DEBRA Malaysia is a registered charity dedicated to supporting children and adults with Epidermolysis Bullosa (EB) live life more freely and fully, with less pain and stigma and to reduce the impact on families affected by this rare genetic disorder. EB is characterized by extremely fragile skin, so fragile that the slightest touch can result in the development of recurrent, painful blisters and o
pen wounds. It is hard to describe the full impact of living with EB and the effects on the whole family. There can be few conditions that are as painful and simply awful to live with. The closest thing to imagine would be if you perpetually had 3rd degree burns over most of your body. Children with EB are known as 'Butterfly Children' because their skin is as fragile as a butterfly's wing. In severe cases it can tear like wet tissue paper at the slightest touch. The purpose of of DEBRA Malaysia is to provide improved access to health care, emotional support and best practice wound care dressings, including nutritional supplements, specialist training for caregivers and clinicians and a forum for committee and volunteers to support, to share experiences and information. Donations can be made to below bank account:
Debra Malaysia
Public Bank Berhad
Account Number: 3192437428
Please attach the bank slip to [email protected]. Your donation would be most appreciated and will go a long way towards funding for much needed basic supplies.
