Amrithavarshini for osteogenesis imperfecta

Amrithavarshini for osteogenesis imperfecta Amrithavarshini is Dedicated to all the OI of OUR BEAUTIFUL MOTHER EARTH These patients have very fragile bones which can fracture at the slightest bump.

Amrithavarshini is a charitable society for a rare genetic disorder called OSTEOGENESIS IMPERFECTA (OI) commonly known as brittle bone disease. We, at Amrithavarshini aim to better their lives and bring a smile on their face. We impact the lives of our children by making them self reliant by organizing and training them. At present we have over 150 gems under the care of Amrithavarshini,from all o

ver India. Each unique and special in their own separate ways. Amrithavarshini is the sole charitable society working for the welfare of OI patients in kerala. At Amrithavarshini we believe that we can make a difference because It's after all one heart touching another one.. Osteogenesis Imperfecta is a rare among the rare genetic disease. Its main symptom is breaking of the bones in the body without any reason or due to any external force. The weakness in the muscular system, bending of the spinal cord, loss of hearing capacity are the other symptoms seen in a patient affected with Osteogenesis Imperfecta. The cause of this disease is genetic mutations i.e. changes in the way the body is made. A child born with this disease will be bed-ridden and unable to move without the help of someone. People suffering from this disease deteriorate in health over time. To overcome the hardship suffered by these people, what is required is not sympathy or words of consolation; on the contrary it is the moral duty of all of us to create a self confidence in their mind and a feeling or an atmosphere that they are not isolated and there are people who are ready to help them.

24/02/2025

Dear Arghya and Piu,

On behalf of Amrithavarshni and the entire Osteogenesis Imperfecta community, we extend our warmest congratulations to you, Arghya, on successfully clearing the NET and JRF examinations! This is a moment of immense pride and joy, not just for you and your family, but for all of us who have witnessed your relentless dedication and perseverance.

Arghya, your journey has been one of incredible determination. Despite the challenges posed by Osteogenesis Imperfecta, you have proved that no hurdle is too big for a determined mind. Your success is a shining example for many others who aspire to achieve greatness despite the odds. Your unwavering commitment to your dreams and academic excellence is truly commendable.

We also take this opportunity to express our deepest admiration for your mother, Piu. She has been your unwavering pillar of strength, your mentor, and your guiding light. Her dedication as a mother and teacher has played a crucial role in shaping your journey, instilling in you the courage to face challenges with resilience and confidence. Piu, your love, patience, and tireless efforts have not only nurtured Arghya’s growth but have also inspired many parents within our community.

Your achievement stands as a testament to the power of perseverance, family support, and the belief that dreams are achievable, no matter the obstacles. We celebrate this wonderful milestone with you and wish you both continued success in all your future endeavors. May this be just the beginning of many more accomplishments to come!

With heartfelt congratulations and best wishes,
Success is not just about reaching the destination but about the journey that shapes the person you become." Arghya, you are a true inspiration!

23/02/2025

Athulya: A Bold Girl Who Conquered Her Dreams

Amrithavarshni proudly congratulates Athulya, a young woman of extraordinary determination and resilience, for achieving the Junior Research Fellowship (JRF) and National Eligibility Test (NET). Despite the challenges she faced, Athulya never let circumstances define her limits. With unwavering dedication, she pursued her studies, proving that perseverance and hard work can overcome any obstacle.

Her success is not just personal—it is an inspiration to the entire Osteogenesis Imperfecta (OI) community and beyond. Athulya has set a shining example of how courage, ambition, and education can empower individuals to achieve their dreams.

We at Amrithavarshni are incredibly proud of her and wish her continued success in all her future endeavors. Her journey is a beacon of hope for many, reinforcing that disability is not a limitation, but a challenge to be conquered.

Congratulations, Athulya! The future is yours to shine!

20/02/2025

To
The Members of the Indian Society for Systems Science and Engineering

Respected Members,

On behalf of Amrithavarshni, a society for Osteogenesis Imperfecta, I extend my heartfelt gratitude for your generous donation of six powered wheelchairs for children with brittle bone disease. Your kindness and support have brought immense relief and empowerment to these children, enabling them to move towards a life of greater independence and dignity.

We are deeply grateful to Sreelatha Madam and Anitha Madam for introducing Amrithavarshni to your esteemed society. Their efforts have created a bridge of compassion and care that will leave a lasting impact on the lives of these children and their families.

I feel truly blessed to stand alongside my students, Biju Prasad and Prince Aditya Varma, in this journey of service and advocacy. Your generosity strengthens our mission and fills our hearts with hope.

Once again, thank you for your invaluable support and for allowing Amrithavarshni to be part of this noble initiative. We look forward to continued collaboration in making a difference in the lives of those with Osteogenesis Imperfecta.

With deep appreciation,

Latha Nair
Amrithavarshni – A Society for Osteogenesis Imperfecta

20/02/2025

Sandra Soman Mini Ajith: A Beacon of Hope and Determination

In a world where challenges often seem insurmountable, there are individuals who rise above every obstacle, proving that determination and resilience can rewrite destiny. One such extraordinary soul is Dr. Sandra Ajith, a young woman who has defied all odds to achieve her dreams.

Born to Mr. Soman and Mrs. Mini Soman, both retired teachers, Sandra was raised in an environment where education and perseverance were deeply valued. From an early age, she displayed brilliance, standing first in all her academic pursuits, never letting her condition define her capabilities.

Sandra was born with Osteogenesis Imperfecta (OI), a rare condition that makes bones fragile and life unpredictable. Yet, she refused to let these challenges limit her dreams. With unwavering spirit and relentless perseverance, she pursued her passion for medicine—knowing that one day, she would be the healer who brings comfort to others.

Despite the physical struggles, countless hurdles, and moments of doubt, she never gave up, never backed down. She studied at Alappuzha Medical College, proving that talent, hard work, and courage can break every barrier. Today, she stands victorious—not just for herself, but as a shining inspiration for the entire world.

More than just a doctor, Sandra has been a pillar of strength for the Amrithavarshini community, offering hope and encouragement to children with Osteogenesis Imperfecta. She has shown them that dreams have no limits, that success is possible with dedication and belief. Her journey is a testament that no disability can stop a determined heart.

At a time when many seek opportunities abroad, Sandra has chosen to serve her own people, proving that excellence can be achieved anywhere with determination and hard work. As she embarks on her journey at the health center, may she bring healing, hope, and happiness to all who seek her care.

Dr. Sandra Ajith, your name will shine in the medical field, and we at Amrithavarshini for Osteogenesis Imperfecta are incredibly proud to call you one of our own. You are not just a doctor—you are a symbol of resilience, an icon of hope, and a role model for generations to come.

Wishing you all the success in the world, mole! Your journey has just begun, and we know you will soar even higher!

Expressing our deep gratitude to The chief General Manager and her entire Team, State Bank of India, Trivandrum for the ...
15/11/2024

Expressing our deep gratitude to The chief General Manager and her entire Team, State Bank of India, Trivandrum for the unforgettable evening organized for the children of Amrithavarshini, and the remarkable surprises from the CSR fund that made their dreams come true. The children were overjoyed to receive laptops, mobile phones, and electronic wheelchairs—gifts that will immensely improve their lives and open up new opportunities for learning and independence.

Madam, your thoughtful gesture has had a profound impact on these young lives, and your commitment to serving the Osteogenesis Imperfecta community through Amrithavarshini is truly inspiring. We are extremely grateful to you and the team at SBI for your kindness, generosity, and the dedication shown in uplifting our community.

On behalf of Amrithavarshini, we once again extend our heartfelt thanks to you and your entire team for these wonderful gifts. Your support has brought immense joy and encouragement, and we will cherish this memory forever.

Thank you once again from the bottom of my heart.

Latha Nair
Amrithavarshini
Trivandrum

02/11/2024

"Thank you very much, Malayala Manorama, for including my name in this festive occasion. I am truly honored to be part of this celebration that highlights the richness of our art and culture. This recognition is incredibly meaningful to me, and I am deeply grateful for the acknowledgment. Being part of such a respected platform is both inspiring and humbling, and I extend my heartfelt thanks for this wonderful opportunity to celebrate alongside so many talented individuals. Thank you once again for this memorable honor."

"ABOUT USAbout HortusMalayala Manorama, a cornerstone of Kerala’s media and literary heritage, presents HORTUS, a festiv...
02/11/2024

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ABOUT US

About Hortus
Malayala Manorama, a cornerstone of Kerala’s media and literary heritage, presents HORTUS, a festival that cultivates a vibrant space for the exploration of diverse artistic expressions. Inspired by the 17th-century botanical masterpiece, Hortus Malabaricus, the festival envisions a fertile ground – a garden of creativity – where the world’s rich tapestry of literature, music, and the arts comes alive.

Hortus takes root in the culturally rich city of Kozhikode (Kerala) during the first week of November 2024. Recently designated as the ‘City of Literature’ by UNESCO, Kozhikode offers the perfect setting for this multidisciplinary festival, with a focus on literature and books.

Spread across more than eight venues at the Kozhikode beach, the festival will host around 400 writers, speakers and artists from across the country and abroad. Highlights include a curated book fair with over three lakh books, a visual art exhibition presented by the Kochi Biennale Foundation, culinary art experiences, immersive sessions for kids and adults, musical, theatre, stand-up comedy and poetry performances and board game sessions.

About Malayala Manorama
For over 136 years, the Malayala Manorama Group has been a cornerstone of Indian media. Through diverse media offerings and unwavering journalistic values, we have shaped public discourse and enriched the cultural tapestry of the nation. Our commitment extends beyond news, with a deep passion for nurturing the arts, literature and education.

This passion finds its roots in Bhashaposhini, Kerala’s first literary magazine, launched in 1892 by our founder, Sri. Kandathil Varghese Mappillai. Bhashaposhini, meaning ‘nourisher of the language’, exemplifies our dedication to fostering artistic expression.

Hortus embodies this legacy. Inspired by the rich tradition, we strive to create enriching experiences that celebrate arts, literature and culture. Through Hortus, we invite you to explore, engage and be inspired by the vibrant creative landscape we cultivate with you.

JAYANT MAMMEN MATHEW
EXECUTIVE EDITOR MALAYALA MANORAMA

We are delighted to announce the inaugural edition of Manorama Hortus: A Celebration of Art & Literature, a vibrant festival to be held at the Kozhikode beach from November 1 to 3, 2024.

A historic city, Kozhikode has recently been designated the City of Literature by UNESCO and is thus a perfect setting for this lively festival.

Malayala Manorama has for more than a century influenced literary and artistic sensibilities in Kerala. Its literary magazine Bhashaposhini, launched in 1892, continues to command respect among discerning readers.

Over the course of three days, nearly 400 national and international writers and artists will engage in more than 130 sessions.

The Aksharaprayanam, journey of alphabets, has already sparked interest in every major town and is leading the way to the festival venue.

Manorama Hortus is a treat for everyone. Experiences and activities that that will enrich us: book launches, author interaction, conceptual art by Kerala artists, Korean cooking studio, board games, quiz and musical performances.

We look forward to welcoming you to enjoy these immersive experiences at the historic Kozhikode beach.

N S MADHAVAN
FESTIVAL DIRECTOR'S NOTE

Welcome to Hortus, an immersive festival set against the vastness of the sea. This festival invites visitors to reflect on the delicate balance between human expression and the surroundings. Giant backdrop of the sea itself is a telling image of thematic strands that we had striven to weave around in the making of Hortus.

Where do oceans acquire such grandeur? This celebrated couplet by the 18th century Chinese philosopher and politician, Lin Zexu, probably has the answer:

“The sea accepts the waters of a hundred rivers, Its tolerance results in its grandeur.”

By welcoming rivers from all directions the sea doesn’t diminish. At Hortus, we have tried to keep an open door to different, at times conflicting, perspectives, ideas and experiences.

*Nandana – A Journey of Strength and Determination* Nandana is a young Girl of exceptional courage and resilience. Livi...
02/11/2024

*Nandana – A Journey of Strength and Determination*

Nandana is a young Girl of exceptional courage and resilience. Living with Osteogenesis Imperfecta (OI), she faces daily challenges that would daunt most people. Yet, Nandana has not let her condition define her. Through sheer determination and hard work, she has accomplished what many consider a remarkable feat – securing a seat in the prestigious Calicut Medical College to pursue her medical studies.

Her journey serves as an inspiration, not only to those with OI but to everyone around her. Nandana embodies the spirit of perseverance, proving that even in the face of adversity, dreams can be realized. Her story encourages all of us to overcome our limitations and strive toward our goals

Address

Amrithavarshini Charitable Society Opp To Thomson Sofa Near TC 3/2683, Marappalam Road Pattom P. O, Thiruvanathapuram–
Thiruvananthapuram
695004

Opening Hours

Monday 9am - 5pm
Tuesday 9am - 5pm
Wednesday 9am - 5pm
Thursday 9am - 5pm
Friday 9am - 5pm
Saturday 9am - 5pm

Telephone

9895251129

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Amrithavarshini is a charitable society for a rare genetic disorder called OSTEOGENESIS IMPERFECTA (OI) commonly known as brittle bone disease. These patients have very fragile bones which can fracture at the slightest bump. We, at Amrithavarshini aim to better their lives and bring a smile on their face. We impact the lives of our children by making them self reliant by organizing and training them. At present we have over 150 gems under the care of Amrithavarshini, from all over India. Each unique and special in their own separate ways. Amrithavarshini is the sole charitable society working for the welfare of OI patients in kerala. At Amrithavarshini we believe that we can make a difference because It's after all one heart touching another one.. Osteogenesis Imperfecta is a rare among the rare genetic disease. Its main symptom is breaking of the bones in the body without any reason or due to any external force. The weakness in the muscular system, bending of the spinal cord, loss of hearing capacity are the other symptoms seen in a patient affected with Osteogenesis Imperfecta. The cause of this disease is genetic mutations i.e. changes in the way the body is made. A child born with this disease will be bed-ridden and unable to move without the help of someone. People suffering from this disease deteriorate in health over time. To overcome the hardship suffered by these people, what is required is not sympathy or words of consolation; on the contrary it is the moral duty of all of us to create a self confidence in their mind and a feeling or an atmosphere that they are not isolated and there are people who are ready to help them.