28/02/2026
Today we recognize Rare Disease Day with the global rare disease community.
More than 300 million people worldwide live with a rare disease. Over 7,000 rare diseases have been identified, and most still have no approved treatment. Behind each number is a family learning to navigate a diagnosis they may have never heard before.
Since last Rare Disease Day, the Cure RTD Patient Registry has grown by 48 individuals, bringing us to more than 500 families. Forty eight new journeys. Forty eight reminders that RTD is rare, but it is present in homes around the world. Greater awareness and focused research are helping more patients be identified and connected to support.
Organizations in more than 80 countries are marking this day. Patients, caregivers, clinicians, and researchers stand together to make rare diseases visible and to push for better answers.
Every few days, a child is born with RTD. This is why the day matters. It is about families who show up daily with strength and determination.
To our research team, thank you for the steady, detailed work that drives real progress. And to everyone who supports Cure RTD through donations and advocacy, your partnership makes this work possible.
Rare is not alone. Rare is powerful when united.
Today we honor every person living with RTD and recommit to awareness, research, and the pursuit of a cure.
