๐๐ฎ๐ฆ๐๐ฅ๐ ๐๐๐ ๐ข๐ง๐ง๐ข๐ง๐ ๐ฌ
In 1997, a group of Professional Volunteers under the leadership of Youssouf Noormamode, C.S.K, Founder of EDYCS Epilepsy Group rallied together to form a voice for epilepsy in the Republic of Mauritius. Since 1997, we have been serving the country as a registered health charity incorporated under the statutes of the Registrar of Associations as a non-profit and non-governmental
organization. We aim to advocate the Rights of Persons with epilepsy, raise public awareness, improve education through publications, conferences and outreach initiatives.
๐๐ก๐๐ซ๐ ๐๐ซ๐ ๐ฐ๐ ๐ง๐จ๐ฐ? Today, EDYCS Epilepsy Group has 4 full time established operating Centers in Mauritius and Rodrigues islands. Over the years, the structure and management have evolved into an organization much greater than the founding group of members could have imagined. Through it all however, our mission remains unchanged:
EDYCS Epilepsy Group exists to promote independence and optimal quality of life for those living with seizure disorders by promoting information, awareness, support services, advocacy, education and research.
๐๐ก๐๐ญ ๐ข๐ฌ ๐๐ฉ๐ข๐ฅ๐๐ฉ๐ฌ๐ฒ? Epilepsy is estimated around more than 20,000 people in the Republic of Mauritius. It is the most common serious brain disorder affecting people of all ages, religions, communities and social backgrounds. Epilepsy is a tendency to have recurrent seizures called โfitsโ or โseizuresโ which originate from the brain. These result from disturbances in the brainโs normal electrical activity. Congenital abnormalities, prenatal and perinatal factors, severe head trauma or injury, infections of the brain, cerebrovascular disease, brain malformations, cerebral tumors can lead to epilepsy. Learning disability and behavior disturbance are also commonly found in many people with chronic epilepsy.
๐๐ฎ๐ซ ๐๐ข๐ฌ๐ข๐จ๐ง
EDYCS Epilepsy Groupโs vision is to create an epilepsy free community.
๐๐ฎ๐ซ ๐๐ข๐ฌ๐ฌ๐ข๐จ๐ง
EDYCS Epilepsy Group is dedicated to promoting independence and optimal quality of life for children and adults living with seizure disorders through the development of appropriate strategies, programs and services addressing their needs and fulfilling their Rights.
๐๐ฎ๐ซ ๐๐๐ฅ๐ฎ๐๐ฌ
Our members are patients and family focused. We work cross sectors to bring epilepsy out of the shadows in the Republic of Mauritius, its outer islands and Africa.
๐๐ฎ๐ซ ๐๐๐ฒ ๐๐๐ฃ๐๐๐ญ๐ข๐ฏ๐๐ฌ
โข Advocate for the Rights of People with Epilepsy in line with the UNCRPD and the African Charter on Human Rights of People with Disabilities
โข Promote epilepsy awareness and education to create acceptability of the disorder
โข Provide epilepsy care services including therapeutic and psychological support to People with Epilepsy
โข Promote inclusive education for children and young adolescents with epilepsy and learning disorders
โข Engage Professional Volunteers to support our programs and projects
โข Mobilize both technical and financial resources to achieve planned programs and services
โข Develop close working partnership with Government Agencies, Donor funding Institutions Private Foundations, the Media and the Private Corporate Sector to achieve our mission
โข Organize training workshops in epilepsy management targeting medical and non-medical Professionals
โข Create linkage and collaboration with Regional and International Organizations in epilepsy
โข Raise high the profile of epilepsy, its medical and social consequences with Parliamentarians to advance the epilepsy agenda
๐๐ฎ๐ซ ๐๐จ๐ซ๐ ๐๐ซ๐๐๐ฌ ๐จ๐ ๐๐จ๐ซ๐ค
โข Advocacy in Human Rights & Policies
โข Campaigning epilepsy out of the shadows under the WHO/ILAE/IBE Global Campaign against epilepsy
โข Employability of Persons with epilepsy
โข Epilepsy Care Support Services
โข Inclusive Education
โข Membership
โข Mobilization of resources
โข Publications
โข Training
โข Volunteers
โข Womenโs with epilepsy empowerment
๐๐ฎ๐ซ ๐๐๐ ๐ข๐ฌ๐ญ๐ซ๐๐ญ๐ข๐จ๐ง
โข Registrar of Associations, Government of Mauritius Licence 5268
โข National Social Inclusion Foundation N/2017/0154
โข Government of Mauritius Business Registration Number A19000212
โข Ministry of Education (SENS Unit) / Special Education Needs Authority
โข Disability Unit Ministry of Social Integration , Social Security and National Solidarity
๐๐ฎ๐ซ ๐๐๐๐ข๐ฅ๐ข๐๐ญ๐ข๐จ๐ง (๐๐๐ฎ๐ซ๐ข๐ญ๐ข๐ฎ๐ฌ)
โข Port Louis Regional Youth Council / National Youth Council
โข National Council for the Rehabilitation of Disabled Persons
โข Mauritius Family Planning Welfare Association
โข Indian Ocean Disability Network (IODN)
โข Foodwise
๐๐ฎ๐ซ ๐๐๐๐จ๐ ๐ง๐ข๐ญ๐ข๐จ๐ง (๐๐๐ฎ๐ซ๐ข๐ญ๐ข๐ฎ๐ฌ)
โข Ministry of Social Integration, Social Security and National Solidarity
โข Ministry of Education (SENS Unit)
โข Ministry of Health & Wellness
โข Ministry of Gender Equality and Family Welfare
โข Ministry of Justice, Human Rights and Institutional Reforms
โข Ministry of Youth Empowerment, Sports and Recreation
โข World Health Organisation Country Office Mauritius
๐๐ฎ๐ซ ๐๐๐ ๐ข๐จ๐ง๐๐ฅ & ๐๐ง๐ญ๐๐ซ๐ง๐๐ญ๐ข๐จ๐ง๐๐ฅ ๐๐๐๐ข๐ฅ๐ข๐๐ญ๐ข๐จ๐ง๐ฌ
โข Africa Disability Alliance
โข IBE Africa Regional Committee
โข International Bureau for Epilepsy
๐๐ฐ๐๐ซ๐๐ฌ
โข Outstanding NGO Award (Mauritius Council of Social Services) Year 1999
โข Oscar de la Jeunesse Award (Ministry of Youth & Sports) Year 1999
โข Outstanding NGO Award (Mauritius Council of Social Services) Year 2000
โข Nominee Oscar de la Jeunesse Award (Ministry of Youth & Sports) Year 2000
โข United Way Volunteer Award Year 2002
โข Nominee AOYP Junior Economic Chamber Year 2002
โข Outstanding NGO Award (Mauritius Council of Social Services) Year 2003
โข Nominee National Youth Council Project Award Year 2004
โข United Way Mauritius Best Affiliate Award Year 2005
โข 1st Prize National NGO Award (Ministry of Social Security, NGO Trust Fund & MACOSS) Year 2008
โข 1st Prize Lifetime Achievement Award (Mauritius Council of Youth Leaders) Year 2009
