Hemophilia Society of Malaysia

26/05/2026

On this blessed occasion of Eid al-Adha, Hemophilia Society of Malaysia extends our warmest wishes to all celebrating.

May this meaningful celebration inspire us with the values of sacrifice, compassion, gratitude and unity. As we reflect on the spirit of giving and caring for one another, let us continue to strengthen our support for individuals and families living with hemophilia and bleeding disorders.
— With ❤️ Hemophilia Society of Malaysia

15/05/2026

Save the date!!

Learn more and prep up for your trip

✈️ Planning to travel? Join us for a practical webinar for patients, caregivers, and families with haemophilia.

Whether it’s a short holiday, school trip, or business travel, preparing ahead can help reduce stress and make travelling more manageable and enjoyable.

In this short session, we’ll cover practical topics including:
🩸 Medication planning
📄 Travel letters & documentation
🛄 Airport and security considerations
🚑 Emergency planning abroad
💬 Tips from lived experiences

📅 Thursday, 28 May 2026
🕕 6:00 PM – 7:00 PM (GMT+8)
💻 Online via Zoom

We also warmly welcome members of the haemophilia communities in Malaysia 🇲🇾 and Brunei 🇧🇳 in our inaugural joint session (with hopefully more to come!), and look forward to learning together across the region.

👉 RSVP here: https://calendar.app.google/3R6FETmNH5AGVdP16

12/05/2026

Today, we honor and celebrate nurses around the world for their dedication, compassion, and unwavering commitment to caring for others. 🌍💙

In the hemophilia and bleeding disorders community, nurses play a truly vital role — from providing treatment and education to offering comfort, reassurance, and hope to patients and families during their most challenging moments. They are often the first to listen, the first to care, and the bridge that connects patients to better quality of life.

To every nurse who continues to serve with patience, kindness, and strength, thank you for being the heartbeat of healthcare and for making a difference in countless lives every single day.❤️

Happy International Nurses Day to all incredible nurses and healthcare heroes.✨

09/05/2026

Today, we celebrate the strength, love, and resilience of every mother around the world. 💐
A mother’s role goes beyond words — she is a caregiver, protector, supporter, and the heart of every family.

For women living with bleeding disorders, the journey can come with unique challenges, yet many continue to carry the responsibilities of motherhood and career with incredible courage and determination.

Happy Mother’s Day to every amazing mother and carrier who continues to nurture, support, and empower the next generation. 🌷

With ❤️ Hemophilia Society of Malaysia

01/05/2026

Today, we honour the dedication, compassion, and resilience of every worker—especially our healthcare providers within the HSM community. To the doctors, nurses, pharmacists, and physiotherapists who deliver life-saving care and continuous support, you stand at the heart of every patient’s journey.

We also recognise the parents who serve as tireless caregivers and the many individuals working behind the scenes to strengthen our healthcare system and build a healthier future.

Thank you for your unwavering commitment—your impact is felt in every life you touch, every single day ❤️

19/04/2026

Kementerian Kesihatan Malaysia (KKM) telah menyatakan komitmen penuh untuk memastikan akses rawatan yang saksama dan pendekatan penjagaan holistik bagi semua pesakit gangguan pendarahan di negara kita!

Semasa berucap di Majlis Perasmian WFH 2026 World Congress yang sedang berlangsung di Kuala Lumpur, Ketua Pengarah Kesihatan, YBhg. Datuk Dr. Mahathar Abd Wahab, menekankan betapa pentingnya sokongan perubatan yang menyeluruh demi menjamin kualiti hidup yang optimum buat para pesakit.

Beliau turut mendedahkan bahawa walaupun rekod Tinjauan Global WFH 2024 mencatatkan 1,056 individu berdaftar dengan hemofilia di Malaysia, angka sebenar berkemungkinan lebih besar. Kekurangan kesedaran dan akses kepada saringan serta diagnosis awal masih menjadi cabaran yang perlu kita atasi bersama.

Kami di Pertubuhan Hemofilia Malaysia (HSM) amat menghargai sokongan tidak berbelah bahagi daripada pihak KKM. Ini adalah langkah yang sangat positif ke arah visi kita bersama, iaitu "Rawatan untuk Semua" (Treatment for All).

Mari kita terus bekerjasama untuk meningkatkan kesedaran tentang hemofilia! Baca berita penuh yang diliputi oleh RTM di pautan di bawah.

🔗 Baca artikel penuh di sini: KKM komited pastikan akses rawatan saksama buat pesakit hemofilia

KUALA LUMPUR, 19 April – Kementerian Kesihatan Malaysia (KKM) mendedahkan bahawa statistik semasa individu yang menghidapi hemofilia di negara ini mungkin belum menggambarkan angka sebenar berikutan isu kekurangan kesedaran dan akses kepada diagnosis awal.RINGKASAN BERITA AI − KKM komited memast...

18/04/2026

Kuala Lumpur lights up Red ❤️

In conjunction with World Haemophilia Day 2026 and as we count down to the WFH 2026 World Congress, iconic landmarks across the city will be illuminated in red as a symbol of solidarity for the bleeding disorders community.

Massive shout out to The Exchange 106 and Kuala Lumpur Convention Centre - KLCC !!

📍 19 April 2026
🕖 7:00 PM – 11:59 PM

If you’re in KL, keep an eye out for the red glow, snap a photo, and share it with us!

Let’s come together to raise awareness and show our support.

17/04/2026

DAY 1 — See You Tomorrow
Theme: Final call
Caption:
⏳ 1 DAY TO GO
Tomorrow, it begins.
A gathering of minds.
A sharing of stories.
A united mission for change.
See you at the WFH 2026 World Congress.
🔗 Learn more: https://wfh.org/congress/

17/04/2026

🩸 World Hemophilia Day 2026

Today, 17 April, we stand with the global community to raise awareness on hemophilia and bleeding disorders.

This year’s theme, “Diagnosis: First Step to Care,” reminds us that early diagnosis saves lives.

From Malaysia, we continue to support, advocate, and care for a future where no one is left behind.

See you in Kuala Lumpur for World Congress 2026.