Sickle CELL Matters

Sickle CELL Matters We create Awareness Sickle Cell Disorder and Genotype. We are focused on sharing Precautions to abide with and Prevention & Possible Solutions to SCD problems.

WE HELP PEOPLE LIVING WITH SICKLE CELL DISORDER LIVE POSITIVELY, HEALTHILY, PRODUCTIVELY AND FEARLESSLY.

🩸 Be a Lifeline, give blood to save lives. For people living with sickle cell disorder, every unit of blood donated can ...
03/09/2026

🩸 Be a Lifeline, give blood to save lives. For people living with sickle cell disorder, every unit of blood donated can mean a pain crisis managed, a life stabilized, and another birthday celebrated.

Sickle Cell Advocacy & Mgt Initiative is calling on YOU to roll up your sleeve and be that Lifeline.

đź“… This Saturday, September 5th

đź“Ť SAMI Centre, 22B Amosu Street, off Bode Thomas

🕗 8am – 4pm

Call: 08077828255 for questions and enquiries

Eligibility: Ages 18–65, weight 50kg+, in good health, and no blood donation in the last 3 months.

It takes less than 30 minutes to give blood but the impact lasts a lifetime. Come through, bring a friend, and let's calculate how many lives we can save together.

Mention someone who could donate with you in the comments section 👇



September is a month of significance in the sickle cell community, globally, but this year, it means even more to an Ngo...
23/08/2026

September is a month of significance in the sickle cell community, globally, but this year, it means even more to an Ngo named Sickle Cell Advocacy & Mgt Initiative (SAMI).

Our Founder and Executive Director, Ms. Toyin Adesola, would have turned 61 this September (Sept 1st). Though we are still coming to terms with her loss, we are choosing to honour her in the best way we can by continuing the work she gave so much of her life to.

Toyin believed that no one living with sickle cell should have to face the journey alone. This September, we invite you to help us carry that vision forward.

There are two ways to stand with us:

❤️ Give towards sickle cell care. Your financial contribution will help us continue providing essential care and support to people living with sickle cell who may otherwise struggle to access them.

Every contribution, regardless of size, helps us reach another person with medication, healthcare support, counselling, education and advocacy.

🩸 Give blood. Give hope. On September 5, we will be holding a Blood Drive. Blood cannot be manufactured or bought off a shelf; it can only come from someone willing to give, while rolling their sleeves.

If you are eligible, please donate. If you lead an organisation, please share this with your team. If you, your organization, friends, or family can give, please give generously. If you can each give a little, it adds up to a lot.

You don't have to do everything. But together, we can do something that matters, not just today or this September but for a lifetime.

Whether you have partnered with SAMI before or are just discovering our work, we would be grateful to have you stand with us this September and beyond.

In memory of Toyin.
In honour of every warrior. And in hope for the lives still ahead.

If you would like to support, partner with us, organise a workplace blood donation drive, or discuss other ways you/ your organisation can contribute, please get in touch.

SAMI Projects Account: GTB – 0208883073

Contact: 08077828255 | [email protected]
Website: www.sicklecelladvocacy.org

Thank you for helping us keep the work and the legacy going.

With gratitude and hope,

The SAMI Team
Sickle Cell Advocacy & Management Initiative

…reaching people, one life at a time.

Some posthumous birthdays are celebrated with candles; we will remember our Founder's 61st Posthumous Birthday with live...
20/08/2026

Some posthumous birthdays are celebrated with candles; we will remember our Founder's 61st Posthumous Birthday with lives saved.

Join us Sickle Cell Advocacy & Mgt Initiative on Saturday 5th September 2026 to honour the memory of our beloved Toyin Adesola in the most fitting way, by donating blood to support the healthcare of sickle cell warriors.

Every pint is more than blood; it is an act of love, a tribute, and a continuation of Toyin’s legacy. Come, give someone another chance to live, heal, dream and thrive!

Register to donate blood via: https://bit.ly/SAMI-NHFBloodDrive



Join us for the biggest health outreach happening in Lagos this weekend đź’Żđź’ŻAll roads lead to Ikorodu - Plot 48 Ebute Igbo...
02/07/2026

Join us for the biggest health outreach happening in Lagos this weekend đź’Żđź’Ż

All roads lead to Ikorodu - Plot 48 Ebute Igbogbo road - where thousands of Ikorodu residents, including sickle cell warriors, will be getting access to free healthcare support. Doctors consultation, genotype testing, free medications and lots more.

For the sickle cell community, this is an opportunity to get expert consultation and referrals to better healthcare outcomes.

This program is led by Sudabelt Medicals with partnership of Noella Foundation, SAMI, and O.N.I. Foundation

In 2014, two families on my street lost their children to sickle cell disease.I went to pay a condolence visit.What I wi...
19/06/2026

In 2014, two families on my street lost their children to sickle cell disease.

I went to pay a condolence visit.

What I witnessed there changed the direction of my life forever.

As people gathered around the grieving families, some started looking at me as though I was the next person on the list.

They would glance at me and say:

"It is because her father has money."

But deep down, I knew something they didn't know.

It wasn't money.

It was information.

It was access to healthcare.

It was knowing what to do and when to do it.

As I sat there listening, I heard something that broke my heart.

A woman looked at the grieving mother and said:

"You should be grateful he died early. If he didn't die now, he would continue wasting your money and still die eventually."

I froze.

Imagine saying that to a mother who had just lost her child.

Imagine saying that about a child whose only "crime" was being born with sickle cell disease.

Then another person added:

"The burden is gone."

Another said:

"He was possessed."

And as if that was not enough, I discovered that the boy had a nickname in the community.

They called him "Owo Posi" — coffin money.

A child whose life had already been written off before he had the opportunity to live.

A child people expected to die.

A child many believed was beyond help.

The painful part?

His death was preventable.

What he needed was information.

What he needed was routine care.

What he needed was access to healthcare.

What he needed was people who believed his life was worth saving.

A few weeks later, another child died.

Just three years old.

And once again, I heard the same things.

The same stigma.

The same hopelessness.

The same dangerous beliefs.

The same ignorance.

That was the moment something shifted inside me.

I realised we were not only fighting sickle cell disease.

We were fighting stigma.

We were fighting ignorance.

We were fighting hopelessness.

We were fighting a society that had already decided that children living with sickle cell were not worth investing in.

That they would die anyway.

That educating them was a waste.

That caring for them was a burden.

That their future did not matter.

I left that house angry.

I left disturbed.

I left unable to sleep.

And I made a promise to myself.

No child with sickle cell should be written off because of where they were born.

No mother should ever be told to celebrate the death of her child.

No child should be reduced to "coffin money."

No child should be denied the opportunity to live because people have already decided their fate.

That year, I came online and created a page called "No More Silence on Sickle Cell."

I started sharing my story.

I started educating.

I started speaking up.

Because silence was costing lives.

That was how the journey began.

By 2015, I was fully involved in advocacy.

By 2016, a structure began to form.

Today, more than a decade later, I look back and I am grateful that we chose to act instead of remaining silent.

Yesterday, through Ignite Sickle Cell Initiative and our partnership efforts, we enrolled over 50 children living with sickle cell into health insurance in Akoko North West.

Combined with previous enrollments, we have now enrolled over 100 children this year alone

These are children who previously had little or no access to healthcare.

Many people see our work online.

But our real work happens offline.

In rural communities.

In underserved communities.

In places where children are still dying from preventable causes.

In places where parents are still looking for answers.

In places where hope is desperately needed.

And slowly, that dream I had in 2014 is becoming a reality.

We are seeing more children survive.

We are seeing parents become empowered.

We are seeing fewer preventable deaths.

We are seeing communities begin to change their mindset.

But we are not done yet.

Our mission remains the same:

âś… Reduce child mortality.

âś… Promote early diagnosis.

âś… Improve access to healthcare.

âś… Ensure every child receives care with dignity.

Because sickle cell is not a death sentence.

And every child deserves the opportunity to live, learn, dream, and thrive.

On this World Sickle Cell Day, I remember those two children.

I remember the words spoken over them.

And I remain committed to ensuring that no child is ever written off again.

I remain,

Your Celebrity Warrior,







Can't make it for any of the 2-day event - tomorrow Thursday 4th and Friday 5th June - as we celebrate the life and lega...
04/06/2026

Can't make it for any of the 2-day event - tomorrow Thursday 4th and Friday 5th June - as we celebrate the life and legacy of our Sickle Cell General, Toyin Adesola?

Do not worry!

Kindly join the Livestream:
Scan the QR code in the flyer

Or
Click this link -; https://bit.ly/TOYINADESOLA1965-2026



Good day, everyone.Kindly find below the funeral arrangements and movement for members of the SCD community. Check flyer...
04/06/2026

Good day, everyone.

Kindly find below the funeral arrangements and movement for members of the SCD community.

Check flyer properly too

Seats are available on a first come, first served basis.

Please check the flyer for full details for Friday, June 5th, 2026.

Kindly be punctual.

Pick-up points:
• Ikorodu Garage
• Ikeja LASUTH Gate
• Akerele Primary Health Centre (where Xtracare Clinic takes place)

Check the flyer carefully for the departure time at each location.



04/06/2026

TOYIN ADESOLA
Okunrin Meta…..
Resilience Boss
The sickle cell warrior

The Sickle Cell Community lost a Rare Gem, A True Visionary and Exemplary Leader yesterday.Oluwatoyin Ibidunni Adesola t...
12/05/2026

The Sickle Cell Community lost a Rare Gem, A True Visionary and Exemplary Leader yesterday.

Oluwatoyin Ibidunni Adesola the Founder of Sickle Cell Advocacy & Mgt Initiative lived a live of legacy.

Her work in the Sickle Cell community lives on.

Rest in peace The Resiliense Bossđź’Ş

He gave everything… so we could have life. ✝️❤️On this Good Friday, we remember the ultimate sacrifice of love, grace, a...
03/04/2026

He gave everything… so we could have life. ✝️❤️

On this Good Friday, we remember the ultimate sacrifice of love, grace, and redemption.

May our hearts be filled with gratitude, humility, and hope knowing that even in the darkest moment, God’s love shines brightest.

Address

Lagos
1001

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+2348170081613

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