Osteogenesis Imperfecta Foundation, Nigeria. - OIFN

Osteogenesis Imperfecta Foundation, Nigeria. - OIFN This page is to bring individuals and families with this rare disease (brittle bone) together. Share experiences and how best to help each other

As a member of ECOSOC, OIFN had the privilege of attending Day 1 of the 70th Session of the Commission on the Status of ...
11/03/2026

As a member of ECOSOC, OIFN had the privilege of attending Day 1 of the 70th Session of the Commission on the Status of Women ( ). The discussions offered valuable insights on strengthening access to justice for women and girls. One key message stood out clearly: justice must go beyond written laws and exist within systems that women and girls can safely, confidently, and meaningfully access.

These conversations strongly resonate with the mission of OIFN, which advocates for inclusion, equal rights, and access to services for people living with Osteogenesis Imperfecta—particularly women and girls who often face multiple layers of barriers.

Ensuring that justice systems, policies, and communities are inclusive and responsive is essential to advancing dignity, equity, and participation for all.

We look forward to continued dialogue, partnerships, and collaboration throughout the week.

24/02/2026

Fragile Bones, brittle bone condition.

With Tarela Aghanti – I just got recognised as one of their top fans! 🎉
10/02/2026

With Tarela Aghanti – I just got recognised as one of their top fans! 🎉

10/02/2026

Raising Brittle Bone Awareness

We gained 18 followers, created 11 posts and received 46 reactions in the past 90 days! Thank you all for your continued...
01/02/2026

We gained 18 followers, created 11 posts and received 46 reactions in the past 90 days! Thank you all for your continued support. I could not have done it without you. 🙏🤗🎉

Informed by careful research within the OI community, a powerful and consistent need has emerged: the importance of ment...
01/02/2026

Informed by careful research within the OI community, a powerful and consistent need has emerged: the importance of mental health support.

Thriving, Not Just Surviving highlights the critical role of mental health intervention for people living with OI. This event creates a compassionate and inclusive space to address emotional well-being, encourage early support, and empower individuals, families, and caregivers to build resilience, deepen understanding, and sustain hope.


Help Us Strengthen Bones, Restore Hope, and Save Lives!As a foundation committed to supporting people living with brittl...
23/01/2026

Help Us Strengthen Bones, Restore Hope, and Save Lives!

As a foundation committed to supporting people living with brittle bone disease in low-resource countries like Nigeria, we face a significant challenge: accessing one of the most essential medicines for treatment—bisphosphonates (Zoledronic Acid). These medications are vital for strengthening bones and preventing fractures; however, they are rarely available locally and must be sourced internationally, making them both costly and challenging to obtain.

Bisphosphonate medication is truly life-changing for people living with a rare condition, as it helps increase bone density, reduces the frequency and severity of fractures, eases chronic pain, and could dramatically improve mobility, thereby enhancing the overall quality of life for individuals who would otherwise face repeated injuries and lifelong disability.

Currently, many of our patients are due for their scheduled treatment. Without timely access to these medications, their health and safety are at serious risk. We urgently appeal to partners, other oi organisations, donors, and compassionate individuals to help us secure a steady supply of bisphosphonates from international sources.

Your support will have a direct and profound impact on vulnerable patients who rely on this treatment to live stronger, safer, and more fulfilling lives.

Together, we can save a life.

To make a donation, please visit: www.oifn.org/donate

Thank you.

We roll of the year 2026 with our self care event. Save the date and join. More details to follow.
17/01/2026

We roll of the year 2026 with our self care event. Save the date and join.

More details to follow.

10/01/2026

Welcome to all our new followers! We’re thrilled to have you here and look forward to growing, learning, and sharing together.

Thank you to both new and old members. Together, we will create change and make a difference.

As we welcome the year ahead, we extend our best wishes for a year filled with new beginnings, meaningful opportunities,...
31/12/2025

As we welcome the year ahead, we extend our best wishes for a year filled with new beginnings, meaningful opportunities, and continued growth.

May 2026 bring confidence to pursue your goals, curiosity to learn and innovate, and many moments of connection with those who matter most. We look forward to a year driven by positivity, creativity, and shared success in all that we strive to achieve together. 🌟

As 2025 draws to a close, we would like to pause and express our heartfelt gratitude to everyone who helps shape and str...
31/12/2025

As 2025 draws to a close, we would like to pause and express our heartfelt gratitude to everyone who helps shape and strengthen this community every day. 💛 This year has been defined by collaboration, resilience, and an unwavering commitment to caring for one another, and none of it would be possible without you.

To our patients and families: thank you for the trust you place in us and for allowing us to walk alongside you during some of life’s most important moments. Your courage, openness, and strength inspire everything we do and remind us why compassion must always remain at the heart of care.

To our dedicated teams: your skill, professionalism, and tireless efforts set the standard for excellence. Day after day, you show what it means to serve with empathy, integrity, and purpose. Your willingness to go above and beyond makes a lasting difference in the lives of so many.

To our partners and experts: thank you for your collaboration, insight, and shared vision. Through innovation, knowledge-sharing, and mutual support, you help ensure that care continues to grow stronger, smarter, and more responsive to the needs of our community.

And to our volunteers: your generosity of time, energy, and spirit brings warmth and humanity to everything you touch. Your contributions may often happen quietly, but their impact is profound and deeply felt.

As we look ahead to 2026, may it be a year filled with joy, health, and meaningful moments. ✨ May we continue to learn from one another, support one another, and move forward together with hope and purpose. Wishing each of you a happy, healthy, and fulfilling new year.

Address

Lagos

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

+2348066126682

Website

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