22/05/2026
Access to resources is essential in the Hypoxic Ischemic Encephalopathy (HIE) journey. Given that is a starter diagnosis, families may face unique challenges as HIE-acquired diagnoses respond differently to therapies and treatments. Drawing from lived experiences and research empowers clinicians and researchers to continually improve care and communities to better support families navigating the HIE journey.
Follow the links below to access valuable HIE resources:
- Hope for HIE Foundation - Hypoxic Ischemic Encephalopathy: https://hopeforhie.org/parents/
- Courageous Parents Network: https://courageousparentsnetwork.org/
- Child Neurology Foundation: https://www.childneurologyfoundation.org/tools-resources/
- Cerebral Palsy Research Network - CPRN: https://cprn.org/
- Epilepsy Foundation: https://www.epilepsy.com/
- Perkins School for the Blind (CVI): https://www.perkins.org/
- Little Bear Sees (CVI initial diagnosis information): https://littlebearsees.org/
- Hands and Voices (Deaf and Hard-of-Hearing): https://www.handsandvoices.org/
- Rare Epilepsy Network (IS, LGS, ESES): https://www.rareepilepsynetwork.org/
