Down Syndrome Society of Kenya

Down Syndrome Society of Kenya Down Syndrome Society of Kenya is a nonprofit charity organization working for the promotion of the w

Since 2002, DSSK, a parents group has continued to provide social and professional support for families and people with Down syndrome, giving information and providing practical skills through workshops, profession talks and also publications.

-The Society holds family fun days for its members annually.

-The Society celebrates the UN World Down Syndrome Day every year on March 21st (3-21), and this is lined to the Trisomy 21.

-The Society has been very active in seeking legal reform and presented detailed revisions to Section 39 of the draft constitution that relates to persons with disability to the Constitution of Kenya Review Commission.

-DSSK presented revisions to the Persons with Disability Act 2003 and gave input into the National Policy on Persons with Disability.

-The Society also presented its views to the National Task Force on Special Education, and recommended a policy of inclusion of children with Down syndrome in government schools under the free primary education programme and accelerating development of special education teachers for the public schools system.

We’re happy to share a valuable free resource for families in our community - designed to build everyday life skills thr...
24/07/2026

We’re happy to share a valuable free resource for families in our community - designed to build everyday life skills through play.

321 Playsy is an interactive app developed by Down Syndrome Digital for children with Down syndrome and other learning differences, helping them learn through play, stories, and real-life situations.

It supports the development of:
● Communication and social skills
● Independence in daily routines
● Confidence in navigating everyday situations

The app is simple to use, engaging for children, and can be used at home as part of daily routines.

👉 Access 321 Playsy here: [https://downsyndrome.go.link/fyqJv]

When You Hear the Words "Your Baby Has Down Syndrome": What Every Parent Needs to Know.  Read this blog written by a par...
22/07/2026

When You Hear the Words "Your Baby Has Down Syndrome": What Every Parent Needs to Know. Read this blog written by a parent.

"Amid all these questions, one thing is worth holding onto, your baby is still the same baby you loved before those words were spoken. A diagnosis does not change who they are. It simply gives you a better understanding of how to support them as they grow"

There are moments in life that divide time into before and after. For many parents, hearing the words "Your baby has Down syndrome" is one of those moments.

01/07/2026

How do we move from policy to impactful, on-the-ground reality? Join us tomorrow for an insightful webinar exploring the newly launched CBID Training Manual, Awareness Booklet, and Strategic Framework (2026–2030).
We are proud to share that Benson Kiptum, Head of Programmes at the Kenya Society for the Blind (KSB), will be joining an esteemed panel of experts to unpack how these frameworks will drive institutional change and disability inclusion across communities.
🗓️ Date: Thursday, 2nd July 2026
🕙 Time: 10:00 AM – 11:00 AM EAT
📍 Platform: Zoom

Don't miss this critical conversation on advancing inclusive development.
🔗 Register here to secure your spot: https://shorturl.at/6AwOH

National Council for Persons with Disabilities (NCPWD) The Action Foundation

Last week(21st-22nd May), we joined different organizations at the Disability, The Bible and the Church Conference 2026 ...
25/05/2026

Last week(21st-22nd May), we joined different organizations at the Disability, The Bible and the Church Conference 2026 organized by Hope Mobility Kenya a, Chapel, CITAM Churches, and other partners. The conference was based on Luke 14:12-23, “Called to include all at the table.”

The discussions focused on restoring dignity, ensuring no one is left out, and understanding that accessibility in church goes beyond buildings and architectural design. There were important conversations on inclusion, belonging in church, disability mainstreaming, moving from charity to a rights-based approach, and ensuring disability issues are included in budgets and policies.

It was also emphasized that churches have a strong influence in society and should take the lead in speaking for inclusion and the marginalized. Agencies and organizations were encouraged to work closely with churches to make inclusion practical and meaningful.

This being the first church conference of its kind, it was truly impactful, and we are happy to see the church actively involved in disability inclusion conversations. We are glad to continue being part of these conversations.

It was a pleasure to host a courtesy call meeting with Dr. Rhonda Faragher, Director of the Down Syndrome Research Progr...
20/05/2026

It was a pleasure to host a courtesy call meeting with Dr. Rhonda Faragher, Director of the Down Syndrome Research Program at The University of Queensland, together with Monica Cortes the Executive Director of Asdown Colombia.

The discussions focused on inclusive education, legal capacity, advocacy, and research opportunities for adults with Down syndrome. The meeting also highlighted the importance of strengthening support and care systems that promote independence, self-determination, and meaningful inclusion.

We also shared the value of partnerships, resource sharing, accurate disability data, and empowering self-advocates and families to create more inclusive communities for persons with Down syndrome.

We are delighted to have participated in the 𝗣𝗿𝗲-𝗡𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗗𝗶𝘀𝗮𝗯𝗶𝗹𝗶𝘁𝘆 𝗗𝗶𝗮𝗹𝗼𝗴𝘂𝗲 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 2026 webinar and the two-day Na...
14/05/2026

We are delighted to have participated in the 𝗣𝗿𝗲-𝗡𝗮𝘁𝗶𝗼𝗻𝗮𝗹 𝗗𝗶𝘀𝗮𝗯𝗶𝗹𝗶𝘁𝘆 𝗗𝗶𝗮𝗹𝗼𝗴𝘂𝗲 𝗖𝗼𝗻𝗳𝗲𝗿𝗲𝗻𝗰𝗲 2026 webinar and the two-day National Disability Dialogue Conference (NDD2026), themed “Transforming Policy into Practice: Co-creating an Inclusive and Prosperous Society by Reimagining Care Systems.”

The conference brought together by key Partners, including the National Council for Persons with Disabilities (NCPWD), CBM Kenya, United Nations Development Programme - UNDP, United Disabled Persons of Kenya -UDPK and many other key partners who contributed to making the event a success.

A powerful call was made to recognize caregiving as full-time work and to reimagine the care system by acknowledging all the essential services and support structures that make it function. Care is not just a single service , it is an entire system that requires collaboration, investment, and inclusion.
Day two of the National Disability Dialogue was marked by the launch of the baseline assessment report on the implementation of the PWD Act 2025 in public institutions, a report developed by the NCPWD.

Overall, the conference continues to provide an important platform for measuring progress in policy implementation, reflecting on key milestones achieved, and discussing the way forward in ensuring that no one is left behind.

  Wishing you a day filled with love, appreciation, and joy.
10/05/2026

Wishing you a day filled with love, appreciation, and joy.

On Monday, 13th April, the Down Syndrome Society of Kenya (DSSK) team hosted Dr. Evan Borisinkoff, Professor of Educatio...
20/04/2026

On Monday, 13th April, the Down Syndrome Society of Kenya (DSSK) team hosted Dr. Evan Borisinkoff, Professor of Education and Inclusive Services at MInot State University. His visit is part of a collaboration with the Institute of Community Inclusion and Exchange Programs under the U.S. Department of State, through a follow-on program with DSSK Secretariat member Roselyne Mburu, a Professional Fellows Program (PFP) alumni.

Through this fellowship, Dr. Borisinkoff and Ms. Mburu co-developed the I RISE Self-Advocacy Toolkit.

Address

Studio House, 1ST Floor Plums Lane, Off Ojijo Road, Westlands
Nairobi
254

Opening Hours

Monday 09:00 - 17:00
Tuesday 09:00 - 17:00
Wednesday 09:00 - 17:00
Thursday 09:00 - 17:00
Friday 09:00 - 17:00

Telephone

+254712321321

Alerts

Be the first to know and let us send you an email when Down Syndrome Society of Kenya posts news and promotions. Your email address will not be used for any other purpose, and you can unsubscribe at any time.

Shortcuts

Share