Sickle CELL Matters

01/11/2025

Some battles aren’t visible, but they’re real.

For many living with sickle cell, every day is a quiet act of bravery.
There are mornings filled with pain, nights of uncertainty, and moments when hope feels far away… but we keep showing up.

We keep surviving.

That’s why I’m happy to be part of The Charity Series 2025 Fundrais, an event dedicated to supporting people living with Cancer, Sickle Cell, and Mental Health challenges.

🗓 Saturday, 1st November 2025
🕑 2:00 PM – 6:30 PM (WAT)
💻 Virtual (Zoom)
🔗 Register here
https://bit.ly/EHICharityFundraiser2025

I’ll be joining the Panel conversation on “Living with Sickle Cell: Overcoming Daily Challenges”, sharing from my own journey and the lessons I’ve learned walking this path.

This event isn’t just about raising funds it’s about raising hope.
It’s about saying to everyone struggling silently: you’re not alone, and your story matters.

If you’ve ever faced illness, pain, or mental health struggles or if you simply believe in compassion, please join us.

Together, let’s turn Hope into Action. ❤️

20/10/2025

Register to Attend

15/10/2025

Hey Warrior & Caregiver🤗 Your Voice Matters💪🏾

We are gathering real experiences from Sickle Cell Warriors & Caregivers to help improve nursing care and understanding.

Please take a few minutes to share your story your insight can inspire greater empathy and better support for all warriors.

👉 Click here to participate: https://forms.gle/kuS5UpNCnD5xa9Rq9

SAMI ... Touching People; One Life at a Time.

This survey aims to gather honest insights from Sickle Cell Warriors and Caregivers about their experiences with nurses during hospital care. The goal is to understand both positive and challenging interactions and use this feedback to strengthen empathy, communication, and care delivery in nursing....

04/10/2025

In the year 2022, Sickle Cell Advocacy & Mgt Initiative partnered with a sister organisation to educate Doctors and Nurses about the need for proper Pain Management in sickle cell disorder.

I had the privilege of serving as a panel speaker alongside industry leaders, where I shared my experiences on pain management and emphasized the importance of ensuring that every patient receives proper care when in pain.

For warriors, blood transfusion can serve as a vital tool in managing pain.

Proper hydration also plays a crucial role in reducing pain episodes.

Additionally, the timely use of pain medications, when administered and alternated appropriately during admission, greatly improves overall pain management outcomes.

Here are a few points

Improves quality of life: reduces suffering, allowing individuals to engage in daily activities and education/work.

Prevents complications: uncontrolled pain can worsen stress, increase sickling, and trigger further crises.

Reduces long hospital admissions – effective pain management gives room for Better outcomes and decreases long hospitalizations and long pain hours.

Supports mental health: chronic pain can sometimes get you into depression and anxiety; good and proper pain management improves emotional wellbeing.

Protects organs: repeated painful crises without proper management can lead to organ damage over time.

Enhances sleep and recovery: pain control improves rest, which helps in faster healing and crisis recovery especially during hospital admission.

Promotes adherence to treatment: warriors are more likely to follow medical advice when pain is controlled.

Improves long-term outcomes: consistent pain management helps people live healthier, more productive lives.

03/10/2025

URGENT MEDICAL APPEAL TO SAVE AJAYI’S LIFE

Goodday everyone,

We urgently need your support to help save the life of Ajayi Derele Lukman, a promising young man currently battling Deep Vein Thrombosis (DVT) and severe knee stiffness. He is in critical need of surgery and medication to prevent further complications and help him walk again.

Ajayi’s treatment requires a total of ₦301,000, broken down as follows:

- 🩸 2 pints of blood – ₦145,000
- 🛏️ 3 days hospital bed space – ₦75,000
- 🦵 Cast for his leg – ₦38,000
- 💊 Medication for blood clots (2 weeks) – ₦43,000

He’s currently in pain, unable to walk or stretch his leg. Time is of the essence your support can restore his health and hope.

🌟 No amount is too small. Every donation brings Ajayi one step closer to healing.

Donation Details:

Zenith Bank
Acct No: 2458744462
Name: Ajayi Derele Lukman

First Bank
Acct No: 3086885138
Name: Ajayi Derele Lukman

📞 Enquiries: 07062381909

Please donate & share.

Let’s be the reason Ajayi walks again. 🙏

02/10/2025

Audrey Mukoro, the Founder of Audrey Sickle Cell Foundation and South South Regional Head, Coalition of Sickle Cell NGOs Nigeria, has spent years giving her all to others. But today, she is the one in urgent need. 💔

She has been diagnosed with hyperthyroidism, and doctors have recommended an urgent surgery costing ₦10,000,000 to save her life and prevent grave complications.

For someone who has poured her heart into advocacy and service, it is not easy to admit helplessness. But right now, Audrey cannot fight this battle alone. She needs us your love, your prayers, your support. 🙏

Please donate what you can. No amount is too small. Together, we can give her the chance to heal.

Premium Trust Bank: 0040102708 (Tag: Audrey)
Sterling Bank: 0071759277 (Tag: Audrey)

Let us stand for her the way she has stood for so many.

Please donate and share.

09/09/2025