Thalassemia Society of Central India is working for welfare of Thalassemia and Sickle Cell patients and prevention of this Illness in the Country especially in the Central part of India since last 22 years. Thalassemia Major and Sickle Cell are one of the hereditary deadly diseases, which are passed on from parents to the child. The only management to make these children survive is periodical bloo
d transfusion which drains economic resources and creates psychological problems. India has an estimated Thalassemia disease burden of more than 10,000 babies / year and a exigency for more than 2.5 lakh units of blood / year. Thalassemia & Sickle Cell are two of the most recognised genetic disease in India, Pakistan, Bangladesh and most of the South East Asian countries. With the view in mind Thalassemia Society of Central India was founded in 1998. Thalassemia and Sickle Cell Society of India has established a hospital for Thalassemia children with all modern technologies at Nagpur. The children suffering from Thalassemia and Sickle Cell are given free medical services. Children who are diagnosed with Thalassemia Major Disease need regular blood transfusion, Thalassemia and Sickle Cell Society of India renders a great service to such children by organising regular blood donation camps and offering blood transfusion to such children free of cost. Thalassemia and Sickle Cell Society of India also getting free blood to these patients. He is instrumental in bringing down the cost of drugs required for these children by apprising Government about the patient’s sufferings from these dreaded disease. Due to efforts of Thalassemia and Sickle Cell Society of India recently Thalassemia and Sickle Cell disease were included in the list of Persons with Disability. He pursued the matter with Central Government (through Minister of Social Justice and Welfare), Maharashtra Government (through Chief Minister of Maharashtra). Now onwards Thalassemia and Sickle Cell patients will get reservation of 5% in education. As many as 50 children suffering from Thalassemia Major disease have undergone Bone Marrow Transplantation which normally costs about 14 Lakh rupees. Thalassemia and Sickle Cell Society of India have got these procedure free of cost for these childrens by raising fund from Prime Minister Relief Fund, Chief Minister Relief Fund and other donors. Thalassemia and Sickle Cell Society of India has played very important role in prevention of Thalassemia and Sickle Cell disease. Besides attempting to check the spread of this disease in the regions like Maharashtra, Madhya Pradesh, Chhattisgarh and other parts of Country, Thalassemia and Sickle Cell Society of India also aims to create awareness about this disease amongst the general mass. With the help of different social activist groups, government institutions, NGOs and Doctors, Thalassemia and Sickle Cell Society of India has so far successfully organised more than 450 free camps for testing Thalassemia Minor. He has so far succeeded in free testing of more than 55000 boys and girls for Thalassemia Minor & Sickle Cell Trait. Almost all the detected cases with Thalassemia minor, Thalassemia and Sickle Cell Society of India has taken appropriate steps to provide adequate information (verbal and printed) on the general and important aspects of Thalassemia and the possible ways by which the disease can be prevented. Those who are found to be Thalassemia Minor are individually counseled and advised not to marry with other Thalassemia Minor and thereby prevent the birth of Major child. In many parts of country, he has organised people’s meet; a conceptual interactive public meeting where scope is generated for exchange of information and queries by specialist medical and social scientist. By doing all this work by Thalassemia and Sickle Cell Society of India has been able to educate the community and thereby have succeeded in decreasing the Thalassemia & Sickle Cell disease bourdons in the country especially in Central part of India.
