Kenya Haemophilia Association

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29/04/2026

Yesterday, we conducted a successful haemophilia management training for 20 healthcare professionals at Kilifi Referral Hospital. Aimed at strengthening patient care across various medical cadres, the session was followed by a comprehensive clinic assessment. It was a productive day of learning and collaboration, further building our capacity for improved health outcomes.

World Federation of Hemophilia Novo Nordisk Foundation Novo Nordisk Haemophilia & Haemoglobinopathies Foundation

27/04/2026

KENYA HAEMOPHILIA ASSOCIATION (KHA) | PARLIAMENTARY ENGAGEMENT UPDATE: National Assembly | April 21, 2026
KHA presented Public Petition No. 001 of 2026 to the National Assembly Health Committee, advocating for enhanced care for haemophilia and other bleeding disorders within Kenya.
Key agreements reached include:
• Incorporation of haemophilia within Social Health Authority (SHA) benefits.
• Establishment of a national patient registry, in alignment with the Digital Health Act.
• Expansion of specialized treatment centers.
• Inclusion of haemophilia medications in the Essential Medicines List.
• Training initiatives for community health workers.
• Allocation of a dedicated budget line in the June 2026 budget.
• Reinforcement of procurement and supply chain systems.
• Formal parliamentary tabling and consideration of the petition.
• Endorsement for a specific haemophilia budget allocation within the June 2026 fiscal cycle.
Path Forward:
This engagement represents a significant advancement in bolstering haemophilia care in Kenya. KHA remains committed to collaborating with governmental bodies and partners to ensure the realization of these commitments, thereby facilitating early diagnosis and equitable access to treatment for all affected patients.
World Federation of Hemophilia Novo Nordisk Foundation Novo Nordisk Haemophilia & Haemoglobinopathies Foundation

20/04/2026

In line with the theme of World hemophilia day celebration Diagnosis: First Step toward Care" The event commenced at 9:25 a.m. with an awareness walk from Kakamega General Hospital to Kakamega town and back. The walk was flagged off by the Dr. Stephen Wande - Director of Medical Service, Kakamega County, with the aim of creating awareness about hemophilia among the general public.
The main event was later officially graced by the County Executive Committee (CEC) Member for Health Services, CPA Livingston Imbai. In his address, he emphasized the importance of including hemophilia in the County Revolving Fund as well as in the Social Health Insurance package. He pledged his support for the program and committed to expanding awareness efforts across the Western region. He also acknowledged the critical role of factor concentrates in the management of hemophilia and assured that the County Government would explore ways to improve access to these essential treatments.
Despite unfavorable weather conditions, the event recorded a strong turnout, including parents, patients, and clinicians from various Hemophilia Comprehensive Care Centers (HCCs) such as Bungoma, Kisumu, Busia, Kapenguria, Kisii, and Moi Teaching and Referral Hospital (MTRH). Other stakeholders present included the Chronic Diseases Society of Kenya, DAMKA, Path-Care, and KMTC.
Additionally, comprehensive patient check-ups were successfully conducted, including disability assessments, dental evaluations, and a blood donation drive.

World Federation of Hemophilia Nordisk Foundation Nordisk Haemophilia & Haemoglobinopathies Foundation (NNHF)

19/04/2026

On the 17th Of April 2026, we joined the global community in marking World Haemophilia Day 2026 under the theme “Diagnosis: The First Step to Care” at Port Reitz Subcounty Hospital.
The event brought together healthcare workers, patients, caregivers, and community members in a united effort to raise awareness on haemophilia and other inherited bleeding disorders. Activities kicked off with an awareness walk through the Port Reitz community, followed by engaging health talks and powerful lived-experience stories that underscored the importance of early diagnosis and continuous care.
The celebration was graced by Dr. Mohammed Hanif, Director of Medical Services, Mombasa County, who emphasized the need to strengthen health systems to ensure timely diagnosis and access to treatment for all. Dr. Saumu Wayua, Acting CEO of Coast General Teaching and Referral Hospital, highlighted the importance of integrating haemophilia care into broader healthcare services to improve patient outcomes.
Healthcare providers and patient advocates also shared critical perspectives. Betty Mbogo, Nurse in Charge at the CGTRH Haemophilia Clinic, stressed the importance of early diagnosis and proper management, especially among children. David Atati patient representative, spoke on living with haemophilia and the need for improved access to treatment and support systems. Suleiman Mwafisi, a parent representative, highlighted the challenges faced by caregivers and called for stronger community and institutional support.
Across all voices, one message stood out, haemophilia is manageable, but only if diagnosed early and treated consistently. There was also a strong call to ensure women and girls are included in screening and care, while addressing stigma through continuous community awareness.
This was more than a commemoration, it was a call to action. Together, we move closer to a future where every person living with haemophilia is diagnosed early and receives the care they deserve.

World Federation of Hemophilia Novo Nordisk Haemophilia & Haemoglobinopathies Foundation Novo Nordisk Foundation

18/04/2026

The Kenya Haemophilia Association (KHA) joined the global community to mark World Haemophilia Day 2026 under the theme, "Diagnosis: The First Step to Care." The event brought together clinicians, policymakers, partners, and patients to strengthen haemophilia care across Kenya.
Dr. Ouma Oluga, Principal Secretary for the Ministry of Health, emphasized the need for intentional and systematic diagnosis, supported by a robust health system. KHA highlighted progress made so far, including the establishment of 28 treatment centres nationwide, while also recognizing its leadership role in advancing haemophilia care within the country and through collaboration with regional partners.
KHA Patron Hon. David Ole Sankok noted that a parliamentary petition has been filed to secure sustainable government funding for haemophilia care. At Kenyatta National Hospital (KNH), clinics currently see approximately 20 patients daily, with a growing patient registry of 456 individuals. Plans are also underway to establish a regional training centre.
Dr. Richard Lesiyampe, KNH CEO, reaffirmed the hospital's commitment to delivering world-class care, including plans to introduce gene therapy.
World Federation of Hemophilia Novo Nordisk Haemophilia & Haemoglobinopathies Foundation Novo Nordisk Foundation Kenyatta National Hospital

17/04/2026

On World Hemophilia Day, the Kenya Haemophilia Association stands with the global bleeding disorders community to raise awareness and strengthen advocacy.
In Kenya, many people with bleeding disorders remain undiagnosed. We call on healthcare providers, policymakers and communities to support early diagnosis, access to care and awareness so that no one is left behind.
Together with World Federation of Hemophilia, we continue working toward a future where every person with a bleeding disorder is identified, supported and treated.

26/03/2026

With proper care and support, people living with haemophilia can attend school, build careers, participate safely in sports, and live full, meaningful lives. Haemophilia does not define your future, it’s just one part of your journey.
If you or a loved one is living with haemophilia and needs support, guidance, or access to care, don’t hesitate to reach out. Help is available, and early support makes a difference. Contact us today via +254 111 659 442 or +254 113 199 885 to learn more and get the assistance you deserve.

23/03/2026

With early diagnosis, consistent treatment, and strong support from family and community, every child has the chance to thrive. They can go to school, enjoy playtime, and confidently pursue their dreams, just like any other child.
Let’s work together to ensure no child is left behind. Early diagnosis and proper care make all the difference.

20/03/2026

Today we mark World Oral Health Day under the theme: “A Happy Mouth is A Happy Life.” At KHA, we recognize that oral health is a vital part of overall wellbeing, especially for people living with bleeding disorders like haemophilia. Healthy gums and teeth help prevent complications such as prolonged bleeding during dental procedures and infections that can impact quality of life.
A healthy smile goes beyond appearance; it’s about comfort, confidence, and living life fully.

19/03/2026

Did you know?
Genetic counseling and testing play a crucial role in the early diagnosis of haemophilia. It helps healthcare providers identify the specific type and severity of the condition, enabling the creation of personalized treatment plans tailored to each child's needs.
Early diagnosis can make all the difference.
Take action today: Seek counseling and testing, know your status, and support better care.

17/03/2026

Haemophilia is often seen as a condition mainly affecting men, but women can and do live with it, too. Unfortunately, many women face underdiagnosis, misdiagnosis, or delayed diagnosis, which can put them at risk of serious health issues. Unexplained bleeding, easy bruising, or prolonged bleeding after minor procedures should never be ignored. Early detection makes a huge difference.
👉 Take action today: Make regular testing part of your health routine. Early diagnosis leads to better management, an improved quality of life, and reduced risks. Let’s break the silence and ensure women receive the diagnosis and care they deserve.

13/03/2026

Early diagnosis can make a life-changing difference for people living with bleeding disorders such as Haemophilia.
When identified early, individuals can receive proper treatment and care before severe complications occur. This helps prevent repeated bleeding episodes that may lead to joint damage, chronic pain, or long-term disability. Early diagnosis also helps families and caregivers understand the signs of unusual bleeding and seek timely medical attention. With the right care and support, people living with haemophilia can lead healthier, active, and more fulfilling lives.
Raising awareness and encouraging timely testing are important steps toward better health outcomes for everyone affected.

Address

Nairobi

Telephone

0724579549

Website

http://www.haemophilia-kenya.org/

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