Festus Fajemilo Foundation (FFF) is a disability-focused non-governmental organization established in 2006 and registered under the Companies and Allied Matters Act 1, 1990 Part C of the Corporate Affairs Commission (CAC/IT/NO. 24051). Festus’ parents found it hard to get any information and support, and his condition worsened, seriously limiting his development and requiring continuous and comple
x care. Appalled by the lack of affordable care, inadequate medical facilities, harmful taboos, and a pervasively negative attitude in the Nigerian society, Festus’ parents decided that urgent action was needed hence the birth of FFF. The Foundation is the pioneer non-profit organization in Nigeria advocating for and promoting the rights and socio-economic access, inclusion, and participation of persons living with spina bifida and hydrocephalus (SBH) as well as supporting initiatives targeted at primary prevention. FFF observed that children with SBH also develop other major impairments such as spinal cord injury, physical disability, intellectual and developmental disabilities, etc. Accordingly, FFF considered it necessary to also engage the mainstream disability community comprising other categories of disabilities to enhance awareness, acceptance, and inclusion for children and adults with SBH within the larger disability community in particular and the general public as a whole. As such, since 2009, FFF expanded its core activities to cover all types of disabilities while still committing significant attention to children and adults with SBH.
