About :
Telangana Hemophilia Society is a Non-Profit organization, the wishes to helps ,educates and caters to the maximum possible needs of persons with hemophilia. Description :
Hemophilia is incurable but Manageable...!! hemophilia is a genetic bleeding disorder. persons suffering from it have prolonged bleeding mostly in their joints. it is due to absence of certain clotting factors in the blo
od. Prolonged bleeding may be after injury or can happen on its own. it affects almost only males irrespective of caste, creed, religion or geographical variations. Hemophilia is a life - long incurable disorder but it is certainly manageable, even in its severest form. A lot of education and timely treatment is very essential. The incidence of hemophilia as per WHO findings is 1 person in a population of 10,000. so as per population, there should be approximately more then5,000 persons suffering from hemophilia in Telangana. What can Hemophilia lead to ?
*Disability: Treatment of hemophilia is very expensive. therefore, patients are under treated or not treated at all because of its Cost. this leads to permanent disability. children become handicapped before they reach their teens.
*Financial Ruin: Hemophilia is manageable. The treatment is in the form of intravenous injections of a life-saving medicine called "Anti Hemophiliac Factor" (AHF). This is extracted from human blood and hence it is very expensive. it is also not manufactured anywhere in India. Unfortunately there is no financial support from the government to make it affordable for the patients.
*Risk of HIV / Hepatitis: Persons with hemophilia have to take frequent transfusions of blood and blood - products. Hence they face the high risk of HIV & Hepatitis A, B & C.
*Total Insecurity: Hemophilia, if not treated properly leads to disability, family becomes a financial wreck and the child himself feels, that he is a total burden on the society. This is because of low level of awareness in patients, doctors and general public about hemophilia. But all this is definitely preventable. "Hemophilia societies needs to be financially supported". Hemophilia Society, Telangana Chapter is a voluntary non - profit organization, which aims
* To locate Undiagnosed persons with hemophilia,
* To educate and provide information about proper hemophilia care,
* To make hemophilia treatment available at an affordable cost. The Society Provides care to Approximately 1600 persons with hemophilia. it offers psycho - social support to patient as well as their families. it provides blood - clotting factors to the needy at no - profit - no - loss basis or even free to the poor. The Society also educates patients, trains doctors, organizes workshops about hemophilia care. General Information
Hemophilia is incurable but Manageable...!! so there should be approximately 10,000 persons suffering from hemophilia in our NEW TELANGANA (Andhra Pradesh) State.
