuals can take.
At a broader level, societies and governments have a responsibility to ensure equal access to quality education, healthcare, and social services, while also promoting policies that protect the rights of persons with disabilities and reduce discrimination.
Raising awareness is not just about understanding a condition; it is about changing attitudes and creating opportunities. People with Down syndrome bring unique perspectives, warmth, and value to the world. They are not defined by an extra chromosome, but by their abilities, potential, and the richness they add to our communities.
I am Oyedemi Oluwatobi Tomiwa, and this is what we do at ABLE VOICE.
National Commission for Persons with Disabilities- NCPWD, Nigeria
It took me years before I could understand what Down Syndrome really is. I've always heard "extra chromosome" but couldn't comprehend the main concept. In recent years, I've come to understand that this is so for many people, thus, the reason for this write up. For many people, the idea of an “ext...