11/05/2026
【PART 1:发动筹款】肿瘤大到像挂着一袋重物,他已无法正常吃饭、睡觉,连站着洗澡3分钟都撑不住……26岁生产部主管下颌骨遭巨瘤侵蚀,恐癌变、骨裂甚至危及性命,急筹8万令吉保命手术费
【PART 1: Fundraising】“The tumour has grown so huge, it feels like a heavy bag hanging from his face…” 26-year-old production supervisor can no longer eat or sleep properly, and cannot even stand for more than 3 minutes while showering. Massive jaw tumour threatens cancerous changes, bone fracture and even his life. He urgently needs RM80,000 for life-saving surgery.
“我现在连嘴巴都关不上,每天一直流口水、流血水,连睡觉都很痛苦。我真的很怕,怕自己等不到孩子长大...”
下巴上的巨大肿瘤,已经把26岁的生产部主管折磨得不像原本的自己。原本只是一个小肿块,如今却大到几乎占据整个下颌,不仅让他说话困难、无法正常进食,就连最基本的站立和睡眠,也成了一种煎熬。
来自槟州大山脚的26岁Mohamad Khamarul Bin Johariusin,5年前开始发现下巴出现肿胀。起初只是轻微隆起、不痛不痒,他一直以为只是普通牙龈问题,直到肿瘤越来越大,情况开始失控。
这些年来,他四处求医、拔牙、抽脓、检查,却始终找不到真正病因。直到去年底,他的下巴已经肿大到无法闭上嘴巴,整张脸严重变形,才终于被确诊患上下颌骨成釉细胞瘤(Mandible Ameloblastoma)。
【肿瘤不断扩大,已严重影响正常生活】
如今,他的下巴肿瘤体积已大得惊人,犹如脸上挂着一袋沉重的肉块,不仅不断流出口水、脓液及血水,也压迫神经导致长期头痛、失眠及身体失衡。
他已经无法正常咀嚼,只能靠粥水、牛奶及软烂食物维持体力。由于肿瘤重量过重,他甚至无法久站,连洗澡站超过3分钟都必须坐下休息,走路也开始不稳定。
更令人担心的是,医生警告,若继续拖延,肿瘤未来可能发生癌变,甚至导致下颌骨骨折,后果不堪设想。
他曾被转介到政府医院接受治疗,医生原本计划为他进行全下颌骨切除及骨移植重建手术。但由于手术极度复杂,下颌骨周围神经连接脑部,过程中甚至可能导致中风或死亡,所以才被转介到专科医院。
医生告知,完成手术后约两个月即可逐渐恢复工作能力,未来也有机会重新装上假牙,恢复正常生活。
然而,这项保命手术费用高达8万令吉,对如今已经陷入困境的一家人而言,无疑是天文数字。
Mohamad Khamarul原本月薪4187令吉,但自去年9月开始已被迫拿无薪假至今。公司已通知,若5月后仍无法复工,他将面对失业。妻子Nurul Aisyah Vanaja(27岁)是家庭主妇,两人育有两名年幼孩子,分别只有1岁及3个月大。
如今,这名26岁的年轻父亲,正在与病魔拼命争时间。他不是想放弃人生,而是想活下去;想继续工作养家;想看着1岁的儿子长大,也想亲手抱着才3个月大的女儿,陪他们走更远的未来。
经过家访及审核,大山脚瑶池金母慈善基金会(One Hope Charity)议决协助筹募所需费用。家属亦已正式委托本会全权处理筹款事宜及代收善款。
如有疑问,可联络本会热线 04-539 9212 / 016-419 2192 / 019-232 2192 / 018-911 4192。
【捐款方式-汇入指定户口/通过 One Hope Charity APP 汇款】
以下户头是专用来筹集Mohamad Khamarul所需费用,万分感激。
户头 : One Hope Charity & Welfare
银行 : Public Bank Berhad
户头号码 : 3193433435
Swift Code : PBBEMYKL
本会从2021年9月26日起,一律采用电子收据,善心人士可以通过以下链接申请普通或免税收据,https://www.onehopecharity.org/receipt-requesting/
群众可通过One Hope Charity APP 或官网 www.onehopecharity.org 捐款,收据将直接电邮至捐款者邮箱。
声明1:不得窜改本官方专页所发布的内容,违规者本会将依法追究责任。
声明2:欢迎各界分享(share),不得以复制及张贴(copy & paste)到其他专页(page)。
---------------------------------
【PART 1: Fundraising】“The tumour has grown so huge, it feels like a heavy bag hanging from his face…” 26-year-old production supervisor can no longer eat or sleep properly, and cannot even stand for more than 3 minutes while showering. Massive jaw tumour threatens cancerous changes, bone fracture and even his life. He urgently needs RM80,000 for life-saving surgery.
“I can’t even close my mouth anymore… saliva and blood keep flowing every day, and even sleeping has become painful. I’m really scared… scared that I won’t live long enough to watch my children grow up…”
The massive tumour growing on his jaw has completely changed the life of this 26-year-old production supervisor. What started as a small lump has now expanded to the point where it has almost taken over his entire lower jaw, making it difficult for him to speak, eat normally, or even perform basic activities like standing and sleeping without suffering.
Mohamad Khamarul Bin Johariusin, 26, from Bukit Mertajam, Penang, first noticed swelling around his jaw about five years ago. At the beginning, the swelling was small and painless, and he thought it was merely a gum problem. However, as the tumour continued to grow larger over time, the situation gradually spiralled out of control.
Over the years, he sought treatment everywhere, undergoing tooth extractions, drainage procedures and countless medical check-ups, yet doctors were unable to identify the real cause. It was only by the end of last year, when the swelling became so severe that he could no longer close his mouth and his face became badly deformed, that he was finally diagnosed with Mandible Ameloblastoma.
【Tumour Continues Expanding, Severely Affecting Daily Life】
Today, the tumour on his jaw has grown to an alarming size, resembling a heavy mass hanging from his face. It constantly leaks saliva, pus and blood, while also pressing against surrounding nerves, causing chronic headaches, sleepless nights and balance problems.
He is now unable to chew food properly and survives mainly on porridge, milk and soft foods. Due to the extreme weight of the tumour, he can no longer stand for long periods. Even while showering, he is forced to sit down after standing for more than three minutes, and he has also begun experiencing difficulty walking steadily.
Even more worrying, doctors warned that if the tumour continues to be left untreated, it may eventually turn cancerous or even cause his jawbone to fracture, leading to devastating consequences.
He was previously referred to a government hospital for treatment, where doctors planned to perform a total mandibulectomy together with bone graft reconstruction surgery. However, due to the complexity and high risks involved, as nerves surrounding the jaw are connected to the brain, the surgery could potentially result in stroke or even death, which was why he was eventually referred to a specialist hospital.
Doctors explained that if the surgery is successful, he may gradually regain the ability to work within about two months, and may even be able to have dentures fitted again in the future to restore a more normal life.
However, the life-saving surgery costs RM80,000, an amount that is impossible for the family to afford under their current circumstances.
Mohamad Khamarul previously earned a monthly salary of RM4,187, but has been on unpaid leave since September last year due to his worsening condition. His employer has informed him that if he is unable to return to work after May, he may lose his job.
His wife, Nurul Aisyah Vanaja, 27, is a housewife, and the couple has two very young children, a one-year-old son and a three-month-old baby daughter.
Today, this 26-year-old father is racing against time in his battle against the disease. He does not want to give up on life. He simply wants the chance to survive, continue supporting his family, watch his one-year-old son grow up, and hold his baby daughter in his arms as she grows through the years ahead.
After conducting a home visit and reviewing the case, One Hope Charity has decided to assist in raising the required medical funds. The family has also officially authorised One Hope Charity to fully handle the fundraising process and receive donations on their behalf.
For enquiries, please contact One Hope Charity hotline at 04-539 9212 / 016-419 2192 / 019-232 2192 / 018-911 4192.
【Donation for Mohamad Khamarul】
The account below is use for the fundraising. Thank You.
Acc Name : One Hope Charity & Welfare
Bank Name : Public Bank Berhad
Acc No : 3193433435
Swift Code : PBBEMYKL
From September 26, 2021, only electronic receipts will be issued. Donors can apply for normal or tax-exempt receipts through https://www.onehopecharity.org/receipt-requesting/.
has been go live. The public can download it through and , or browse the official website www.onehopecharity.org to donate. The receipt will be emailed directly to the donor, thank you.
Your kind attention towards this matter is much appreciated, hoping that the generous public could lend a helping hand, attached herewith some photos for your reference. Thank you.
**Disclaimer: Any alteration of this post is strictly prohibited. Stern actions will be taken against the offenders.