The Lebanese Association for Hemophilia (LAH) is a non-governmental organization established in 1992 and recognized by decree 106/AD. It aims to “improve the medical, social, educational and professional situation of the Person With Hemophilia (PWH) and make them partners in managing their disease”. Hemophilia is a blood clotting disorder that affects significantly the lives of children and adults
. People affected have a partial or total deficiency of a necessary protein for the normal blood clotting called coagulation factors. PWH may suffer from uncontrollable bleedings following a bruise or a minor injury. Bleeding into the joints and muscles may cause an acute pain and with time lead to disabilities, while the internal bleeding in the vital organs like the brain, may lead to the death of the patient. If they benefit from the “global treatment or the comprehensive care” People With Hemophilia can lead a normal and healthy life. On the other hand, people who do not receive the care needed, risk of dying at a young age, or even if they can manage to survive they risk suffering later from the joints disabilities. The Lebanese Association for Hemophilia has created in 2000 the only “Hemophilia Treatment Center (HTC)” that provides various services of diagnosis and treatment for the PWH and other bleeding disorders. The HTC ensures especially multidisciplinary consultation, physical therapy, dental care, post-operative follow ups, genetic counseling and psychosocial follow ups for the patients and their families. Furthermore, the Lebanese Hemophilia Association provides a factor concentrate treatment support for the patients in case of hemorrhagic emergencies. The association is a member in the World Federation of Hemophilia which includes 118 national associations worldwide. These associations celebrate each year the World Hemophilia Day on April 17th. For more information call :
+9614713055 Association's center
+9613286886 President Solange Sakr
