MyPOPI

Directions Website Contact the organization

MyPOPI Persatuan Pesakit Imunodifisiensi Primer Malaysia atau di kenali sebagai MyPOPI secara resminya didaftarkan pada 15 August 2014. Our aims are:

1.

To be the first port of call for those in the Malaysia seeking information on all aspects of having a PID
2. To promote awareness and understanding of PIDs
3. To provide direct support to individuals and families affected by PIDs
4. To be an advocate and campaigner for the needs and rights of people affected by PIDs. We will achieve this by:

1. Providing comprehensive and clearly written information on PIDs and associated issues that is easily accessible through a variety of media
2. Raising awareness and understanding of PIDs within the medical profession in order to facilitate earlier and accurate diagnosis, better monitoring and care, and so extend and improve quality of life
3. Listening to, responding to and prioritizing patient needs, and working actively to make their voice heard through liaison with individuals, families, our patient representative panel, professionals and members of our medical advisory panel
4. Clear signposting to condition-specific support groups, where they exist, and working with them to ensure better healthcare for all affected by PIDs
5. Building a solid membership database of those affected by PIDs and those involved in their care as a basis for our communication, consultation and lobbying activities
6. Connecting people affected by the same condition to share experiences and provide mutual support by helping them establish their own support groups
7. Working with others to lobby for improved patient care and continued medical research into PIDs
8. Raising funds to support MyPOPI in its work to help affected individuals and families wherever they live in the Malaysia.

21/09/2026
18/09/2026

๐ŸŒก๏ธ Anak Kerap Demam: Biasa atau Petanda?

Pada 16 September 2026, Dr Intan Juliana telah dijemput oleh Berita RTM - SPM untuk berkongsi mengenai kepentingan pencegahan dan pengesanan awal apabila anak kerap mengalami demam.

Demam yang kerap mungkin kelihatan biasa, tetapi dalam sesetengah keadaan, ia boleh menjadi tanda yang memerlukan pemeriksaan lanjut.

Jom kenali tanda-tanda awal dan dapatkan pemeriksaan yang sewajarnya demi kesihatan anak. โค๏ธ

๐ŸŽฅ Tonton perkongsian penuh di YouTube:
https://www.youtube.com/watch?v=wfpvqptv9Dk

Selamat Hari Malaysia 2026! โค๏ธMalaysia MADANI: Kesejahteraan Dinikmati.Satu Malaysia, Sejuta Harapan.
15/09/2026

Selamat Hari Malaysia 2026! โค๏ธ
Malaysia MADANI: Kesejahteraan Dinikmati.
Satu Malaysia, Sejuta Harapan.

Happy 69th National Day, Malaysia!  Today, we celebrate the spirit of independence, unity, and togetherness that makes M...
31/08/2026

Happy 69th National Day, Malaysia!

Today, we celebrate the spirit of independence, unity, and togetherness that makes Malaysia truly special.

โœจ Malaysia MADANI: Kesejahteraan Dinikmati

May the spirit of Merdeka continue to inspire us to build a more caring, inclusive, and prosperous Malaysia where everyone has the opportunity to live with dignity and hope.

Happy National Day, Malaysia! โค๏ธ
Merdeka! Merdeka! Merdeka!

i

๐Ÿ’™ SEPEDA Borneo Amal 2026 Receives Media Recognition ๐Ÿšดโ€โ™‚๏ธWe are grateful to share that SEPEDA Borneo Amal 2026 has recei...
06/08/2026

๐Ÿ’™ SEPEDA Borneo Amal 2026 Receives Media Recognition ๐Ÿšดโ€โ™‚๏ธ

We are grateful to share that SEPEDA Borneo Amal 2026 has received media coverage, shining a spotlight on the spirit of compassion, collaboration and dedication behind this meaningful charity initiative.

This recognition reflects the collective efforts of healthcare professionals, communities, partners and supporters who have come together to bring hope and support to children and families living with Primary Immunodeficiency (PID).

MYPOPI is honored to be one of the two beneficiaries of this initiative. Through this campaign, we continue our mission to improve access to care, raise awareness and provide assistance to PID patients and their families.

๐Ÿ’™ As SEPEDA Borneo Amal 2026 enters its final phase, we invite everyone to stand together with us and be part of this journey of hope.

Every donation brings us one step closer to making a difference.
Every share helps us reach more people and spread awareness about PID.

Support SEPEDA Borneo Amal 2026 through the official website: https://sab.mma.org.my/donate

Thank you to every donor, supporter and partner who has contributed to this cause. Your kindness and generosity continue to bring hope to the PID community. ๐Ÿ’™

A Second Chance at Life โค๏ธMYPOPIโ€™s SCID survivor, Wazza Reno from Limbang Sarawak, is a living proof that donations save...
06/08/2026

A Second Chance at Life โค๏ธ

MYPOPIโ€™s SCID survivor, Wazza Reno from Limbang Sarawak, is a living proof that donations save lives.

Born with Severe Combined Immunodeficiency (SCID), Wazza was given a second chance through the kindness and generosity of people who believed every child deserves the opportunity to grow up healthy.

Your support is more than a donation - it is HOPE, HEALING, AND THE GIFT OF LIFE.

Together, we can ensure that more children like Wazza have the chance to smile, dream, and built a future.

Because every child deserves a second chance.

๐Ÿ‘‰ Donate directly to:

Persatuan Pesakit Imunodefisiensi Primer Malaysia (MYPOPI)
Maybank Account: 5148 9706 4622

๐Ÿ“Œ Tax exemption for donors
All donations made to Persatuan Pesakit Imunodefisiensi Primer Malaysia (MYPOPI) are eligible for income tax exemption under Subsection 44(6), Income Tax Act 1967.
Reference No.: LHDN.01/35/42/51/179-6.8744
Approval Period: 1 January 2023 โ€“ 31 December 2027

๐Ÿ“ง To receive your official tax exemption receipt, kindly email us at [email protected] with the following details:

* Full Name
* IC No.
* Full Address
* Proof of Donation

Together, we can change a life. โค๏ธ




04/08/2026

๐Ÿ’™ FINAL PUSH โ€“ Help Us Reach Our Goal! ๐Ÿšดโ€โ™‚๏ธ

Weโ€™re excited to share that SEPEDA Borneo Amal 2026 has received media coverage, helping bring greater awareness to this meaningful cause.

As we enter the final phase of this campaign, we need ๐จ๐ง๐ž ๐Ÿ๐ข๐ง๐š๐ฅ ๐ฉ๐ฎ๐ฌ๐ก ๐Ÿ๐ซ๐จ๐ฆ ๐จ๐ฎ๐ซ ๐œ๐จ๐ฆ๐ฆ๐ฎ๐ง๐ข๐ญ๐ฒ. MYPOPI is honored to be one of the two beneficiaries, supporting children living with Primary Immunodeficiency (PID).

๐ŸŽฏ Every donation brings us closer to providing essential support and care for PID patients and their families.

๐Ÿ’™ Make your contribution today through the official SEPEDA Amal Borneo website: https://sab.mma.org.my/

๐Ÿ“ฒ Unable to donate? You can still help by sharing this video with your family, friends and colleagues. Your share may inspire someone else to make a difference.

Every contribution, big or small, brings hope.

Thank you for standing with MYPOPI and supporting this meaningful cause. ๐Ÿ’™

04/08/2026

๐Ÿ’™ FINAL PUSH โ€“ Help Us Reach Our Goal! ๐Ÿšดโ€โ™‚๏ธ

Weโ€™re excited to share that SEPEDA Borneo Amal 2026 has received media coverage, helping bring greater awareness to this meaningful cause.

As we enter the final phase of this campaign, we need ๐จ๐ง๐ž ๐Ÿ๐ข๐ง๐š๐ฅ ๐ฉ๐ฎ๐ฌ๐ก ๐Ÿ๐ซ๐จ๐ฆ ๐จ๐ฎ๐ซ ๐œ๐จ๐ฆ๐ฆ๐ฎ๐ง๐ข๐ญ๐ฒ. MYPOPI is honoured to be one of the two beneficiaries, supporting children living with Primary Immunodeficiency (PID).

๐ŸŽฏ Every donation brings us closer to providing essential support and care for PID patients and their families.

๐Ÿ’™ Make your contribution today through the official SEPEDA Amal Borneo website: https://sab.mma.org.my/

๐Ÿ“ฒ Unable to donate? You can still help by sharing this video with your family, friends and colleagues. Your share may inspire someone else to make a difference.

Every contribution, big or small, brings hope.

Thank you for standing with MYPOPI and supporting this meaningful cause. ๐Ÿ’™

22/07/2026

๐Ÿšจ Just one click to save a life. We need you. ๐Ÿšจ

Meet 1-year-old Elizabeth Bella. She is fighting SCID and urgently needs a RM70,000 bone marrow transplant. Bella and other brave kids deserve a fighting chance and we can give it to them. ๐Ÿฅน

On behalf of the Malaysian Students' Surgical Society (MSSS), we are proud to support Sepeda Amal Borneo 2026 (SAB2026)! ๐Ÿšดโ€โ™‚๏ธ๐Ÿ’จ

From 26โ€“31 July, cyclists will tackle a grueling 680KM route from Kota Kinabalu to Miri. Organized by the Malaysian Medical Association Foundation (MMAF), this premier event funds life-saving paediatric surgeries and supports children with Primary Immunodeficiencies (PID).

This initiative proudly supports the Malaysian Patient Organisation for Primary Immunodeficiencies (MyPOPI) MyPOPI and the Malaysian Association of Paediatric Surgery (MAPS).

๐Ÿ“ข Calling the general public

Hereโ€™s how you can help Bella and other kids in need:

1๏ธโƒฃ DONATE: Every ringgit counts, and all donations are tax-exempt!
2๏ธโƒฃ SHARE: Repost this video to your stories and group chats. Awareness saves lives.

๐Ÿ‘‰ Link to donate and support the cause!
https://sab.mma.org.my

Letโ€™s make a difference together. ๐Ÿค



P/s: video is recorded and posted with consent from patientโ€™s mother and UMMC

22/07/2026

๐Ÿ“ฃ Spread Awareness by Sharing and like ๐Ÿ‘

Address

Jalan Yaacop Latiff, Bandar Tun Razak
Kuala Lumpur
56000

Opening Hours

Monday 08:30 - 18:00
Tuesday 08:30 - 18:00
Wednesday 08:30 - 18:00
Thursday 08:30 - 18:00
Friday 08:30 - 18:00

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