15/08/2025
365 days. Three. Hundred. Sixty. Five. Days. God, I humbly just don't understand......
I woke a few minutes ago, it is 04h04.......my pillow is wet, my eyes are so puffy, I struggle to open them. My chest is HEAVY! REALITY HITS ME FULL IN THE FACE! How do I describe it..... i feel flat..... as if there is nothing inside me..... it feels as if my ribs are lying against my back bone.....so só empty.....
Baby Zephania was not doing good the last few days. He struggled with heavy breathing. For weeks it felt to me that he was okay, I realise now it was me being in and out of denial... What is denial? Is it hope?? What is the difference between denial and hope or is it just the same thing??
Did I shut my eyes for reality or did I really with every fibre in my being believed and prayed for a miracle? I did..... all the time..... I was even trying to convince God that I need a miracle for Zephania, a new brain for Zephania, for the world to SEE THAT GOD IS ALIVE!! I reminded God about Lazarus..... I said: "God, do you remember the day that You called Lazarus from the grave? DO YOU REMEMBER GOD??? He was already smelling, did You smell him, God?? And yet, against everything that pointed to death, You called him to life. And he came, and he was not smelling anymore..... and he was alive!!! YOU RAISED HIM FROM THE DEATH, YOU GAVE HIM BACK HIS LIFE!!! Do you remember??? What does it take from You to give Zephania a new brain? Please God, call his brain to life.....just one word.....Your breath over his brain, please God, just one breath, please........" And then I would end off, "but Your will, not mine..." and then I would still go on..... "but why would You not want to will..... I think You want to, God, remember Lazarus......"
One evening I found our grandson and little girl praying for Zephania for healing and I thought of the scripture in James 5:16 "The prayer of a righteous person is powerful and effective." And I said: "God, they are righteous, please hear their prayer...." And I believed.......
Sixty four days ago me and baby Zephania left the hospital in Windhoek. Nearly 400km from home. No more medical intervention, no more invasive surgery. Only palliative care, painfree comfort. The prognoses of a brainstem shutting down slowly.
For many days after that, I was walking on eggs, too scared to sleep, waiting for death to, any moment, uninvitedly, be knocking on our door. And every morning baby Zephania was still there. Fighting to stay. My heart was slowly getting less anxious.
He was still being tubefed with a nasogastric tube. I believed it was irritating his stomach lining, he had so much mucus, he was coughing because of that, sometimes couching up old blood. I was suctioning liters of mucus from his tiny body. I was literally taking it moment by moment. Sometimes the loud stridor would stop. Is he dying or is he getting better? Everytime I chose to believe he is getting better. HOW STRONG IS DENIAL?? Or is it hope???
Early this week, I got the news that I have to testify in an important court case in Windhoek on Thursday morning. (yesterday) It would be very quick. The prosecutor understood my situation that I could not be away from home. She promised that I would be the first on the stand and could travel back immediately after. But, I had to be early. Two hours after sunrise. It meant that half of my trip would be in the dark. I cannot drive in the dark. So I had to travel late Wednesday afternoon. Which meant I have to leave baby Zephania for one night....
On Wednesday afternoon, I took him to the specialist to change his nasogastric tube. It went quick. At one spesific moment, I looked intensely at him, and the thought crossed my mind to take him with me. I bent over him with my face against his little cheek and I said: "Zephania, do you know how much I love you?"
The hours sped, the day was not waiting for me. After the doctor's appointment, I rushed home to pack my things. I was counting the hours of my travelling time and I realised i have to be quick, otherwise I would be driving in the dark.... I put Zephania in his cot, and kissed him on his forehead, which nowadays felt like a balloon full of water but not firm and painful anymore.
I drove to Windhoek and made it safely to my mom's home about 30 minutes after sunset.
And then, yesterday morning, just after 04h00, I got a videocall from my nightshift caretaker. She panicked. She showed me Zephania. To me, he seemed fast asleep. He was so peaceful. She said the stridor stopped, there was no sound, no breathing, ALL I COULD HEAR WAS THE OVERWHELMING SILENCE!!! It happened before, stridor stopped, no visible breathing, and then after a few seconds, he starts breathing again. She turned him, his little hands was floppy, I asked her to open his eyes, his eyes was still alive? Denial or hope?
And then........ I saw my husband's big hand on his little chest, covering his whole chest with one hand, and it struck me how small his body is! He said: "Nellie, there is no heartbeat, nothing, he left us...he is healed now, he is with God." He felt for a pulse in his neck, but nothing...... I asked him to check his temperature, 36.2. Reality dawned on me. His cute little body was still warm where his little soul left maybe a few minutes ago.......
I could literally feel a pain in my chest. I couldn't believe it. I phoned back, frantic, another videocall, "please show him again, did he start breathing yet????" Nothing. Silence in overload. My heart sanked. My mom came into my room, I told her Zephania is dead. I phoned again, believing they would tell me he is okay, he is breathing again. Nothing. He was so peaceful, no sign of struggle, no blue lips, no mucus, nothing. Just peace. I believe his little heart just stopped beating when God silently arrived and took his little hand to take him home.
My heart broke. I felt betrayed. Whyyyyy God, why????? I don't understand......out of all the 365 days.......You chose to take him on this one day when I wasn't there to hold him.......no one was holding him against their heart...... the guilt overwhelmed me, why didn't I bring him with? I promised him that he would never be alone again, that I would never leave him alone..... did God wait for me to leave so He could take him? Was I the one holding him back from heaven....... was God being a gentleman to wait for me to leave......?????
I send a message to the prosecutor, hoping she would excuse me. I still had to be there. Everything went so slow......
I phoned again, pleading with them to just keep him for me until I am back home. I cried without wanting to, my tears flowed freely with every breath, I was driving through the traffic, wanting to scream to them to hurry up, Zephania was waiting for me.... I came home last night, my husband warming the house with a fire in the fireplace. I rushed into the room, thinking that we will all be surprised now because he will be breathing...... denial or hope???????
Zephania was peacefully lying in his cot, tucked in with a thick, soft blanket. I put my hand on his head, and the bitterness of his icy cold skin split through my body and heart!! He is really gone.....
I picked him up and hold him very tight against my body, I cried, my tears fell onto his beautiful little face. I said I'm sorry, I am so so sorry for leaving you behind, for not being here to hold you.....
I went to sit in front of the fireplace for us to warm up, for death to become a little bit warmer..... I hold him, kissed him, saying my sorrys and my goodbyes.....
And then two men came to fetch him, I tucked him tightly into the warm blanket, carried him to the car. I kissed him once more, then gave him to the passenger who came with the driver to fetch him. I told him to hold him on his lap all the way where they are taking him. Just before I closed the door, I once again took his little hand out of the blanket and kissed it one more time, and I remembered how I kissed that same little hand the first day I saw him, promising him that he will never be alone again....
They drove away into the night, I felt nauseous and alone.
I was silently asking God to show him to me in a dream, how he looks now, with a heavenly, healed body, breathing easily. I will wait upon it.....i can only imagine......
My heart is so broken, but it is well with my soul.....