Lupus Trust India

Lupus Trust India Lupus Trust India is committed to ensuring quality care for those who cannot afford treatment and we warmly invite you to join us in this journey.

💜 Your Story. Someone’s Strength.This Lupus Month 2026, we’re opening space for real stories aroundLupus and Reproductiv...
26/03/2026

💜 Your Story. Someone’s Strength.

This Lupus Month 2026, we’re opening space for real stories around
Lupus and Reproductive Health — relationships, marriage, fertility, pregnancy, intimacy, caregiving.

Sharing your story can be liberating.
It helps you take control of your narrative — and gives someone else the hope they need.

⸻

🎥 What You Can Share

• Living with lupus as a partner / spouse / parent
• Pregnancy or fertility journey
• Intimacy, body image, emotional health
• Being a caregiver, sibling, friend
• Work, life and relationships with lupus

⸻

đź“© How to Submit
1. Record a simple, real video (no perfection needed)
2. Or send an audio + photo (we’ll create the video)
3. Share photos with your story
4. Anonymous submissions are welcome

This year, we’re especially inviting caregivers, partners, and families to share.

Let’s make lupus visible.
Let’s make stories count.

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Margaret Mead once said, “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed,...
18/11/2025

Margaret Mead once said, “Never doubt that a small group of thoughtful, committed citizens can change the world; indeed, it’s the only thing that ever has.”💜
Our first Lupus Awareness Walkathon in the capital was small, symbolic, and deeply powerful.

To every single person who showed up, you made history with us.

Our plea to the government is simple:
1. Insurance.
2. Disability inclusion.
3. Drug availability. Affordability.
And a system that sees us, hears us, and protects us.

We have built chapters across India in exactly this way—patient by patient, city by city, story by story.
Delhi is now part of that journey.

Nisha, Patient Leader, Lupus Trust India, Delhi Chapter, incredible family—Riya, Keshav —standing strong beside her…
Sachin and Mohit, who travelled from neighbouring districts…
Anand, our fierce lead volunteer who flew in from Kerala…
Isha and her mother, walking with so much grace…
Our design magician Swastika…
Dr. Nirmala and her family…
Nikhil from IBD India, our sincere well wisher…
Akshay Pattiyani, who loves and supports us unconditionally
Our lupus warriors, caregivers, friends…
And the Delhi Police for ensuring our safety and dignity.

And to my own friends who quietly anchor me—you know who you are.
Thank you for being there.

It was the beginning of advocacy in the capital, a quiet but firm statement that lupus is real, life-threatening, invisible, and in urgent need of recognition.

Sincerest wishes,
Vachasamrita
(Co founder & Chairperson, Lupus Trust India)

A huge thank you to Team Niveus Mangalore Marathon and Mangalore Runners Club (MRC) for collaborating with us on this po...
17/11/2025

A huge thank you to Team Niveus Mangalore Marathon and Mangalore Runners Club (MRC) for collaborating with us on this powerful initiative.
Our Lupus Trust India patient leaders—meeting each other for the first time at a walkathon—have now led a 21 km fundraiser run in Mangalore. What a journey. What a moment. 💜

To our firebrand warriors Priyamvada & Naveen—you’ve shown India what resilience looks like.
Naveen, a transplant athlete who has represented India at the World Transplant Games, continues to raise awareness with unmatched courage.

Priyamvada—diagnosed in her 3rd year of MBBS, now a budding psychiatrist and a newbie runner—has been unstoppable. We first met at the Bengaluru walkathon that beautifully organised with her friends and family, where Vachas joined her too from Kochi - together as team Lupus Trust India . From then to 21 km today… what a phenomenal arc of strength.
The funds raised through this run will go directly to critically ill lupus patients who need life-saving support.

We are grateful, inspired, and hopeful.
And yes—this is only the beginning.

If you’re an HNI, CSR head, foundation, institution, or healthcare stakeholder, we’d love to collaborate.
Let’s create impact together through meaningful partnerships in healthcare, research, patient rights, and disability inclusion.

Thank you, MRC. Onward, together.


🌸 A Huge Shoutout to Nisha Panwar 🌸Patient Leader – Lupus Trust India, Delhi ChapterSometimes, the strongest people are ...
16/11/2025

🌸 A Huge Shoutout to Nisha Panwar 🌸
Patient Leader – Lupus Trust India, Delhi Chapter

Sometimes, the strongest people are the ones quietly doing the hardest work.
In the last 48 hours, Nisha has literally run from pillar to post across the capital city — DCP offices, NDMC, Traffic Police — securing permissions for Delhi’s first Lupus Awareness Walkathon.

All this while living with Lupus and Pulmonary ILD.
Breathlessness, fatigue, flare anxiety… and still showing up with determination most people with full health struggle to muster.

This walkathon exists because of people like her — firebrand, committed, no-excuse mindset.

Nisha, thank you for being the force that holds our Delhi Lupus community together.
Your effort is not just work — it’s courage in motion.
We’re proud to walk beside you. 💜

Want a shorter version for Instagram or a more formal one for LinkedIn?

🌸 Welcome, Lupus Warriors & Supporters! 🌸We warmly welcome all our Lupus warriors, your families, friends, our esteemed ...
13/11/2025

🌸 Welcome, Lupus Warriors & Supporters! 🌸

We warmly welcome all our Lupus warriors, your families, friends, our esteemed rheumatologists, and every kind-hearted supporter joining us.

To know more about the Lupus Awareness Walkathon – Delhi 2025, please scan the QR code and join the group. You can also call Nisha Panwar (Patient Leader, Lupus Trust India - Delhi Chapter) anytime if you need details or guidance.

Bring your handmade posters—write what you want the world to hear. Every message counts.

When we stand together with one voice, we strengthen our fight for:
• insurance access
• disability inclusion
• drug availability
• affordability
• dignity and recognition

Together, we are stronger. Together, we rise.
See you all soon! 💜✨

I turned 22 on 8th March 2017, but instead of a celebration, I received the harshest gift life could hand me— a Lupus di...
12/09/2025

I turned 22 on 8th March 2017, but instead of a celebration, I received the harshest gift life could hand me— a Lupus diagnosis. At that time, I was in the middle of my second semester of my master’s.
So, to every lupie reading this: you are stronger than you think, braver than you feel, and more inspiring than you know. Our journeys be quite difficult, but they are also proof of our courage. Keep holding on, keep fighting, and keep believing that your milestones—big or small—matter. 💜

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A Historic Moment for the Lupus Community in India!We are overwhelmed with gratitude to the Honourable MP Shri Hibi Eden...
04/08/2025

A Historic Moment for the Lupus Community in India!
We are overwhelmed with gratitude to the Honourable MP Shri Hibi Eden for being the first ever compassionate voice for the Lupus community in the country! His powerful intervention in Parliament, bringing the plight of lupus patients to national attention, marks a monumental step forward!
Lupus is a lethal disease that disproportionately affects young individuals (15-45 years), inflicting catastrophic health expenditure on countless Indian families. For too long, our community has battled in the shadows.
MP Hibi Eden’s courageous act has amplified our plea for help, giving us immense hope and recognition. This is just the start, and with his guidance and continued support, we are confident of a brighter future for every lupus warrior.
A huge, huge thank you, Sir, for being our champion and standing with us!

What’s the difference between DLE (discoid lupus) and systemic lupus? Can someone with discoid lupus develop SLE (System...
31/05/2025

What’s the difference between DLE (discoid lupus) and systemic lupus? Can someone with discoid lupus develop SLE (Systemic Lupus Erythematosus) and vice versa? 🧬💬

We went LIVE with the brilliant Dr. .kavadichanda Chengappa, to break down these key questions and more, including:
âś… The latest treatments for lupus in India and abroad
✅ Do’s & Don’ts of lupus care
âś… Cosmetic corrections for skin involvement

A heartfelt thank you to Dr. Chengappa for sharing his time and insights with us 🙏💜
đź“ş Catch the full session on
đź“ŤFor more videos by Dr. Chengappa, visit for powerful content on the future of lupus treatment and rheumatology well-being.






















Juvenile lupus is no joke — but sometimes, we use humour to survive it.No child should have to choose between playground...
30/05/2025

Juvenile lupus is no joke — but sometimes, we use humour to survive it.

No child should have to choose between playgrounds, schoolbooks, and IV drips.
Juvenile lupus can be aggressive, unpredictable, and deeply isolating. These memes are our way of coping, connecting, and creating awareness.

Behind the laughs is a reality we hope the world sees. Lupus can rob children of their childhood — let’s give them their voices back.

They were diagnosed in childhood. They grew up fighting not just textbooks, but treatments. Meet Amanda, she’s 11 and ou...
21/05/2025

They were diagnosed in childhood. They grew up fighting not just textbooks, but treatments. Meet Amanda, she’s 11 and our brave juvenile Lupus warrior— who remind us that strength doesn’t wait for adulthood. 💜

We are proud to share the media highlights from our 2025 Lupus Awareness Campaigns đź“°đź’śFrom Kochi to Trivandrum, our effor...
19/05/2025

We are proud to share the media highlights from our 2025 Lupus Awareness Campaigns đź“°đź’ś

From Kochi to Trivandrum, our efforts to spotlight invisible illnesses like Lupus have reached newsrooms, communities, and conversations that matter.

With the support of dedicated doctors, patient leaders, volunteers, and policymakers — and the power of media — we are breaking silence, building awareness, and changing how India sees chronic autoimmune conditions.

A special thanks to all the journalists and editors who chose to amplify our voices.

This is visibility. This is advocacy. This is Lupus Trust India.

To our families, our friends, and our partners — thank you for being our biggest support system. You are the reason we’r...
19/05/2025

To our families, our friends, and our partners — thank you for being our biggest support system. You are the reason we’re able to show up, speak up, and keep building this movement year after year, month after month.

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